Liver Enzymes going crazy again

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Liver Enzymes going crazy again

This topic has 2 replies, 2 voices, and was last updated 4 years, 11 months ago by guynamedbilly.

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- May 22, 2019 at 5:04 pm
- Quote
Happygal
Participant
So … my last IPI/NIVO infusion sent my liver enzymes flying, (kind of figured that was going to happen.) I am supposed to start my Nivo maintenance infusions again tomorrow. I speak to the Dr today to find out what he wants me to do.
One of the things I am noticing is my mind is having a few issues. I didn’t know where I was for a while, very confused and disoriented. Luckily this happened at home, as I work at a prison, (not a good place for this to happen)
It has happened a few times now, so the Dr is having me do a brain MRI tomorrow to make sure nothing has changed… hopefully it is just the liver acting up.
I am staying positive, really want to keep working.
Here we go, another hill to climb!!

Thank you for your support as always!

Tyais
diagnosed April 2017 stage 3c, NIVO 11 months, NED until Dec 2018, Stage 4 metastasized to liver and lungs, Jan 2019 started IPI/NIVO combo

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- - May 22, 2019 at 7:58 pm
  - Quote
  Happygal
  Participant
  Spoke with the Dr and he is taking me off of the infusions indefinitely. My liver is just not taking so well to it anymore. I had no reactions, or side effects the first round, but it also progressed while I was on the Nivo. The combo infusion definitely got it kicked in and started. But now it is affecting my liver so he decided because the Nivo really never did anything in the first place and is likely to do the same again…. no more.
  
  I will continue to do weekly blood work, see him again in 3 weeks and get another CT scan in 3-4 weeks. It feels weird to not be doing anything else, but I am still doing my 1-1 CBD/THC and dandelion root tincture to keep up what I can control.
  Hopefully brain is clear… (haha)
  Keep on thriving!!!!
  - May 23, 2019 at 1:46 am
    
    Quote
    guynamedbilly
    Participant
    
    I know exactly what you mean about not doing anything at the moment, as that’s what I was facing a month and a half ago. I finished all four IPI/Nivo doses and had some positive response and some progression also, but luckily my liver made it through fine. I had already finished a year of Nivo alone and had progressed on it. Fortunately for us, the effect of the immunotherapy is durable and will keep working for long after getting the infusion. I’ve since gone for a second opinion and am getting some more proactive treatment going.
    
    Good luck and prayers that your MRI is clear!

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