The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Last 11 Interferon Shots….

Forums General Melanoma Community Last 11 Interferon Shots….

  • Post
    jatbrown
    Participant

      Can anyone share these last weeks of shots with me?  How did you do? Side Effects? 

      Can anyone share these last weeks of shots with me?  How did you do? Side Effects? 

    Viewing 14 reply threads
    • Replies
        akls
        Participant

          They were some of my best days while doing that treatment.  I finally saw an end to it all.  On the flip side when I was officially done, it was some of my hardest days because I felt like I wasn't doing anything to actively fight anymore.  Once I realized that doing skin and node checks is doing something, I came around.  I've been done with interferon for almost 3 years, I can honestly say I have days I don't think about the C word at all!  

          Congrats on your awesome accomplishment!

          Amy S. in Michigan

            jatbrown
            Participant

              Amy~  I am feeling mixed emotions with ending the Interferon, I am ready to be done, but also feel that the Interferon is a safety net.  I am not 100% at all on it but have maneuvered my way around it, my so call "new normal".   Life after Interferon…..ready or not here I come!  Thanks …..

              jatbrown
              Participant

                Amy~  I am feeling mixed emotions with ending the Interferon, I am ready to be done, but also feel that the Interferon is a safety net.  I am not 100% at all on it but have maneuvered my way around it, my so call "new normal".   Life after Interferon…..ready or not here I come!  Thanks …..

                jatbrown
                Participant

                  Amy~  I am feeling mixed emotions with ending the Interferon, I am ready to be done, but also feel that the Interferon is a safety net.  I am not 100% at all on it but have maneuvered my way around it, my so call "new normal".   Life after Interferon…..ready or not here I come!  Thanks …..

                akls
                Participant

                  They were some of my best days while doing that treatment.  I finally saw an end to it all.  On the flip side when I was officially done, it was some of my hardest days because I felt like I wasn't doing anything to actively fight anymore.  Once I realized that doing skin and node checks is doing something, I came around.  I've been done with interferon for almost 3 years, I can honestly say I have days I don't think about the C word at all!  

                  Congrats on your awesome accomplishment!

                  Amy S. in Michigan

                  akls
                  Participant

                    They were some of my best days while doing that treatment.  I finally saw an end to it all.  On the flip side when I was officially done, it was some of my hardest days because I felt like I wasn't doing anything to actively fight anymore.  Once I realized that doing skin and node checks is doing something, I came around.  I've been done with interferon for almost 3 years, I can honestly say I have days I don't think about the C word at all!  

                    Congrats on your awesome accomplishment!

                    Amy S. in Michigan

                    triciad
                    Participant

                      I agree with Amy.  See the light and run with it!  Congratulations on finishing!

                      Tricia

                        jatbrown
                        Participant

                          Tricia~  Thank you for well wishes…..I so look forward to feeling bettter.

                          jatbrown
                          Participant

                            Tricia~  Thank you for well wishes…..I so look forward to feeling bettter.

                            jatbrown
                            Participant

                              Tricia~  Thank you for well wishes…..I so look forward to feeling bettter.

                            triciad
                            Participant

                              I agree with Amy.  See the light and run with it!  Congratulations on finishing!

                              Tricia

                              triciad
                              Participant

                                I agree with Amy.  See the light and run with it!  Congratulations on finishing!

                                Tricia

                                BrianP
                                Participant

                                  I'm not too far behind you.  My last shot will be on 12/12/12.  I can't wait to be done!  Throughout the year there have been plenty of days where I haven't felt too bad but all I have to do is walk up a flight of steps to remember I'm not 100 %.  I haven't had too many different side effects toward the end.  In fact some of my side effects have gone away.  The interferon reduced my blood pressure and I used to get terrible light headedness almost every time I stood up.  I also used to get weird pressurization feeling in my ears.  Almost like I was in an airplane and I needed to swallow to equalize my ears.  The one thing I've had the last couple months that has been driving me crazy is a cough.  September was brutal it was so bad.  I've talked to someone else who was on interferon and they had a cough almost the entire year.  Not sure if mine is interferon related or not.  I still have my achy days (mostly on the day after the shot) but usually an advil will clear it up.  Good luck with your last 11 shots. 

                                  Brian

                                  BrianP
                                  Participant

                                    I'm not too far behind you.  My last shot will be on 12/12/12.  I can't wait to be done!  Throughout the year there have been plenty of days where I haven't felt too bad but all I have to do is walk up a flight of steps to remember I'm not 100 %.  I haven't had too many different side effects toward the end.  In fact some of my side effects have gone away.  The interferon reduced my blood pressure and I used to get terrible light headedness almost every time I stood up.  I also used to get weird pressurization feeling in my ears.  Almost like I was in an airplane and I needed to swallow to equalize my ears.  The one thing I've had the last couple months that has been driving me crazy is a cough.  September was brutal it was so bad.  I've talked to someone else who was on interferon and they had a cough almost the entire year.  Not sure if mine is interferon related or not.  I still have my achy days (mostly on the day after the shot) but usually an advil will clear it up.  Good luck with your last 11 shots. 

