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Lung nodules
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Lung nodules

› Forums › General Melanoma Community › Lung nodules

  • Post
    • September 19, 2016 at 5:42 pm
    Nanners10
    Participant

      Hi all,

      I haven't posted in a while (but I read and follow daily) but am here again seeking thoughts, comments and similar stories.

      Brief history:

      WLE 2002, progression to groin lymph nodes 2014. Started (Apr 2014) and completed ipi vs interferon trial Apr 2015 (including four maintenance doses), local progression (groin lymph  node) again in Nov 2015. Currently on interferon (no judgement please).

      There have been two nodules in my lungs since the first CT scan I had when I recurred in 2014. These nodules started at 7 and 8 mm repectively.  One of them grew to 1.2 cm in Dec 2014. Went in for biopsy to find out that it had shrunk down to its previous size so biopsy was cancelled. Nodules remain relatively stable in size until August 2016. Only one increased in size again (same one) but to approx. 1.4. MRI done the following week and size is measured at 1.2 cm. My doc is now ordering a pet scan since he feels the position of these nodules and their size make them difficult to biopsy. I did have a pet scan in Feb 2016 that noted the nodule at 9mm but not increased FDG uptake. 

      Onc says that the radiologist feels they are growing and maybe they had reacted to the ipi when I was first given it but now they are getting bigger (which I don't believe is necessarily true in general but true for the most recent scan). Onc says if pet scan is negative he will have to consult with a lung specialist to see about figuring out what they are and/or having them removed.

      Has anyone experienced anything similar or have any thoughts on this? Another thing to add into the mix is that whenever my CT scan is around my menstrual cycle these nodules seem to be affected, crazy hormonal changes maybe?

      Thanks in advance for your thoughts.

      Nancy

    Viewing 2 reply threads
    • Replies
        • September 19, 2016 at 6:15 pm
        Julie in SoCal
        Participant

          Hi Nancy,

          Over the past 3 years I've had 3 lung nodules show up on PET/CT scans.  They're small (2 around 3mm and the biggest is 1.9c m).  Until recently these guys didn't light up on the PET scan (no increased FDG uptake).   So based on no increased FDG uptake on PET scan my doc recommended carefully watching them  as there are all kinds of reasons (many benign) that we may have lung nodules.  Until they lit up a PET scan, my doc wasn't particularly worried about them.

          I'm not sure why they would change.  Crazy hormones maybe.  Pseudoprogression?

          Trust you'll find an answer you're comfortable with,

          Wishing you peace!

          Julie

           

           

            • September 19, 2016 at 6:22 pm
            Nanners10
            Participant
              Thanks Julie,

              It’s always one thing or another. I agree with close follow up to catch it sooner rather than later but given our bodies are in constant flux it’s hard to know when and when not to worry. I dream of a day when I walk in and onc says scan was fine!

              • September 19, 2016 at 6:22 pm
              Nanners10
              Participant
                Thanks Julie,

                It’s always one thing or another. I agree with close follow up to catch it sooner rather than later but given our bodies are in constant flux it’s hard to know when and when not to worry. I dream of a day when I walk in and onc says scan was fine!

                • September 19, 2016 at 6:22 pm
                Nanners10
                Participant
                  Thanks Julie,

                  It’s always one thing or another. I agree with close follow up to catch it sooner rather than later but given our bodies are in constant flux it’s hard to know when and when not to worry. I dream of a day when I walk in and onc says scan was fine!

                • September 19, 2016 at 6:15 pm
                Julie in SoCal
                Participant

                  Hi Nancy,

                  Over the past 3 years I've had 3 lung nodules show up on PET/CT scans.  They're small (2 around 3mm and the biggest is 1.9c m).  Until recently these guys didn't light up on the PET scan (no increased FDG uptake).   So based on no increased FDG uptake on PET scan my doc recommended carefully watching them  as there are all kinds of reasons (many benign) that we may have lung nodules.  Until they lit up a PET scan, my doc wasn't particularly worried about them.

                  I'm not sure why they would change.  Crazy hormones maybe.  Pseudoprogression?

                  Trust you'll find an answer you're comfortable with,

                  Wishing you peace!

                  Julie

                   

                   

                  • September 19, 2016 at 6:15 pm
                  Julie in SoCal
                  Participant

                    Hi Nancy,

                    Over the past 3 years I've had 3 lung nodules show up on PET/CT scans.  They're small (2 around 3mm and the biggest is 1.9c m).  Until recently these guys didn't light up on the PET scan (no increased FDG uptake).   So based on no increased FDG uptake on PET scan my doc recommended carefully watching them  as there are all kinds of reasons (many benign) that we may have lung nodules.  Until they lit up a PET scan, my doc wasn't particularly worried about them.

                    I'm not sure why they would change.  Crazy hormones maybe.  Pseudoprogression?

                    Trust you'll find an answer you're comfortable with,

                    Wishing you peace!

                    Julie

                     

                     

                Viewing 2 reply threads
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