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Moms Scans

› Forums › General Melanoma Community › Moms Scans

  • Post
    • January 24, 2017 at 6:23 pm
    Buddy0513
    Participant

      Hello everyone,

      My mom finally got her scan results (for the most part) after a long weekend. Since the nurse called us at home I don't have all of the details other than they said swelling has gone down. There is no swelling in her lymph nodes (I guess nothing in the lymph nodes?) and that no new activity was reported anywhere. I am assuming they mean swelling in the abdomen area related to the tumor and that the tumor has shrunk, but is still there, making her stable at the moment (I really didn't expect the almost cantelope size tumor to just vanish). 

      So this was really good news! I am not entirely sure what that means for stability wise a few months from now since the nurse did not mention NED (or if she can even attain NED later?), but she is scheduled to continue Nivo once her prednisone mg is reduced (she had colitis recently ontop of the rash, but the steroid seems to be helping that).

      Just wanted to thank everyone for the support along the way here. This board really has made a huge difference between life and death for my mom, especially choosing the right doctor and what we should be looking out for. Keeping all of you in my thoughts as you continue to kick melanoma butt!

      Melissa

       

    Viewing 2 reply threads
    • Replies
        • January 24, 2017 at 7:38 pm
        Polymath
        Participant

          Hi Melissa,

          Glad to hear scan results sound like stability.  Huge tumors like your Mom's appear to be pretty rare in melanoma.  I get really large tumors, and just had my spleen removed as it was engulfed with a cantaloupe sized mass.  I don't recall exactly where your Mom's tumor is located but sharing my story, it's that drug therapy simply is no match for tumors of this size and radiation or surgery are the effective options to rid oneself of these monsters.  I was lucky, as I can live without a spleen, and Mom's case may be very different but I thought I would share.  Best in the battle.

          Gary

           

            • January 24, 2017 at 11:56 pm
            Buddy0513
            Participant

              My mom has her tumor on her ovary. We haven't heard anything about radiation or surgery to remove it, not sure if that will be talked about next week when she sees the doctor in person, or if it will just be left alone and monitored since it did apparently shrink signficantly. Thanks for the input! 

              • January 24, 2017 at 11:56 pm
              Buddy0513
              Participant

                My mom has her tumor on her ovary. We haven't heard anything about radiation or surgery to remove it, not sure if that will be talked about next week when she sees the doctor in person, or if it will just be left alone and monitored since it did apparently shrink signficantly. Thanks for the input! 

                • January 24, 2017 at 11:56 pm
                Buddy0513
                Participant

                  My mom has her tumor on her ovary. We haven't heard anything about radiation or surgery to remove it, not sure if that will be talked about next week when she sees the doctor in person, or if it will just be left alone and monitored since it did apparently shrink signficantly. Thanks for the input! 

                • January 24, 2017 at 7:38 pm
                Polymath
                Participant

                  Hi Melissa,

                  Glad to hear scan results sound like stability.  Huge tumors like your Mom's appear to be pretty rare in melanoma.  I get really large tumors, and just had my spleen removed as it was engulfed with a cantaloupe sized mass.  I don't recall exactly where your Mom's tumor is located but sharing my story, it's that drug therapy simply is no match for tumors of this size and radiation or surgery are the effective options to rid oneself of these monsters.  I was lucky, as I can live without a spleen, and Mom's case may be very different but I thought I would share.  Best in the battle.

                  Gary

                   

                  • January 24, 2017 at 7:38 pm
                  Polymath
                  Participant

                    Hi Melissa,

                    Glad to hear scan results sound like stability.  Huge tumors like your Mom's appear to be pretty rare in melanoma.  I get really large tumors, and just had my spleen removed as it was engulfed with a cantaloupe sized mass.  I don't recall exactly where your Mom's tumor is located but sharing my story, it's that drug therapy simply is no match for tumors of this size and radiation or surgery are the effective options to rid oneself of these monsters.  I was lucky, as I can live without a spleen, and Mom's case may be very different but I thought I would share.  Best in the battle.

                    Gary

                     

                Viewing 2 reply threads
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