melanoma return while on yervoy
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melanoma return while on yervoy

› Forums › General Melanoma Community › melanoma return while on yervoy

  • Post
    • January 9, 2016 at 3:58 pm
    stevecathy
    Participant
    My husband is stage 3A with original melanoma on 4th right toe that was amputated July 2105. He had a lymph node disection in the groin with 4 positive nodes. He has now had 4 infusion of yervoy ending Dec 3rd of 2015. Last week went to dermatologist for 3 month check , he had approx 5 to 6 spots by the surgery site that looked like blood blisters but came back melanoma. Wondering if anyone has experienced anything like this with yervoy? Thank you
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  • Replies
      • January 9, 2016 at 11:55 pm
      mrsaxde
      Participant

      Yervoy stopped things from growing while I was getting it, but just like your husband, shortly after finishing the treatments several small new spots appeared. I saw Dr. Sharfman at Johns Hopkins for another consult, and he and my oncologist agreed that we should give Yervoy a little longer to work. When a scan in May revealed spots on one lung that hadn't shown up on the previous scan last February, my oncologist started me on Keytruda. So far I've had better luck with it. In September everything was shrinking. In my most recent scan, last week, there were no changes.

      -Bill

      • January 9, 2016 at 11:55 pm
      mrsaxde
      Participant

      Yervoy stopped things from growing while I was getting it, but just like your husband, shortly after finishing the treatments several small new spots appeared. I saw Dr. Sharfman at Johns Hopkins for another consult, and he and my oncologist agreed that we should give Yervoy a little longer to work. When a scan in May revealed spots on one lung that hadn't shown up on the previous scan last February, my oncologist started me on Keytruda. So far I've had better luck with it. In September everything was shrinking. In my most recent scan, last week, there were no changes.

      -Bill

      • January 9, 2016 at 11:55 pm
      mrsaxde
      Participant

      Yervoy stopped things from growing while I was getting it, but just like your husband, shortly after finishing the treatments several small new spots appeared. I saw Dr. Sharfman at Johns Hopkins for another consult, and he and my oncologist agreed that we should give Yervoy a little longer to work. When a scan in May revealed spots on one lung that hadn't shown up on the previous scan last February, my oncologist started me on Keytruda. So far I've had better luck with it. In September everything was shrinking. In my most recent scan, last week, there were no changes.

      -Bill

        • January 10, 2016 at 9:19 pm
        stevecathy
        Participant
        Thank you Bill for the reply. We are going back to Chicago , cancer center of America on Wednesday this week. We are meeting with oncology team to see what steps next. Hope all continues positive for you!
        • January 10, 2016 at 9:19 pm
        stevecathy
        Participant
        Thank you Bill for the reply. We are going back to Chicago , cancer center of America on Wednesday this week. We are meeting with oncology team to see what steps next. Hope all continues positive for you!
        • January 10, 2016 at 9:19 pm
        stevecathy
        Participant
        Thank you Bill for the reply. We are going back to Chicago , cancer center of America on Wednesday this week. We are meeting with oncology team to see what steps next. Hope all continues positive for you!
      • January 11, 2016 at 1:33 am
      94z28joe
      Participant

      I was on the trial for IPI 3mg/kg dose I had 6 doses and had a local recurrence while on it and got booted off the trial.

      • January 11, 2016 at 1:33 am
      94z28joe
      Participant

      I was on the trial for IPI 3mg/kg dose I had 6 doses and had a local recurrence while on it and got booted off the trial.

      • January 11, 2016 at 1:33 am
      94z28joe
      Participant

      I was on the trial for IPI 3mg/kg dose I had 6 doses and had a local recurrence while on it and got booted off the trial.

        • January 12, 2016 at 2:54 am
        stevecathy
        Participant
        Thanks for the reply. Sorry you were dropped from trial. Best of luck to you. Blessings, Cathy
        • January 12, 2016 at 2:54 am
        stevecathy
        Participant
        Thanks for the reply. Sorry you were dropped from trial. Best of luck to you. Blessings, Cathy
        • January 12, 2016 at 2:54 am
        stevecathy
        Participant
        Thanks for the reply. Sorry you were dropped from trial. Best of luck to you. Blessings, Cathy
      • January 11, 2016 at 7:25 pm
      Julie in SoCal
      Participant

      Hi Cathy,

      Yes.

      I'm stage 3C.  Had all 4 doses of IPI with no major side effects.  I saw my tumors (in-transits) melt away only to have more pop up while on IPI.  I'm now 11 doses into PEMBRO and that's melted the after IPI in-transits.  I'm not currently NERD, but I hope to be after scans at the end of the month.

      Blessings,

      Julie

      • January 11, 2016 at 7:25 pm
      Julie in SoCal
      Participant

      Hi Cathy,

      Yes.

      I'm stage 3C.  Had all 4 doses of IPI with no major side effects.  I saw my tumors (in-transits) melt away only to have more pop up while on IPI.  I'm now 11 doses into PEMBRO and that's melted the after IPI in-transits.  I'm not currently NERD, but I hope to be after scans at the end of the month.

      Blessings,

      Julie

      • January 11, 2016 at 7:25 pm
      Julie in SoCal
      Participant

      Hi Cathy,

      Yes.

      I'm stage 3C.  Had all 4 doses of IPI with no major side effects.  I saw my tumors (in-transits) melt away only to have more pop up while on IPI.  I'm now 11 doses into PEMBRO and that's melted the after IPI in-transits.  I'm not currently NERD, but I hope to be after scans at the end of the month.

      Blessings,

      Julie

        • January 12, 2016 at 2:47 am
        stevecathy
        Participant
        Thank you Julie for reply . We are returning to Chicago Wednesday to meet with dr. Hopeful for a plan . I do appreciate the reply. Best wishes to you and good scan results . Take care and blessings to you.
        • January 12, 2016 at 2:47 am
        stevecathy
        Participant
        Thank you Julie for reply . We are returning to Chicago Wednesday to meet with dr. Hopeful for a plan . I do appreciate the reply. Best wishes to you and good scan results . Take care and blessings to you.
        • January 12, 2016 at 2:47 am
        stevecathy
        Participant
        Thank you Julie for reply . We are returning to Chicago Wednesday to meet with dr. Hopeful for a plan . I do appreciate the reply. Best wishes to you and good scan results . Take care and blessings to you.
        • January 13, 2016 at 6:07 am
        Marianne quinn
        Participant

        I've posted quite a bit about my husbands journey with ipi. He is NED after what appeared to be progression after 4 infusions of 10 mg ipi. . If you want, please read my posts for more details. Don't give up hope!

        • January 13, 2016 at 6:07 am
        Marianne quinn
        Participant

        I've posted quite a bit about my husbands journey with ipi. He is NED after what appeared to be progression after 4 infusions of 10 mg ipi. . If you want, please read my posts for more details. Don't give up hope!

        • January 13, 2016 at 6:07 am
        Marianne quinn
        Participant

        I've posted quite a bit about my husbands journey with ipi. He is NED after what appeared to be progression after 4 infusions of 10 mg ipi. . If you want, please read my posts for more details. Don't give up hope!

        • January 16, 2016 at 4:11 am
        stevecathy
        Participant
        Thank you , I will
        • January 16, 2016 at 4:11 am
        stevecathy
        Participant
        Thank you , I will
        • January 16, 2016 at 4:11 am
        stevecathy
        Participant
        Thank you , I will
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