The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.
Yesreesay I finished my fourth combo dose. I made it. I don’t have any ongoing side effects (knock on wood). After the second dose I was hospitalized with a very bad headache and very high fever (104, regularly reading 107 is was crazy). I was there for about 5 days. We finally figured out the cycle and 1,000 mg of Tylenol round the clock allowed me to be released. Three days later I stopped and was fine. I had a lot of tests of course and most tumors were stable but my brain met was enlarged. I had a third craniotomy which resulted in even more nerve damage to my face and some hearing loss, maybe temporary. And within two weeks had another combo immunotherapy infusion. Two weeks later radiation. One week later the last dose.
I had vision loss my first crainiotomy and then developed glaucoma from steroid overdose. The vision loss resolved and 2 years later the glaucoma has too. Yeah.
Next month I’ll have a PET scan and switch to a single dose. Hopefully I’ll see some progress on the scans. Hopefully I can get the hearing issue worked out.
wow …just wow…fellow patients like what you have been through keep me believing that there is a plan to help us…hoping you get the hearing back on track and your eyesight stays stable and well that you an keep your positive attitude…thanks as I’m up and down like a toilet seat with believing and at times paralyzed with fear..your story and others on here remind me to keep going
Ditto to what DoubleTT said, WOW. I remember saying once that you were one tough cooking, but that is an understatement Judi. You are amazing and wish you didn’t have to go through this at all. Many hugs, will be praying/thinking for scans that show forward progress in your treatment.
You did it!!!! Way to rock it out, Judi!!!! So glad that part is done and hope things start looking up for you in 2020!!! I think it is your turn!!!! celeste
Viewing 2 reply threads
You must be logged in to reply to this topic.
About the MRF Patient Forum
The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.
The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.