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Micronodules in both lungs , I need help please

Forums Mucosal Melanoma Community Micronodules in both lungs , I need help please

  • Post
    Staywell
    Participant

      I'm new in this great forum, I need urgent help, please . Diagnosed with a MM Mucosal melanoma in January, apparently St 1 ,  at the first scan  it was reported there were several micronodules to the both lung bases. 

      I' m really concerned because I don't know a way to determinate what nature are this micronodules.

      Please anybody knows the best lung specialists that could have had more experiences in diagnosing that condition ? Does it exist two or three criteria do discriminate if a a micronodule is benign ?

      Thanks for your answers .I wish you all be well. 

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    • Replies
        Cindyco
        Participant

          Hi Staywell, my mom also has mucosal melanoma and she had some tiny lung nodules initially that turned out to be melanoma and she ended up having numerous small tumors on her lungs when she progressed to Stage IV.  I would talk to your doctor about your concerns, but also remember that any systemic treatment you're receiving should also be targeting the lung tumors so knowing may or may not actually change your treatment plan that much.  

          Have you joined the mucosal melanoma facebook group?  There are about 100 people with MM that use that as a forum more than they use MRF: https://www.facebook.com/groups/906485416088740/  It's been a great resource for me, in addition to this forum.

          There is someone in the group that did end up finding a lung specialist to biopsy her small lung nodules when she was Stage II, but I can't remember who the specialist was.  

            Staywell
            Participant

              Thanks for your answer , Cindy. Sorry for your mom. Doctors don't want to talk , they just told we can't be sure what are these nodules. Of course thanks for the MM link . According to you , this could help making any molecular test to look what bad pathway is involved ? I knew that MM recognize different genetic disruptions than the cutaneous form.Best wishes. 

            Janner
            Participant

              Were the lung nodules not there at your baseline scan and now they have appeared?  Or is this the first scan you've had?  Lungs are notorious for harboring benign nodules.  Actually quite common but unless you scan the average healthy person, they're just not seen.  So if this is the 1st scan you've had and you have lung nodules, then they may make you wait for a followup scan.  If this is growth from a previous scan, then that's different.  Some nodules are too tiny to biopsy and they will make assumptions.  Typically, rescans are intervals are how they determine "benign".  No growth means benign.  Growth means problematic.

                Staywell
                Participant

                  First of all thanks for answering me . This was my first Ct . I know that you can get nodules in a healthy person, unfortunately it's another story when you are diagnosed with a Mucosal Melanoma ( any stage , I read ).What is more corncerning is that there are SEVERAL  micronodules , and they are located at the base of BOTH the lungs . I suspect that this could be a criteria  , specially with the location, the lung base. Again thanks..

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