› Forums › General Melanoma Community › Metastasis to the Duodenum
- This topic has 15 replies, 5 voices, and was last updated 8 years, 10 months ago by
1derdog.
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- February 5, 2015 at 9:56 pm
I just got a detailed endoscopic procedure yesterday to answer the mystery of a growth/lesion that has been getting bigger over the last few months in the area of the pancreas and duodenum. The experienced doctor who did the scope reported after the procedure that it was located in the duodenum and was metastatic melanoma. My first metastatic diagnois was in early 2012. Since then, I have had brain radiation and a lung lobectomy as well as two craniotomies. The new metastasis is the only sign of cancer in my body now. I will be meeting with my oncologist about this soon, but I am interested in hearing from anyone who has had metastasis to the duodenum and what the treatment has been. I have not yet had anti-PD 1. Based on the pre-scope conversation with my oncologist, I presume he will be recommending a course of Keytruda. He also wanted to explore surgery, but the gastroenterologist wsa pessimistic about that course for a variety of reasons foremost probably my age, though I do have excellent performance status. Thank you.
Frank
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- February 6, 2015 at 2:05 am
Oh, Frank! Sorry you are having to deal with that!!! I have no experience myself in this regard, but one of the anti-PD1 products (nivo/Opdivo or Keytruda) certainly sounds wise. Mostly, I just wish you well! Hang in there and keep us all posted. Yours, Celeste
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- February 6, 2015 at 2:05 am
Oh, Frank! Sorry you are having to deal with that!!! I have no experience myself in this regard, but one of the anti-PD1 products (nivo/Opdivo or Keytruda) certainly sounds wise. Mostly, I just wish you well! Hang in there and keep us all posted. Yours, Celeste
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- February 6, 2015 at 2:05 am
Oh, Frank! Sorry you are having to deal with that!!! I have no experience myself in this regard, but one of the anti-PD1 products (nivo/Opdivo or Keytruda) certainly sounds wise. Mostly, I just wish you well! Hang in there and keep us all posted. Yours, Celeste
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- February 6, 2015 at 4:52 am
Frank,
I had surgery to remove mets in the area of my jejunum which I believe is just after the duodenum in the small intestines. They removed about a foot of my small intestines. All things considered the surgery and recovery were not bad and I have no noticeable after effects of the surgery. Here's a thread I posted about the rollercoaster ride finding the mets back in April/May of 2013. You may want to just skip to the last post. In my case they got everything they could find during the surgery and post scans were clear but a couple months later a couple nodes in my adomen lit up. I was fortunate to get into a ipi/nivo sequential trial in Aug 2013 and have been stable for about a year. I would recommend a anti-PD 1 as well or a anti-PD1 combo trial if one was available. Good luck to you.
Brian
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- February 6, 2015 at 4:52 am
Frank,
I had surgery to remove mets in the area of my jejunum which I believe is just after the duodenum in the small intestines. They removed about a foot of my small intestines. All things considered the surgery and recovery were not bad and I have no noticeable after effects of the surgery. Here's a thread I posted about the rollercoaster ride finding the mets back in April/May of 2013. You may want to just skip to the last post. In my case they got everything they could find during the surgery and post scans were clear but a couple months later a couple nodes in my adomen lit up. I was fortunate to get into a ipi/nivo sequential trial in Aug 2013 and have been stable for about a year. I would recommend a anti-PD 1 as well or a anti-PD1 combo trial if one was available. Good luck to you.
Brian
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- February 6, 2015 at 4:52 am
Frank,
I had surgery to remove mets in the area of my jejunum which I believe is just after the duodenum in the small intestines. They removed about a foot of my small intestines. All things considered the surgery and recovery were not bad and I have no noticeable after effects of the surgery. Here's a thread I posted about the rollercoaster ride finding the mets back in April/May of 2013. You may want to just skip to the last post. In my case they got everything they could find during the surgery and post scans were clear but a couple months later a couple nodes in my adomen lit up. I was fortunate to get into a ipi/nivo sequential trial in Aug 2013 and have been stable for about a year. I would recommend a anti-PD 1 as well or a anti-PD1 combo trial if one was available. Good luck to you.
Brian
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- February 7, 2015 at 12:25 am
I certainly don’t want to be a Debbie downer here but I do know there is a major artery running through that area. My mom had pancreatic cancer in the duodenum and she was unable to have it removed because it was too close. Maybe try to do some research and definitely see what your onc has to say about it. Maybe this isn’t the case with you. -
- February 7, 2015 at 12:25 am
I certainly don’t want to be a Debbie downer here but I do know there is a major artery running through that area. My mom had pancreatic cancer in the duodenum and she was unable to have it removed because it was too close. Maybe try to do some research and definitely see what your onc has to say about it. Maybe this isn’t the case with you. -
- February 7, 2015 at 12:25 am
I certainly don’t want to be a Debbie downer here but I do know there is a major artery running through that area. My mom had pancreatic cancer in the duodenum and she was unable to have it removed because it was too close. Maybe try to do some research and definitely see what your onc has to say about it. Maybe this isn’t the case with you. -
- February 8, 2015 at 11:39 pm
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- June 27, 2015 at 5:00 pm
May I ask what is your current status after taking Keytruda? My husband recently was told he has another lesion (mm) in his uncinate process (pancreas) that is unresectable. They put him on Keytruda. He's had his second dose & has a lot of nausea & diarrhea. Anything you can suggest would be very much appreciated. Hope you're doing well.
Caregiver(wife)
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- June 27, 2015 at 5:00 pm
May I ask what is your current status after taking Keytruda? My husband recently was told he has another lesion (mm) in his uncinate process (pancreas) that is unresectable. They put him on Keytruda. He's had his second dose & has a lot of nausea & diarrhea. Anything you can suggest would be very much appreciated. Hope you're doing well.
Caregiver(wife)
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- June 27, 2015 at 5:00 pm
May I ask what is your current status after taking Keytruda? My husband recently was told he has another lesion (mm) in his uncinate process (pancreas) that is unresectable. They put him on Keytruda. He's had his second dose & has a lot of nausea & diarrhea. Anything you can suggest would be very much appreciated. Hope you're doing well.
Caregiver(wife)
-
- February 8, 2015 at 11:39 pm
I want to share the amazing results with Cannabis oil cancer miracle cure. My wife just recovered from breast cancer just 19 weeks of using it. She have being having this breast cancer on her left side which she have been battling for over 3 years.More importantly, she is no longer having to deal with the embarrassment and annoyance of Chemo, Radiations and those crazy cancer drugs which is been recommended by oncologist nor daily fatigue. If you have been in the situation, you will know what it means to be free indeed.Thanks to Dr. Thomas and Mr. Rick Simpson. Save yourself, and your family members and friends by helping them out with this information for better understanding.Where to order the medication online!!!!!!!!!!!!!!!!!!!!!!!for more help. -
- February 8, 2015 at 11:39 pm
I want to share the amazing results with Cannabis oil cancer miracle cure. My wife just recovered from breast cancer just 19 weeks of using it. She have being having this breast cancer on her left side which she have been battling for over 3 years.More importantly, she is no longer having to deal with the embarrassment and annoyance of Chemo, Radiations and those crazy cancer drugs which is been recommended by oncologist nor daily fatigue. If you have been in the situation, you will know what it means to be free indeed.Thanks to Dr. Thomas and Mr. Rick Simpson. Save yourself, and your family members and friends by helping them out with this information for better understanding.Where to order the medication online!!!!!!!!!!!!!!!!!!!!!!!for more help.
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