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mixed bag results after 3 month vemurafenib scans
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mixed bag results after 3 month vemurafenib scans

› Forums › General Melanoma Community › mixed bag results after 3 month vemurafenib scans

  • Post
    • November 2, 2011 at 4:13 pm
    sss
    Participant

      To say I am very disappointed would be an understand.  While the scans showed shrinkage of many tumors throughout abdomen, there were a few that had grown slightly. My liver enzymes are creeping back up. And there are now mets in brain, which are fairly widespread.  So the recommendation is WBR and Switch from Venurafenib to Ipi.  can't say I am excited about either prospect. I am to meet with radiation oncologist on Fri for initial consultation.  Med onc office thinks I can keep working during WBR. I would appreciate input from those who have been there.

      To say I am very disappointed would be an understand.  While the scans showed shrinkage of many tumors throughout abdomen, there were a few that had grown slightly. My liver enzymes are creeping back up. And there are now mets in brain, which are fairly widespread.  So the recommendation is WBR and Switch from Venurafenib to Ipi.  can't say I am excited about either prospect. I am to meet with radiation oncologist on Fri for initial consultation.  Med onc office thinks I can keep working during WBR. I would appreciate input from those who have been there.

      We told our 2 daughters last night. The news was traumatic for them (ages 14 & 12) to say the least. A rough night for all of us

      sss

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    • Replies
        • November 2, 2011 at 5:12 pm
        dearfoam
        Participant

          Sorry to hear. Mixed results are confusing!

          Dad had WBR as his first treatment, but his brain mets were already severe and had disrupted his work life, memory, etc. The treatment added more fatigue and loss of appetite to his symptom list. I imagine it depends on your physical state going into treatment and how many sessions are recommended. If it were me, I think it would be wise to prepare for taking a break from work if needed, or only working half days or from home if possible.

          Best,

          DF

          • November 2, 2011 at 5:12 pm
          dearfoam
          Participant

            Sorry to hear. Mixed results are confusing!

            Dad had WBR as his first treatment, but his brain mets were already severe and had disrupted his work life, memory, etc. The treatment added more fatigue and loss of appetite to his symptom list. I imagine it depends on your physical state going into treatment and how many sessions are recommended. If it were me, I think it would be wise to prepare for taking a break from work if needed, or only working half days or from home if possible.

            Best,

            DF

            • November 2, 2011 at 5:12 pm
            dearfoam
            Participant

              Sorry to hear. Mixed results are confusing!

              Dad had WBR as his first treatment, but his brain mets were already severe and had disrupted his work life, memory, etc. The treatment added more fatigue and loss of appetite to his symptom list. I imagine it depends on your physical state going into treatment and how many sessions are recommended. If it were me, I think it would be wise to prepare for taking a break from work if needed, or only working half days or from home if possible.

              Best,

              DF

              • November 4, 2011 at 12:46 pm
              Hereiam
              Participant

                Hi sss,

                I am very sorry to hear such news. And I truly hope all the treatment you are prescribed will work for you just fine!

                No matter how controversial this following option might seem in this forum, I will still try to bring it to you: if you`re concerned whether the whole treatment will influence your ability to work or spend a quality time with your family, you might want to explore virotherapy in order to reduce potentional side-effects and improve immune system so that you would respond to the chemo/radio better.

                Well, that`s just my suggestion.

                Take care!

                • November 4, 2011 at 12:46 pm
                Hereiam
                Participant

                  Hi sss,

                  I am very sorry to hear such news. And I truly hope all the treatment you are prescribed will work for you just fine!

                  No matter how controversial this following option might seem in this forum, I will still try to bring it to you: if you`re concerned whether the whole treatment will influence your ability to work or spend a quality time with your family, you might want to explore virotherapy in order to reduce potentional side-effects and improve immune system so that you would respond to the chemo/radio better.

                  Well, that`s just my suggestion.

                  Take care!

                  • November 4, 2011 at 12:46 pm
                  Hereiam
                  Participant

                    Hi sss,

                    I am very sorry to hear such news. And I truly hope all the treatment you are prescribed will work for you just fine!

                    No matter how controversial this following option might seem in this forum, I will still try to bring it to you: if you`re concerned whether the whole treatment will influence your ability to work or spend a quality time with your family, you might want to explore virotherapy in order to reduce potentional side-effects and improve immune system so that you would respond to the chemo/radio better.

                    Well, that`s just my suggestion.

                    Take care!

                Viewing 5 reply threads
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