                                    Brian

                                      jatbrown
                                      Participant

                                        Brian~  Wow! you are really not far behind..I too can't wait to done, but am having mixed emotions.  My "new normal" I have maneuvered my way around it.  I almost feel like interferon is a safety net.  My side effects seem to be stronger this last month.  My blood pressure with the IV drip the first month went sky high, I do not have high blood pressure so they put me on Blood Pressure meds for a while, maybe 3 mths or so.  My hair has fallen out but not all of it, I have lost 20lbs, but do eat.  Very dry eyes…and of course the chills,achy, no energy at all, just want to sleep.  I did get a cough back in April, so bad, it lasted over a month and they did put me on Zpack but that did not work.  I now still cough but only in the morning and I have never smoked and do not have allergies  Heres to better days…..you are almost there.  All the best!.

                                        jatbrown
                                        Participant

                                          Brian~  Wow! you are really not far behind..I too can't wait to done, but am having mixed emotions.  My "new normal" I have maneuvered my way around it.  I almost feel like interferon is a safety net.  My side effects seem to be stronger this last month.  My blood pressure with the IV drip the first month went sky high, I do not have high blood pressure so they put me on Blood Pressure meds for a while, maybe 3 mths or so.  My hair has fallen out but not all of it, I have lost 20lbs, but do eat.  Very dry eyes…and of course the chills,achy, no energy at all, just want to sleep.  I did get a cough back in April, so bad, it lasted over a month and they did put me on Zpack but that did not work.  I now still cough but only in the morning and I have never smoked and do not have allergies  Heres to better days…..you are almost there.  All the best!.

                                          BrianP
                                          Participant

                                            Jatbrown,

                                            Our symtons are very similar.  I had some weight loss also but I do feel like I eat quite a bit.  I started at about 175 and went down to about 140.  I'm now around 145.  I've been losing my hair for about 10 years now so I can't really blame that on the interferon.  I get the dry eyes also.  I remember early on I used to get terrible dry mouth at night but that hasn't been as bad lately.  I just had some lab work this week.  My liver function numbers were way high.  I'm going back in a couple weeks to reject it.  If it doesn't come back down I may stop a couple weeks early.  I hear what you are saing about coming off interferon.  I've heard others say the same thing on here.  I'll tell you what my mindset is and maybe it will help you out.  Even though I won't be taking the interferon anymore it doesn't mean I'm not actively fighting mel.  Every time a choke down a water instead of a sweet cold Coca Cola I am fighting.  Everytime I order a salad instead of a nice big juicy bacon cheese burger, I am fighting mel.  Every morning when I take my vitamin supplements I am fighting mel.  Everytime I go exercise I am fighting mel.  And most importantly everytime I pray for God's healing power I am fighting mel.  I look forward to posting NED anniversaries for many years just after you post your's.  Take care.

                                            Brian 

                                            BrianP
                                            Participant

                                              Jatbrown,

                                              Our symtons are very similar.  I had some weight loss also but I do feel like I eat quite a bit.  I started at about 175 and went down to about 140.  I'm now around 145.  I've been losing my hair for about 10 years now so I can't really blame that on the interferon.  I get the dry eyes also.  I remember early on I used to get terrible dry mouth at night but that hasn't been as bad lately.  I just had some lab work this week.  My liver function numbers were way high.  I'm going back in a couple weeks to reject it.  If it doesn't come back down I may stop a couple weeks early.  I hear what you are saing about coming off interferon.  I've heard others say the same thing on here.  I'll tell you what my mindset is and maybe it will help you out.  Even though I won't be taking the interferon anymore it doesn't mean I'm not actively fighting mel.  Every time a choke down a water instead of a sweet cold Coca Cola I am fighting.  Everytime I order a salad instead of a nice big juicy bacon cheese burger, I am fighting mel.  Every morning when I take my vitamin supplements I am fighting mel.  Everytime I go exercise I am fighting mel.  And most importantly everytime I pray for God's healing power I am fighting mel.  I look forward to posting NED anniversaries for many years just after you post your's.  Take care.

                                              Brian 

                                              BrianP
                                              Participant

                                                Jatbrown,

                                                Our symtons are very similar.  I had some weight loss also but I do feel like I eat quite a bit.  I started at about 175 and went down to about 140.  I'm now around 145.  I've been losing my hair for about 10 years now so I can't really blame that on the interferon.  I get the dry eyes also.  I remember early on I used to get terrible dry mouth at night but that hasn't been as bad lately.  I just had some lab work this week.  My liver function numbers were way high.  I'm going back in a couple weeks to reject it.  If it doesn't come back down I may stop a couple weeks early.  I hear what you are saing about coming off interferon.  I've heard others say the same thing on here.  I'll tell you what my mindset is and maybe it will help you out.  Even though I won't be taking the interferon anymore it doesn't mean I'm not actively fighting mel.  Every time a choke down a water instead of a sweet cold Coca Cola I am fighting.  Everytime I order a salad instead of a nice big juicy bacon cheese burger, I am fighting mel.  Every morning when I take my vitamin supplements I am fighting mel.  Everytime I go exercise I am fighting mel.  And most importantly everytime I pray for God's healing power I am fighting mel.  I look forward to posting NED anniversaries for many years just after you post your's.  Take care.

