Lymph node radiation
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Lymph node radiation

› Forums › General Melanoma Community › Lymph node radiation

  • Post
    • February 10, 2017 at 12:33 am
    rabbits68
    Participant

    A few weeks ago I started with groin and abdominal pain, this is after 8 treatments of Keytruda.  Scan showed existing tumors stable but new involvement with 3 Lymph nodes.  One is quite large and is supposedly the source of my pain.  My doctor does not consider Keytruda a failure at this point so we are continuing with infusions. I just finished 3 weeks radiation on the nodes and am still not getting the  relief I expected .  Am I expecting too much too soon?  Does anyone have personal experience to share?  Thanks Lisa

Viewing 5 reply threads
  • Replies
      • February 10, 2017 at 10:34 am
      debwray
      Participant

      Hi Lisa,

      No personal experience to report- except that my largish lymph nodes in groin were not painful prior to surgery. However, I have read reports where nodes/ tumours are painful as they are regressing and are necrotic or dying.. Think radiation to bones is different re pain relief and the radiation and keytruda may work together to get your immune system to attack then clean up the area and it becomes sore and painful during the process. Probably worth reporting continued pain to docs even if only to get help with better pain relief ?

      Best wishes

      Deb

        • February 11, 2017 at 3:53 pm
        rabbits68
        Participant

        Deb, I hope my pain is a good sign that the tumor is responding.  My femur tumor responded quickly, Lymph nodes seem more stubborn.  I see the doctor next week and it's time to talk pain management until keytruda or radiation does its job.  Thanks

        • February 11, 2017 at 3:53 pm
        rabbits68
        Participant

        Deb, I hope my pain is a good sign that the tumor is responding.  My femur tumor responded quickly, Lymph nodes seem more stubborn.  I see the doctor next week and it's time to talk pain management until keytruda or radiation does its job.  Thanks

        • February 11, 2017 at 3:53 pm
        rabbits68
        Participant

        Deb, I hope my pain is a good sign that the tumor is responding.  My femur tumor responded quickly, Lymph nodes seem more stubborn.  I see the doctor next week and it's time to talk pain management until keytruda or radiation does its job.  Thanks

        • February 11, 2017 at 3:53 pm
        rabbits68
        Participant

        Deb, I hope my pain is a good sign that the tumor is responding.  My femur tumor responded quickly, Lymph nodes seem more stubborn.  I see the doctor next week and it's time to talk pain management until keytruda or radiation does its job.  Thanks

        • February 11, 2017 at 3:53 pm
        rabbits68
        Participant

        Deb, I hope my pain is a good sign that the tumor is responding.  My femur tumor responded quickly, Lymph nodes seem more stubborn.  I see the doctor next week and it's time to talk pain management until keytruda or radiation does its job.  Thanks

        • February 11, 2017 at 3:53 pm
        rabbits68
        Participant

        Deb, I hope my pain is a good sign that the tumor is responding.  My femur tumor responded quickly, Lymph nodes seem more stubborn.  I see the doctor next week and it's time to talk pain management until keytruda or radiation does its job.  Thanks

      • February 10, 2017 at 10:34 am
      debwray
      Participant

      Hi Lisa,

      No personal experience to report- except that my largish lymph nodes in groin were not painful prior to surgery. However, I have read reports where nodes/ tumours are painful as they are regressing and are necrotic or dying.. Think radiation to bones is different re pain relief and the radiation and keytruda may work together to get your immune system to attack then clean up the area and it becomes sore and painful during the process. Probably worth reporting continued pain to docs even if only to get help with better pain relief ?

      Best wishes

      Deb

      • February 10, 2017 at 10:34 am
      debwray
      Participant

      Hi Lisa,

      No personal experience to report- except that my largish lymph nodes in groin were not painful prior to surgery. However, I have read reports where nodes/ tumours are painful as they are regressing and are necrotic or dying.. Think radiation to bones is different re pain relief and the radiation and keytruda may work together to get your immune system to attack then clean up the area and it becomes sore and painful during the process. Probably worth reporting continued pain to docs even if only to get help with better pain relief ?

      Best wishes

      Deb

      • February 10, 2017 at 4:41 pm
      Bubbles
      Participant

      Sorry you are dealing with all this, Lisa.  But there is very good evidence that radiation COMBINED with immunotherapy does a much better job dealing with melanoma than either alone!

      I posted this…with several links within: http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/10/one-more-timebetter-responses-when.html

      We have even more data proving the case for ipi and radiation.  I don't think that is because ipi is inherently better than anti-PD1 in this combination….but because we've been using ipi longer and therefore have more data.  So…here is this: http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/12/andagainipi-better-with-radiation.html

      Hopefully your pain will improve very soon, but I would certainly speak with my doc about what you're experiencing, their idea on the source, and pain control options.

      I wish you well.  Celeste

        • February 11, 2017 at 3:48 pm
        rabbits68
        Participant

        Thank you for the resources.   I will see my doctor next week and if I don't ask the right questions I don't get answers.  

         

        • February 11, 2017 at 3:48 pm
        rabbits68
        Participant

        Thank you for the resources.   I will see my doctor next week and if I don't ask the right questions I don't get answers.  

         

        • February 11, 2017 at 3:48 pm
        rabbits68
        Participant

        Thank you for the resources.   I will see my doctor next week and if I don't ask the right questions I don't get answers.  

         

      • February 10, 2017 at 4:41 pm
      Bubbles
      Participant

      Sorry you are dealing with all this, Lisa.  But there is very good evidence that radiation COMBINED with immunotherapy does a much better job dealing with melanoma than either alone!

      I posted this…with several links within: http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/10/one-more-timebetter-responses-when.html

      We have even more data proving the case for ipi and radiation.  I don't think that is because ipi is inherently better than anti-PD1 in this combination….but because we've been using ipi longer and therefore have more data.  So…here is this: http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/12/andagainipi-better-with-radiation.html

      Hopefully your pain will improve very soon, but I would certainly speak with my doc about what you're experiencing, their idea on the source, and pain control options.

      I wish you well.  Celeste

      • February 10, 2017 at 4:41 pm
      Bubbles
      Participant

      Sorry you are dealing with all this, Lisa.  But there is very good evidence that radiation COMBINED with immunotherapy does a much better job dealing with melanoma than either alone!

      I posted this…with several links within: http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/10/one-more-timebetter-responses-when.html

      We have even more data proving the case for ipi and radiation.  I don't think that is because ipi is inherently better than anti-PD1 in this combination….but because we've been using ipi longer and therefore have more data.  So…here is this: http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2016/12/andagainipi-better-with-radiation.html

      Hopefully your pain will improve very soon, but I would certainly speak with my doc about what you're experiencing, their idea on the source, and pain control options.

      I wish you well.  Celeste

Viewing 5 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.