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local recurrence, scalp

Forums General Melanoma Community local recurrence, scalp

  • Post
    walesgirl
    Participant

      Greetings comrades and Happy Valentine's Day!

      I will be meeting with a radiologist on Friday to discuss local treatment to an area on my scalp where 'my' primary and local recurrence were located…

      Greetings comrades and Happy Valentine's Day!

      I will be meeting with a radiologist on Friday to discuss local treatment to an area on my scalp where 'my' primary and local recurrence were located…

      anyone have any experience with scalp (as opposed to brain) radiation treatments? Could I lose ALL of my hair, or only that in the general area…I'm just not sure if what I read is applicable to radiiation to the skin, as opposed to deeper tissue…of course, I'll learn much from the physician, but just curious…thanks so much and enjoy this day!!! 

    Viewing 11 reply threads
    • Replies
        SoCalDave
        Participant

          In Austrailia they've got a clinical trial using DPCP for local recurrences. Lucky for me, my Doc attended a symposium there right at about the same time I started having re-occurences. I had recurring mels for almost a year (probably 25 cut out in total), but with the dpcp I've not had any for over 3 months now.

          Here is a link to the clinical trial:

          http://www.australiancancertrials.gov.au/search-clinical-trials/search-results/clinical-trials-details.aspx?TrialID=308033&ds=1

          It's not much fun having this stuff applied  – it's like you've been through a patch of poison oak or ivy, but it sure beats having the re-occurences.

          Mine is on my leg, so not sure if they could put this on your scalp.

          David

          SoCalDave
          Participant

            In Austrailia they've got a clinical trial using DPCP for local recurrences. Lucky for me, my Doc attended a symposium there right at about the same time I started having re-occurences. I had recurring mels for almost a year (probably 25 cut out in total), but with the dpcp I've not had any for over 3 months now.

            Here is a link to the clinical trial:

            http://www.australiancancertrials.gov.au/search-clinical-trials/search-results/clinical-trials-details.aspx?TrialID=308033&ds=1

            It's not much fun having this stuff applied  – it's like you've been through a patch of poison oak or ivy, but it sure beats having the re-occurences.

            Mine is on my leg, so not sure if they could put this on your scalp.

            David

            SoCalDave
            Participant

              In Austrailia they've got a clinical trial using DPCP for local recurrences. Lucky for me, my Doc attended a symposium there right at about the same time I started having re-occurences. I had recurring mels for almost a year (probably 25 cut out in total), but with the dpcp I've not had any for over 3 months now.

              Here is a link to the clinical trial:

              http://www.australiancancertrials.gov.au/search-clinical-trials/search-results/clinical-trials-details.aspx?TrialID=308033&ds=1

              It's not much fun having this stuff applied  – it's like you've been through a patch of poison oak or ivy, but it sure beats having the re-occurences.

              Mine is on my leg, so not sure if they could put this on your scalp.

              David

              Sherron
              Participant

                Hi – sorry you have had a local recurrence….check you closest lymph node…My husband had scapl Mel…removed first tumor, did no treatment but alternative….2 years later, a local recurrence returned close to the originial tumor.  Finally had the 2nd tumor removed, but not before it went to the lymph nodes…He was about Quality Time, rather than Quanity Time.  He lived 4 years 3 months great…..then it spread like wildfire, he was gone within 3 months.  He never regretted his decisions.  Never did any doctor treatments, never missed a day of work until the end…so he did live it his way..So everyone has to make their own choice.  I would look at your closest lymph node at this point.  Wishing you the very best.

                 

                Take Care,

                 

                Sherron, wife to Jim FOREVER

                Sherron
                Participant

                  Hi – sorry you have had a local recurrence….check you closest lymph node…My husband had scapl Mel…removed first tumor, did no treatment but alternative….2 years later, a local recurrence returned close to the originial tumor.  Finally had the 2nd tumor removed, but not before it went to the lymph nodes…He was about Quality Time, rather than Quanity Time.  He lived 4 years 3 months great…..then it spread like wildfire, he was gone within 3 months.  He never regretted his decisions.  Never did any doctor treatments, never missed a day of work until the end…so he did live it his way..So everyone has to make their own choice.  I would look at your closest lymph node at this point.  Wishing you the very best.

