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Meet Dr. Rosenberg… kind of.
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Meet Dr. Rosenberg… kind of.

› Forums › General Melanoma Community › Meet Dr. Rosenberg… kind of.

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      • May 22, 2014 at 7:32 pm
      kylez
      Participant

        Er… somehow posted this anonymously. Not anonymous… from me.

          • May 22, 2014 at 8:10 pm
          tschmith
          Participant

            I'm in a clincial trial at NIH called MAGE TCR.  My tumors express MAGE.  It's been close to two months since my engineered T-cells were infused back into me.  I believe this is one of the trials that Dr. Rosenberg is talking about. He introduced himself to me at the beginning of the trial during morning rounds.  So far I feel very very fatigued.  I'm a little better than I was when I came home from the hospital, but it's been slow going. My first scans were a month out and showed basically no change. My next scans will be on June 4th.

            • May 23, 2014 at 7:37 pm
            kylez
            Participant

              Hi tschmith,

              So you've met him for real. 

              I can only imagine the intensity of the IL2 on top of chemo ablation. I hope you have continuing good results on your second scan' and more relief from the fatigue. No change seems like a good place to start. 

              Do you have a sense of others' responses on the trial, or how many participants there are so far?

              • May 23, 2014 at 7:37 pm
              kylez
              Participant

                Hi tschmith,

                So you've met him for real. 

                I can only imagine the intensity of the IL2 on top of chemo ablation. I hope you have continuing good results on your second scan' and more relief from the fatigue. No change seems like a good place to start. 

                Do you have a sense of others' responses on the trial, or how many participants there are so far?

                • May 23, 2014 at 7:37 pm
                kylez
                Participant

                  Hi tschmith,

                  So you've met him for real. 

                  I can only imagine the intensity of the IL2 on top of chemo ablation. I hope you have continuing good results on your second scan' and more relief from the fatigue. No change seems like a good place to start. 

                  Do you have a sense of others' responses on the trial, or how many participants there are so far?

                  • May 22, 2014 at 8:10 pm
                  tschmith
                  Participant

                    I'm in a clincial trial at NIH called MAGE TCR.  My tumors express MAGE.  It's been close to two months since my engineered T-cells were infused back into me.  I believe this is one of the trials that Dr. Rosenberg is talking about. He introduced himself to me at the beginning of the trial during morning rounds.  So far I feel very very fatigued.  I'm a little better than I was when I came home from the hospital, but it's been slow going. My first scans were a month out and showed basically no change. My next scans will be on June 4th.

                    • May 22, 2014 at 8:10 pm
                    tschmith
                    Participant

                      I'm in a clincial trial at NIH called MAGE TCR.  My tumors express MAGE.  It's been close to two months since my engineered T-cells were infused back into me.  I believe this is one of the trials that Dr. Rosenberg is talking about. He introduced himself to me at the beginning of the trial during morning rounds.  So far I feel very very fatigued.  I'm a little better than I was when I came home from the hospital, but it's been slow going. My first scans were a month out and showed basically no change. My next scans will be on June 4th.

                    • May 22, 2014 at 7:32 pm
                    kylez
                    Participant

                      Er… somehow posted this anonymously. Not anonymous… from me.

                      • May 22, 2014 at 7:32 pm
                      kylez
                      Participant

                        Er… somehow posted this anonymously. Not anonymous… from me.

                        • May 22, 2014 at 11:18 pm
                        BrianP
                        Participant

                          Thanks Kyle.  It's interesting to hear a guy that's been battling this disease for decades say he feels like he's just getting started due to this latest break through.  Definitely is an optimistic sign.

                          Terrie, Good to hear from you.  Hope your fatigue decreases with time.  Stable sounds pretty good for now.  Hopefully your immune system will ramp it up some more for you and start pushing the melanoma into the retreat mode.

                          Brian

                            • May 22, 2014 at 11:26 pm
                            tschmith
                            Participant

                              Thank you, Brian.  I hope all the above happens too…!  Hope you are doing well.  

                               

                              • May 22, 2014 at 11:26 pm
                              tschmith
                              Participant

                                Thank you, Brian.  I hope all the above happens too…!  Hope you are doing well.  

                                 

                                • May 22, 2014 at 11:26 pm
                                tschmith
                                Participant

                                  Thank you, Brian.  I hope all the above happens too…!  Hope you are doing well.  

                                   

                                • May 22, 2014 at 11:18 pm
                                BrianP
                                Participant

                                  Thanks Kyle.  It's interesting to hear a guy that's been battling this disease for decades say he feels like he's just getting started due to this latest break through.  Definitely is an optimistic sign.

                                  Terrie, Good to hear from you.  Hope your fatigue decreases with time.  Stable sounds pretty good for now.  Hopefully your immune system will ramp it up some more for you and start pushing the melanoma into the retreat mode.

                                  Brian

                                  • May 22, 2014 at 11:18 pm
                                  BrianP
                                  Participant

                                    Thanks Kyle.  It's interesting to hear a guy that's been battling this disease for decades say he feels like he's just getting started due to this latest break through.  Definitely is an optimistic sign.

                                    Terrie, Good to hear from you.  Hope your fatigue decreases with time.  Stable sounds pretty good for now.  Hopefully your immune system will ramp it up some more for you and start pushing the melanoma into the retreat mode.

                                    Brian

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