MPIP – Where is our background in the “NEW” MRF History?
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MPIP – Where is our background in the “NEW” MRF History?

› Forums › Caregiver Community › MPIP – Where is our background in the “NEW” MRF History?

  • Post
    • December 31, 2011 at 8:22 am
    JerryfromFauq
    Participant

        Basically we are not a generic "community" as most Bulletin boards have.  We are the "MELANOMA PATIENTS INFORMATION PAGE" community.   The history of the MPIP predates the formation of the MRF.  The MPIP is a Memorial to Jeff Paterson and his wife's sister, Cindy.
         The MRF does a great job of fund raising and supporting research for the fight against melanoma.  The MPIP is not a fund raising entity, we are a group of fellow sufferer's trying to help each other on a personal, compassionate and informational level.  We need the MRF's help, and the fact that the MRF is now supporting the MPIP should be a benefit in their fund-raising.  The first new format  seemed to have forgotten the personal approach of the MPIP and concentrated more on the commercial fund raising side of the MRF.  After complaints nd requsts the MPIP history information was included in the MRF write up

            Cindy was diagnosed with melanoma approximately Nov 1995.  Jeff set out to find everything he could about this dreadful disease.  What he discovered was that there was a great deal of information available on the internet, but it took him hours and hours to find it. He decided to put everything he could find on one "page" so that Lori Paterson's family could access the information more easily.  Unfortunately Cindy passed away  in August, 1998.    Jeff's efforts continued. What now is known as the MPIP – complete with a bulletin: board and chat room – is the result of Jeff literally spending : thousands of hours writing computer programs and researching melanoma.   His labor, which has been helping tens of thousands of patients, caregivers and their friends worldwide, outgrew the ability of one person to support it properly and the MRF agreed to continue and enhance this fabulous site to assist patients on a personal level.

    Jeff Patterson's MEMORIAL SHOULD NOT BE PUSHED ASIDE AND MADE TO APPEAR AS A TRIBUTE TO AN Astronaut's WIFE.   
         Jeff allowed others involved in the struggle against melanoma to use his site and continued the site at his own expense and time for many years to be a chat room and social room and information site for melanoma individuals.

    Last year the MPIP history information was included in the MRF write up.  This was appreciated.  Now it has again been removed!  

                                                                                                             WHY?

Viewing 11 reply threads
  • Replies
      • December 31, 2011 at 3:59 pm
      Jerry from Cape Cod
      Participant

      Stronly Support your position Jerry

      • December 31, 2011 at 3:59 pm
      Jerry from Cape Cod
      Participant

      Stronly Support your position Jerry

      • December 31, 2011 at 3:59 pm
      Jerry from Cape Cod
      Participant

      Stronly Support your position Jerry

      • December 31, 2011 at 4:15 pm
      kylez
      Participant

      Is this the page? http://www.mpip.org/infoaboutsite.html

      If so it's still out there, found it in Google. But it sounds like it's unlinked from MPIP?

      I didn't know the early history of MPIP, I'm glad to have heard a little about it now.

      • December 31, 2011 at 4:15 pm
      kylez
      Participant

      Is this the page? http://www.mpip.org/infoaboutsite.html

      If so it's still out there, found it in Google. But it sounds like it's unlinked from MPIP?

      I didn't know the early history of MPIP, I'm glad to have heard a little about it now.

      • December 31, 2011 at 4:15 pm
      kylez
      Participant

      Is this the page? http://www.mpip.org/infoaboutsite.html

      If so it's still out there, found it in Google. But it sounds like it's unlinked from MPIP?

      I didn't know the early history of MPIP, I'm glad to have heard a little about it now.

      • December 31, 2011 at 5:58 pm
      Lauri England
      Participant

      I also had no idea of the history of this site.  Thank you for sharing it.

      • December 31, 2011 at 5:58 pm
      Lauri England
      Participant

      I also had no idea of the history of this site.  Thank you for sharing it.

      • December 31, 2011 at 5:58 pm
      Lauri England
      Participant

      I also had no idea of the history of this site.  Thank you for sharing it.

