› Forums › General Melanoma Community › mixed bag results after 3 month vemurafenib scans
- This topic has 3 replies, 1 voice, and was last updated 12 years, 6 months ago by
Phil S.
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- November 2, 2011 at 4:13 pm
To say I am very disappointed would be an understand. While the scans showed shrinkage of many tumors throughout abdomen, there were a few that had grown slightly. My liver enzymes are creeping back up. And there are now mets in brain, which are fairly widespread. So the recommendation is WBR and Switch from Venurafenib to Ipi. can't say I am excited about either prospect. I am to meet with radiation oncologist on Fri for initial consultation. Med onc office thinks I can keep working during WBR. I would appreciate input from those who have been there.
To say I am very disappointed would be an understand. While the scans showed shrinkage of many tumors throughout abdomen, there were a few that had grown slightly. My liver enzymes are creeping back up. And there are now mets in brain, which are fairly widespread. So the recommendation is WBR and Switch from Venurafenib to Ipi. can't say I am excited about either prospect. I am to meet with radiation oncologist on Fri for initial consultation. Med onc office thinks I can keep working during WBR. I would appreciate input from those who have been there.
We told our 2 daughters last night. The news was traumatic for them (ages 14 & 12) to say the least. A rough night for all of us
sss
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- November 2, 2011 at 6:07 pm
SSS. Sorry to hear your news, I know how upsetting and shocking it is to discuss brain radiation and to deal with the reality of tumor progression during treatment. However, you need to read KatyWI post on “my experience with whole brain radiation” as that will help calm your fears. My husband has just completed two weeks of WBR, and has one week left. He has done pretty well, a little tired, but no other side effects. I think working during treatment, is very individual depending on your age and overall condition, and the type of job. My husband has flexible hours, so he gets his radiation in the morning first thing, it takes 5 minutes. When he can, he works and we have small children, he rests in the afternoon/short nap as he never gets to bed at night until 11pm. He even took us all to NYC this past weekend and we walked everywhere in the pouring rain to see a play and shop, and his stamina held up just fine. I think you will do well, if your doctor is saying you can still work, go for it! Good luck and keep us posted on your progress. Valerie (phil’s wife) -
- November 2, 2011 at 6:07 pm
SSS. Sorry to hear your news, I know how upsetting and shocking it is to discuss brain radiation and to deal with the reality of tumor progression during treatment. However, you need to read KatyWI post on “my experience with whole brain radiation” as that will help calm your fears. My husband has just completed two weeks of WBR, and has one week left. He has done pretty well, a little tired, but no other side effects. I think working during treatment, is very individual depending on your age and overall condition, and the type of job. My husband has flexible hours, so he gets his radiation in the morning first thing, it takes 5 minutes. When he can, he works and we have small children, he rests in the afternoon/short nap as he never gets to bed at night until 11pm. He even took us all to NYC this past weekend and we walked everywhere in the pouring rain to see a play and shop, and his stamina held up just fine. I think you will do well, if your doctor is saying you can still work, go for it! Good luck and keep us posted on your progress. Valerie (phil’s wife) -
- November 2, 2011 at 6:07 pm
SSS. Sorry to hear your news, I know how upsetting and shocking it is to discuss brain radiation and to deal with the reality of tumor progression during treatment. However, you need to read KatyWI post on “my experience with whole brain radiation” as that will help calm your fears. My husband has just completed two weeks of WBR, and has one week left. He has done pretty well, a little tired, but no other side effects. I think working during treatment, is very individual depending on your age and overall condition, and the type of job. My husband has flexible hours, so he gets his radiation in the morning first thing, it takes 5 minutes. When he can, he works and we have small children, he rests in the afternoon/short nap as he never gets to bed at night until 11pm. He even took us all to NYC this past weekend and we walked everywhere in the pouring rain to see a play and shop, and his stamina held up just fine. I think you will do well, if your doctor is saying you can still work, go for it! Good luck and keep us posted on your progress. Valerie (phil’s wife)
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