› Forums › General Melanoma Community › Last Keytruda dose – and good / stable scans!
- This topic has 18 replies, 5 voices, and was last updated 8 years, 11 months ago by BrianP.
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- May 20, 2015 at 4:08 am
Ok guys – a little bit of a long post! I have been MIA a lot lately! Busy work/travel schedule! But an update! I had my scans last week. I have been on the Merck Keytruda trial since Jan 2013. Prior to that I did 4 months of Zelboraf and 4 doses of Yervoy!My scans continue to show nothing new or growing! So it was decided that last week was my last Keytruda dose! (I think that made #41?) While they can't prove I had a total complete response (I have some unchanged slightly swollen lymph nodes that they think have dead disease but are too hard to biopsy and too small to check with a PET scan.Those that know me, know I LOVE to take pictures! I was testing out a new app and put this collage together to show how thru it all, I haven't let melanoma define me or slow me down! Just wanted to share as a little hope and encouragement! (Sorry for the long post…)** what I shared on Instagram (https://instagram.com/p/242S8yxhKX/) – I always forget I downloaded the Instagram layout app! A summary of the almost 5 year journey with melanoma! And how it hasn't really stopped me! Upper left hand picture is me in Australia in September 2010. That was when the mole on my back started to grow like crazy! It was there one night in the outback near Uluru that it started to bleed! I had it removed immediately after returning to the states! Other pictures are a sampling of trips since then with trips to Thailand (twice), Scotland/London for summer 2012 Olympics! Yosemite, Russia (winter 2014 Olympics) GrandCanyon Mexico!Cheers,Erin
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- May 20, 2015 at 12:12 pm
Happy for you. You're an inspiration, and a great example of grit.
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- May 20, 2015 at 2:29 pm
Hi Erin,
Congrats. I am so happy for you.
Are you still on the trial in a "observation" status. I have read that Merck does allow patients to stay on the trial by following the patients scans every 12 weeks. If the patients does have a recurrence, then Merck would consider giving them the drug again at the same dosage & intervals.
What did your doctor tell you about Merck "observation" status? What will your follow-up entail?
Wishing you yrs of NED.
A.
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- May 20, 2015 at 2:29 pm
Hi Erin,
Congrats. I am so happy for you.
Are you still on the trial in a "observation" status. I have read that Merck does allow patients to stay on the trial by following the patients scans every 12 weeks. If the patients does have a recurrence, then Merck would consider giving them the drug again at the same dosage & intervals.
What did your doctor tell you about Merck "observation" status? What will your follow-up entail?
Wishing you yrs of NED.
A.
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- May 20, 2015 at 2:29 pm
Hi Erin,
Congrats. I am so happy for you.
Are you still on the trial in a "observation" status. I have read that Merck does allow patients to stay on the trial by following the patients scans every 12 weeks. If the patients does have a recurrence, then Merck would consider giving them the drug again at the same dosage & intervals.
What did your doctor tell you about Merck "observation" status? What will your follow-up entail?
Wishing you yrs of NED.
A.
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- May 29, 2015 at 2:07 pm
Are you the Erin mentioned in this article?
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- May 29, 2015 at 2:07 pm
Are you the Erin mentioned in this article?
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- May 29, 2015 at 2:07 pm
Are you the Erin mentioned in this article?
Tagged: cutaneous melanoma
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