      • December 31, 2011 at 8:36 pm
      DonW
      Participant

      Jerry — There is still a short history of MPIP that mentions Jeff on this site when you click on the "community" link on the MRF home page

      http://www.melanoma.org/community/mpip-community-central

      As for the 'astronaut's wife', Diana also posted on MPIP and founded MRF so of course she would be mentioned prominently.

      • December 31, 2011 at 8:36 pm
      DonW
      Participant

      Jerry — There is still a short history of MPIP that mentions Jeff on this site when you click on the "community" link on the MRF home page

      http://www.melanoma.org/community/mpip-community-central

      As for the 'astronaut's wife', Diana also posted on MPIP and founded MRF so of course she would be mentioned prominently.

        • January 1, 2012 at 12:07 am
        JerryfromFauq
        Participant

        Don, That pge wouldn't show up last night when i ws looking for it.  I havw no problem with Diana and her Jeff being prominnt in th MRF site.  I just wnt to make sure that The Patterwons great contribution to there ister and aid to many thousands of melanoma patients is not dropped like it was for over a year until I wrote Randy Lomax and Tim Turnham.  I could not get the indow with the info about  Jeff to sho lst night and also could not get into the chat room, vn though I spnt everal hour trying to enter.  It said I had a 100% , but never actually let me enter the chat room.  I'm trying to get more activ again now that I'm back in Virginiq.

        • January 1, 2012 at 12:07 am
        JerryfromFauq
        Participant

        Don, That pge wouldn't show up last night when i ws looking for it.  I havw no problem with Diana and her Jeff being prominnt in th MRF site.  I just wnt to make sure that The Patterwons great contribution to there ister and aid to many thousands of melanoma patients is not dropped like it was for over a year until I wrote Randy Lomax and Tim Turnham.  I could not get the indow with the info about  Jeff to sho lst night and also could not get into the chat room, vn though I spnt everal hour trying to enter.  It said I had a 100% , but never actually let me enter the chat room.  I'm trying to get more activ again now that I'm back in Virginiq.

        • January 1, 2012 at 12:07 am
        JerryfromFauq
        Participant

        Don, That pge wouldn't show up last night when i ws looking for it.  I havw no problem with Diana and her Jeff being prominnt in th MRF site.  I just wnt to make sure that The Patterwons great contribution to there ister and aid to many thousands of melanoma patients is not dropped like it was for over a year until I wrote Randy Lomax and Tim Turnham.  I could not get the indow with the info about  Jeff to sho lst night and also could not get into the chat room, vn though I spnt everal hour trying to enter.  It said I had a 100% , but never actually let me enter the chat room.  I'm trying to get more activ again now that I'm back in Virginiq.

        • January 1, 2012 at 4:26 am
        DonW
        Participant

        Jerry — I noticed that the chat room has not been working. Tonight I sent a message to MRF through the contact link on here about it. Doesn't seem like many care about the room these days, but it's still nice to have it working for the few that like to chat and for new patients looking for help.

        • January 1, 2012 at 4:26 am
        DonW
        Participant

        Jerry — I noticed that the chat room has not been working. Tonight I sent a message to MRF through the contact link on here about it. Doesn't seem like many care about the room these days, but it's still nice to have it working for the few that like to chat and for new patients looking for help.

        • January 1, 2012 at 4:26 am
        DonW
        Participant

        Jerry — I noticed that the chat room has not been working. Tonight I sent a message to MRF through the contact link on here about it. Doesn't seem like many care about the room these days, but it's still nice to have it working for the few that like to chat and for new patients looking for help.

      • December 31, 2011 at 8:36 pm
      DonW
      Participant

      Jerry — There is still a short history of MPIP that mentions Jeff on this site when you click on the "community" link on the MRF home page

      http://www.melanoma.org/community/mpip-community-central

      As for the 'astronaut's wife', Diana also posted on MPIP and founded MRF so of course she would be mentioned prominently.

Viewing 11 reply threads

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