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Looks like we’ll have to wait and see
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Looks like we’ll have to wait and see

› Forums › General Melanoma Community › Looks like we’ll have to wait and see

  • Post
    • November 23, 2011 at 11:04 pm
    bradcope1
    Participant

      My daughter just got word today that she missed out on the ipi arm of the trial. The good news was that the all the scans and tests were clear, the bad news was that they want her to start interferon Monday morning. That's not going to happen. Only 10 days left to find a trial. The process stinks.

      Watching and waiting.

      My daughter just got word today that she missed out on the ipi arm of the trial. The good news was that the all the scans and tests were clear, the bad news was that they want her to start interferon Monday morning. That's not going to happen. Only 10 days left to find a trial. The process stinks.

      Watching and waiting.

    Viewing 5 reply threads
    • Replies
        • November 24, 2011 at 4:15 am
        Becky
        Participant
          Hi Brad
          My son is around the same age as your daughter I believe. Interferon was all that was offered and that is what he did. It was not an easy year but he managed to go to college full time and graduate. That being said I understand why you decided against it.
          Hang in there! I know what you are going through

          Becky

          • November 24, 2011 at 4:15 am
          Becky
          Participant
            Hi Brad
            My son is around the same age as your daughter I believe. Interferon was all that was offered and that is what he did. It was not an easy year but he managed to go to college full time and graduate. That being said I understand why you decided against it.
            Hang in there! I know what you are going through

            Becky

            • November 24, 2011 at 4:15 am
            Becky
            Participant
              Hi Brad
              My son is around the same age as your daughter I believe. Interferon was all that was offered and that is what he did. It was not an easy year but he managed to go to college full time and graduate. That being said I understand why you decided against it.
              Hang in there! I know what you are going through

              Becky

              • November 25, 2011 at 10:07 am
              LynnLuc
              Participant
                  • November 25, 2011 at 1:48 pm
                  bradcope1
                  Participant

                    Thanks you. We got our second opinion at Moffitt, and they agreed that the Ipi/interferon trial was our best course of action. From reading this forum, we had a feeling the real odds of getting ipi in this trial were less than 50-50, knowing that a lot of people entering this trial would bail if they got the interferon arm.

                    • November 26, 2011 at 11:47 pm
                    LynnLuc
                    Participant

                      Can she get into the anti pd 1 trial ? Moffitt has a few. I am in one. I was made surgically NED in March 26, 2010. They are hoping Anti PD 1 may do more than IPI may. Its all new frontier…

                      • November 28, 2011 at 5:44 pm
                      bradcope1
                      Participant

                        Thanks for the input,

                        Looks like she needs to be Stage 3b unresected to get into the anti PD 1 study. Wish we could try it, because it does look promising. Our oncologist says we are out of options for now although we keep looking. Hoping that that will change in the near future, without disease progression, of course, to get to do it.

                        • November 28, 2011 at 5:44 pm
                        bradcope1
                        Participant

                          Thanks for the input,

                          Looks like she needs to be Stage 3b unresected to get into the anti PD 1 study. Wish we could try it, because it does look promising. Our oncologist says we are out of options for now although we keep looking. Hoping that that will change in the near future, without disease progression, of course, to get to do it.

                          • November 28, 2011 at 5:44 pm
                          bradcope1
                          Participant

                            Thanks for the input,

                            Looks like she needs to be Stage 3b unresected to get into the anti PD 1 study. Wish we could try it, because it does look promising. Our oncologist says we are out of options for now although we keep looking. Hoping that that will change in the near future, without disease progression, of course, to get to do it.

                            • November 26, 2011 at 11:47 pm
                            LynnLuc
                            Participant

                              Can she get into the anti pd 1 trial ? Moffitt has a few. I am in one. I was made surgically NED in March 26, 2010. They are hoping Anti PD 1 may do more than IPI may. Its all new frontier…

                              • November 26, 2011 at 11:47 pm
                              LynnLuc
                              Participant

                                Can she get into the anti pd 1 trial ? Moffitt has a few. I am in one. I was made surgically NED in March 26, 2010. They are hoping Anti PD 1 may do more than IPI may. Its all new frontier…

                                • November 25, 2011 at 1:48 pm
                                bradcope1
                                Participant

                                  Thanks you. We got our second opinion at Moffitt, and they agreed that the Ipi/interferon trial was our best course of action. From reading this forum, we had a feeling the real odds of getting ipi in this trial were less than 50-50, knowing that a lot of people entering this trial would bail if they got the interferon arm.

                                  • November 25, 2011 at 1:48 pm
                                  bradcope1
                                  Participant

                                    Thanks you. We got our second opinion at Moffitt, and they agreed that the Ipi/interferon trial was our best course of action. From reading this forum, we had a feeling the real odds of getting ipi in this trial were less than 50-50, knowing that a lot of people entering this trial would bail if they got the interferon arm.

                                  • November 25, 2011 at 10:07 am
                                  LynnLuc
                                  Participant
                                    • November 25, 2011 at 10:07 am
                                    LynnLuc
                                    Participant
                                  Viewing 5 reply threads
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