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  • Post
    • January 10, 2012 at 2:06 am
    Ginseng
    Participant

      Hi all,

      Six years ago  I had a mole in my right thigh removed along with a sentinal node biopsy. The biopsy indicated micro metastisis to the sentinal node. I opted to have my superficial nodes removed. None had disease and the rest of my body was clean as well.

      I underwent roughly two years of interferon treatment. I remained clean until now.

      Hi all,

      Six years ago  I had a mole in my right thigh removed along with a sentinal node biopsy. The biopsy indicated micro metastisis to the sentinal node. I opted to have my superficial nodes removed. None had disease and the rest of my body was clean as well.

      I underwent roughly two years of interferon treatment. I remained clean until now.

      Now I am scheduled to have a two by one centimeter subcutaneous nodule in that thigh (appr. two inches to the right of the original mole) resected in two days. My Pet/CT indicated no other melanoma spread beyond the nodule.

      I am looking for advice on post-op treatment because I know I need it to deal with any possible residual melanoma cells. I have read many comments in the forum from people who clearly know much more about the immunology and science of the options than I do. I am happy with my oncologist but I respect the experience and knowledge of those commenting here. I would appreciate any and all help!

      Thanks, Sue

       

    Viewing 5 reply threads
    • Replies
        • January 11, 2012 at 1:45 am
        FormerCaregiver
        Participant

          Sue, I don't think that you need to be overly concerned about the situation at the moment. As scans were clear, I feel that you just need to remain vigilant and continues to have any problems dealt with promptly. As the primary wasn't overly deep, there is a good chance that melanoma cells remain confined to the lymph system and haven't entered the bloodstream.

          Hope this helps

          Frank from Australia

          • January 11, 2012 at 1:45 am
          FormerCaregiver
          Participant

            Sue, I don't think that you need to be overly concerned about the situation at the moment. As scans were clear, I feel that you just need to remain vigilant and continues to have any problems dealt with promptly. As the primary wasn't overly deep, there is a good chance that melanoma cells remain confined to the lymph system and haven't entered the bloodstream.

            Hope this helps

            Frank from Australia

            • January 11, 2012 at 1:45 am
            FormerCaregiver
            Participant

              Sue, I don't think that you need to be overly concerned about the situation at the moment. As scans were clear, I feel that you just need to remain vigilant and continues to have any problems dealt with promptly. As the primary wasn't overly deep, there is a good chance that melanoma cells remain confined to the lymph system and haven't entered the bloodstream.

              Hope this helps

              Frank from Australia

              • January 11, 2012 at 3:28 pm
              Phil S
              Participant
                Sue, once you have that nodule removed you will be NED, so it’s tough to find treatment as most trials need measurable disease. Find out your HLA A2 blood type and I think Dr Weber at Moffit in Florida is still doing a vaccine trial for NED patients but you need to be HLA A2 positive. Good luck! Valerie (Phil’s wife)
                • January 11, 2012 at 3:28 pm
                Phil S
                Participant
                  Sue, once you have that nodule removed you will be NED, so it’s tough to find treatment as most trials need measurable disease. Find out your HLA A2 blood type and I think Dr Weber at Moffit in Florida is still doing a vaccine trial for NED patients but you need to be HLA A2 positive. Good luck! Valerie (Phil’s wife)
                  • January 11, 2012 at 3:28 pm
                  Phil S
                  Participant
                    Sue, once you have that nodule removed you will be NED, so it’s tough to find treatment as most trials need measurable disease. Find out your HLA A2 blood type and I think Dr Weber at Moffit in Florida is still doing a vaccine trial for NED patients but you need to be HLA A2 positive. Good luck! Valerie (Phil’s wife)
                Viewing 5 reply threads

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