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Melanoma Stage 1

Forums Cutaneous Melanoma Community Melanoma Stage 1

  • Post
    Nicole78
    Participant

      Hi Everyone, my name is Nicole , I’ve just been diagnosed with melanoma and that changed everything, I can’t sleep properly πŸ™ I have up and downs thinking that I have cancer and that is shocking πŸ™ The report from the shave biopsy show a Clark level 1 , Breslow thickens – N/A which is not sure what’s that… peripheral: 2mm, deep 0.5mm. I had the excision and waiting now for the biopsy . The doctor said that he took as much he can and I really hope that the biopsy will come up good. I have another one on my back which is just pyaplastic compund so I will remove that one as well. I’m sure there are people with worse case πŸ™ I never thought that I will ever be diagnosed with melanoma as my doctor always said that European people are unlikely to have it so it was a big shock for me the result πŸ™ I’m crying a lot , I have two kids and I’m thinking at the worst πŸ™ I have moments when I think , it’s ok ,it will be ok but then I’m thinking, it’s cancer , it’s there , anytime can come back , I’m suspicious of each mole on my body now πŸ™ it’s not easy…I feel sorry for everyone here having melanoma and I think we just have to hope that the science will discover a cure and we all be safe! 

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        Janner
        Participant

          From the little you've given us, I think you are actually stage 0 (in situ).  The definition of in situ / stage 0 is Clark's Level 1 and no Breslow depth.  I think the numbers you are putting for depth are related to the size of the biopsy and the peripheral margins, not the size of the actual melanoma.  In situ / stage 0 has a fantastic prognosis.  Clark's Level I means the lesion is confined to the epidermis and there aren't any lymph of blood vessels there so in situ really lacks the capability to spread.  Remember, most people NEVER have a second melanoma and about 75% of melanomas show up on NEW moles, not existing.  So watch for new and different!  The shock is hard, no way around that.  But it does get easier as time passes.   After this excision heals, chances are you will never deal with melanoma again.  Not sure where you heard European's don't get melanoma, since many of us in the US are of European descent.

            Nicole78
            Participant

              Thank you so much for you reply and encouragement , I’m in Australia , here the skin cancer is normal, every 1 in 4 person could have it… yeah, lucky i got it in time. 4 years ago my dr said that is not happy with this mole in my leg so I keep ignore it just because I was scared of the biopsy cut , last year my skin specialist said we really need to take it out so again I left and I said ok I will come next week , been scared again and never went back πŸ™ but this time he said you’re not gonna leave until I cut these moles to see how they are. And lucky it was like that, next week I will have the excision for the one on the back and the every 3 months for a year I have to go and check them. I’m lucky to be in Australia , the government covers everything and they’re very careful with it. I’m not sure if the sun or solarium I did years ago back in Europe… in Australia solariums are prohibited . The sun here is very strong and I have to admit that I’m a sun lover , I could stay in the sun all day , I love it. Unfortunately from now on I have to be careful , covered all the time. So if it’s stage 0 that makes me feel a bit better . The report also showed no ulcer , absent, lymphocytic infiltrate -moderate, nuclear grade -moderate to high, these are the results on the report … thank you so much again for encouragements , means a lot to me and I really hope all this trouble to stop here . 

              stars
              Participant

                Hi

                Did you want to put your full name in your post? Not usually a good idea. Perhaps post the full info from the pathology report, word for word as I think it sounds like in situ as well but parts of it don't really make sense. It's either in situ – scary but no chance of it spreading – or stage 1 – very small chance of it spreading. The way you worded the part from the pathology report is just a bit confusing. Either way its definitely in its early stages and not any immediate threat. Stay strong!

                Nicole78
                Participant

                  Hi, may report haΘ™ the folosind details:

                  Diagnosis: small malignant melanoma in Situ arising from a background of dysplasic compound melanocytic naevus

                  Peripheral: 2mm

                  deep: 0.5mm

                  breslow thickness: N/A

                  Clark level: 1

                  ulceration: absent

                  mitosis:absent; vascular invasion: absent, lymphocytic infiltrate: mild, regression: absent, desmoplasi: absent 

                  The second one I have is: dysplastic compund melanocytic naevus with moderate to severe cytological atypia. I’m going to do the excision for this one in few days… I’m very anxious that I’ll go next time and they will find more melanoma on my body as I have lots of moles πŸ™ that’s my biggest fear πŸ™ I’m still shocked and can’t sleep and cry and really hope I won’t get into a depression πŸ™ thank you 

                  Janner
                  Participant

                    The diagnosis confirms what I wrote before.  Stage 0 / in situ. 

                    Nicole78
                    Participant

                      Thank you, i Hope it won’t reoccurr in the future … is it Llikely to have in the future on other moles on my body? I want to say , if you got it once can happen again on other side of the body? This is my biggest fear! πŸ™ 

                      Janner
                      Participant

                        If you have dysplastic nevus syndrome, your risk is higher.  Discuss with your derm.  Lots of moles doesn't necessarily mean you have the syndrome although that is part of it.  That's why I like photos.  Some way to keep track of everything.

                        Nicole78
                        Participant

                          Yeah, The doctor said that’s ok with the dysplastic but I said to him to cut it off , I just don’t want in few months to repeat the same nightmare πŸ™ so next Tuesday it will be cut out as much he can . I feel like I want to cut them all of πŸ™ thank you so much for your reply!

                          Janner
                          Participant

                            Wholesale mole removal hasn't shown to improve survival since 75% of melanomas arise on new moles!

                            Nicole78
                            Participant

                              The huge amount of stress is still there and I just can’t get over it πŸ™  feels like I have cancer and just that word is so depressing and hopeless πŸ™ I don’t know how to get rid of all these things πŸ™ I don’t know how other people are coping with this news when they get it …

                              bjeans
                              Participant

                                There are many types of cancer, some curable, some not, with many variations and many not hopeless at all. So you don't want to put them all in the same bucket. I'd bet that most people who post here would be thrilled with a stage 0. Yes, it's a shock, but it's the best possible shock. Janner is one of the most helpful and respected members of this forum and would not mislead you. And if you continue to feel depressed and stressed, you might also consider getting support by talking with a counselor or someone who can help put this in perspective so you can enjoy your life again. You were thrown for a loop but you can spring back.

                                Nicole78
                                Participant

                                  Hi everyone, thank you So much for the support I have from you … today I had removed the dysplastic one on my back, it’s a bit sore but it will go away. I also showed my doctor another mole on my nipple which I have it for ages and didn’t pay attention, didn’t change but it’s quiet dark and I was always embarrassed to tell about that. So he looked at it and straight away he said I don’t like it . He took the biopsy and wait now for the results, another stress and hassle. I already had enough of all these πŸ™ also I want to ask is it possible melanoma to appear not on the skin but somewhere inside the body without raising on the skin? Now I’m thinking to all the bad things πŸ™ I really hope the biopsy will come back ok πŸ™ otherwise surgery for this one will be more complicated πŸ™ thank you everyone for support again and I wish you all health and all the best ! I’ll keep updating! 

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