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Last Keytruda dose – and good / stable scans!

Forums General Melanoma Community Last Keytruda dose – and good / stable scans!

  • Post
    Erinmay22
    Participant

       

      Ok guys – a little bit of a long post!  I have been MIA a lot lately!  Busy work/travel schedule!  But an update!  I had my scans last week.  I have been on the Merck Keytruda trial since Jan 2013.   Prior to that I did 4 months of Zelboraf and 4 doses of Yervoy!
       
      My scans continue to show nothing new or growing!  So it was decided that last week was my last Keytruda dose! (I think that made #41?)   While they can't prove I had a total complete response (I have some unchanged slightly swollen lymph nodes that they think have dead disease but are too hard to biopsy and too small to check with a PET scan.  
       
      Those that know me, know I LOVE to take pictures!  I was testing out a new app and put this collage together to show how thru it all, I haven't let melanoma define me or slow me down!  Just wanted to share as a little hope and encouragement!  (Sorry for the long post…)
       

       

      ** what I shared on Instagram (https://instagram.com/p/242S8yxhKX/) – I always forget I downloaded the Instagram layout app!  A summary of the almost 5 year journey with melanoma!  And how it hasn't really stopped me!  Upper left hand picture is me in Australia in September 2010.  That was when the mole on my back started to grow like crazy!  It was there one night in the outback near Uluru that it started to bleed!  I had it removed immediately after returning to the states!  Other pictures are a sampling of trips since then with trips to Thailand (twice), Scotland/London for summer 2012 Olympics! Yosemite, Russia (winter 2014 Olympics) GrandCanyon Mexico!  
       
      Cheers,
      Erin
    Viewing 11 reply threads
    • Replies
        JC
        Participant

          Happy for you.  You're an inspiration, and a great example of grit.

            killmel
            Participant

              Hi Erin,

               

              Congrats. I am so  happy for you.

              Are you still on the trial in a "observation" status. I have read that Merck does allow patients to stay on the trial by following the patients scans every 12 weeks. If the patients does have a recurrence, then Merck would consider giving them the drug again at the same dosage & intervals.

              What did your doctor tell you about Merck "observation" status? What will your follow-up entail?

              Wishing you yrs of NED.

              A.

               

              vivian
              Participant

                Erin, this is wonderful news!  I think of you very often – so happy to hear that you are doing well.  Please keep up this good work and also keep in touch.  

                All good wishes,
                Lear

                vivian
                Participant

                  Erin, this is wonderful news!  I think of you very often – so happy to hear that you are doing well.  Please keep up this good work and also keep in touch.  

                  All good wishes,
                  Lear

                  vivian
                  Participant

                    Erin, this is wonderful news!  I think of you very often – so happy to hear that you are doing well.  Please keep up this good work and also keep in touch.  

                    All good wishes,
                    Lear

                    killmel
                    Participant

                      Hi Erin,

                       

                      Congrats. I am so  happy for you.

                      Are you still on the trial in a "observation" status. I have read that Merck does allow patients to stay on the trial by following the patients scans every 12 weeks. If the patients does have a recurrence, then Merck would consider giving them the drug again at the same dosage & intervals.

                      What did your doctor tell you about Merck "observation" status? What will your follow-up entail?

                      Wishing you yrs of NED.

                      A.

                       

                      killmel
                      Participant

                        Hi Erin,

                         

                        Congrats. I am so  happy for you.

                        Are you still on the trial in a "observation" status. I have read that Merck does allow patients to stay on the trial by following the patients scans every 12 weeks. If the patients does have a recurrence, then Merck would consider giving them the drug again at the same dosage & intervals.

                        What did your doctor tell you about Merck "observation" status? What will your follow-up entail?

                        Wishing you yrs of NED.

                        A.

                         

                      JC
                      Participant

                        Happy for you.  You're an inspiration, and a great example of grit.

                        JC
                        Participant

                          Happy for you.  You're an inspiration, and a great example of grit.

                          Bubbles
                          Participant

                            Wonderful, Erin!!  Enjoy!  – c

                            Bubbles
                            Participant

                              Wonderful, Erin!!  Enjoy!  – c

                              Bubbles
                              Participant

                                Wonderful, Erin!!  Enjoy!  – c

                                BrianP
                                Participant

                                  Congrats Erin!  Thanks for the update and encouragement for all of us.

                                  BrianP
                                  Participant

                                    Congrats Erin!  Thanks for the update and encouragement for all of us.

                                    BrianP
                                    Participant

                                      Congrats Erin!  Thanks for the update and encouragement for all of us.

                                  Viewing 11 reply threads
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