                   

                  Take Care,

                   

                  Sherron, wife to Jim FOREVER

                  Sherron
                  Participant

                    Hi – sorry you have had a local recurrence….check you closest lymph node…My husband had scapl Mel…removed first tumor, did no treatment but alternative….2 years later, a local recurrence returned close to the originial tumor.  Finally had the 2nd tumor removed, but not before it went to the lymph nodes…He was about Quality Time, rather than Quanity Time.  He lived 4 years 3 months great…..then it spread like wildfire, he was gone within 3 months.  He never regretted his decisions.  Never did any doctor treatments, never missed a day of work until the end…so he did live it his way..So everyone has to make their own choice.  I would look at your closest lymph node at this point.  Wishing you the very best.

                     

                    Take Care,

                     

                    Sherron, wife to Jim FOREVER

                    Sherron
                    Participant

                      Hi – sorry you have had a local recurrence….check you closest lymph node…My husband had scapl Mel…removed first tumor, did no treatment but alternative….2 years later, a local recurrence returned close to the originial tumor.  Finally had the 2nd tumor removed, but not before it went to the lymph nodes…He was about Quality Time, rather than Quanity Time.  He lived 4 years 3 months great…..then it spread like wildfire, he was gone within 3 months.  He never regretted his decisions.  Never did any doctor treatments, never missed a day of work until the end…so he did live it his way..So everyone has to make their own choice.  I would look at your closest lymph node at this point.  Wishing you the very best.

                       

                      Take Care,

                       

                      Sherron, wife to Jim FOREVER

                      Sherron
                      Participant

                        Hi – sorry you have had a local recurrence….check you closest lymph node…My husband had scapl Mel…removed first tumor, did no treatment but alternative….2 years later, a local recurrence returned close to the originial tumor.  Finally had the 2nd tumor removed, but not before it went to the lymph nodes…He was about Quality Time, rather than Quanity Time.  He lived 4 years 3 months great…..then it spread like wildfire, he was gone within 3 months.  He never regretted his decisions.  Never did any doctor treatments, never missed a day of work until the end…so he did live it his way..So everyone has to make their own choice.  I would look at your closest lymph node at this point.  Wishing you the very best.

                         

                        Take Care,

                         

                        Sherron, wife to Jim FOREVER

                        Sherron
                        Participant

                          Hi – sorry you have had a local recurrence….check you closest lymph node…My husband had scapl Mel…removed first tumor, did no treatment but alternative….2 years later, a local recurrence returned close to the originial tumor.  Finally had the 2nd tumor removed, but not before it went to the lymph nodes…He was about Quality Time, rather than Quanity Time.  He lived 4 years 3 months great…..then it spread like wildfire, he was gone within 3 months.  He never regretted his decisions.  Never did any doctor treatments, never missed a day of work until the end…so he did live it his way..So everyone has to make their own choice.  I would look at your closest lymph node at this point.  Wishing you the very best.

                           

                          Take Care,

                           

                          Sherron, wife to Jim FOREVER

                          scots
                          Participant
                            I had a scalp melanoma stage II, depth 3.7. Primary removed , slnb negative. 5 treatments of radiation to the scalp not brain. I only lost hair in the general area. Some hair has come back. I year NED last October . I year out fom radiation.

                            Scot

                            scots
                            Participant
                              I had a scalp melanoma stage II, depth 3.7. Primary removed , slnb negative. 5 treatments of radiation to the scalp not brain. I only lost hair in the general area. Some hair has come back. I year NED last October . I year out fom radiation.

                              Scot

                              scots
                              Participant
                                I had a scalp melanoma stage II, depth 3.7. Primary removed , slnb negative. 5 treatments of radiation to the scalp not brain. I only lost hair in the general area. Some hair has come back. I year NED last October . I year out fom radiation.

                                Scot

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