                                                Brian 

                                                jatbrown
                                                Participant

                                                  Brian~  Wow! you are really not far behind..I too can't wait to done, but am having mixed emotions.  My "new normal" I have maneuvered my way around it.  I almost feel like interferon is a safety net.  My side effects seem to be stronger this last month.  My blood pressure with the IV drip the first month went sky high, I do not have high blood pressure so they put me on Blood Pressure meds for a while, maybe 3 mths or so.  My hair has fallen out but not all of it, I have lost 20lbs, but do eat.  Very dry eyes…and of course the chills,achy, no energy at all, just want to sleep.  I did get a cough back in April, so bad, it lasted over a month and they did put me on Zpack but that did not work.  I now still cough but only in the morning and I have never smoked and do not have allergies  Heres to better days…..you are almost there.  All the best!.

                                                BrianP
                                                Participant

                                                  I'm not too far behind you.  My last shot will be on 12/12/12.  I can't wait to be done!  Throughout the year there have been plenty of days where I haven't felt too bad but all I have to do is walk up a flight of steps to remember I'm not 100 %.  I haven't had too many different side effects toward the end.  In fact some of my side effects have gone away.  The interferon reduced my blood pressure and I used to get terrible light headedness almost every time I stood up.  I also used to get weird pressurization feeling in my ears.  Almost like I was in an airplane and I needed to swallow to equalize my ears.  The one thing I've had the last couple months that has been driving me crazy is a cough.  September was brutal it was so bad.  I've talked to someone else who was on interferon and they had a cough almost the entire year.  Not sure if mine is interferon related or not.  I still have my achy days (mostly on the day after the shot) but usually an advil will clear it up.  Good luck with your last 11 shots. 

                                                  Brian

                                                  washoegal
                                                  Participant

                                                    Since no one has said it yet, congratulations on getting this far!  Stop worring about what's to come and start congratulating yourself on ajob well done!

                                                    mary

                                                    stage3

                                                    washoegal
                                                    Participant

                                                      Since no one has said it yet, congratulations on getting this far!  Stop worring about what's to come and start congratulating yourself on ajob well done!

                                                      mary

                                                      stage3

                                                        jatbrown
                                                        Participant

                                                          Mary~  Thanks so much for the encouragement….I have mixed feelings right at this point.  I am very anxious to start to feel normal but anxious about stopping, sort of a safety net this interferon.  They say "you are not going to believe how great your going to feel, once off of the shots"  

                                                          jatbrown
                                                          Participant

                                                            Mary~  Thanks so much for the encouragement….I have mixed feelings right at this point.  I am very anxious to start to feel normal but anxious about stopping, sort of a safety net this interferon.  They say "you are not going to believe how great your going to feel, once off of the shots"  

                                                            jatbrown
                                                            Participant

                                                              Mary~  Thanks so much for the encouragement….I have mixed feelings right at this point.  I am very anxious to start to feel normal but anxious about stopping, sort of a safety net this interferon.  They say "you are not going to believe how great your going to feel, once off of the shots"  

                                                            washoegal
                                                            Participant

                                                              Since no one has said it yet, congratulations on getting this far!  Stop worring about what's to come and start congratulating yourself on ajob well done!

                                                              mary

                                                              stage3

                                                              scots
                                                              Participant
                                                                Congrats on getting this far. I completed 11months of interferon almost a year ago. 11/10/2011. It was a great feeling to finally see the end. I think once you see the end the weekly shots do not weigh on you as much. Each day after the last shot I felt better and better. It took me about a month and half before I started feeling some what normal again. As others have posted I did have that feeling of what’s next? Currently I see my oncologist every 6 months, CT scans every 6 months and the derm. every 4 months. 2 years NED.

                                                                Scot

                                                                scots
                                                                Participant
                                                                  Congrats on getting this far. I completed 11months of interferon almost a year ago. 11/10/2011. It was a great feeling to finally see the end. I think once you see the end the weekly shots do not weigh on you as much. Each day after the last shot I felt better and better. It took me about a month and half before I started feeling some what normal again. As others have posted I did have that feeling of what’s next? Currently I see my oncologist every 6 months, CT scans every 6 months and the derm. every 4 months. 2 years NED.

                                                                  Scot

                                                                    clientcommon
                                                                    Participant

                                                                      Yes you are right but if any human goes through this incident then no any proper solution and then we say science should be do on such problems.

                                                                      http://www.promos10.com

                                                                      clientcommon
                                                                      Participant

                                                                        Yes you are right but if any human goes through this incident then no any proper solution and then we say science should be do on such problems.

                                                                        http://www.promos10.com

                                                                        clientcommon
                                                                        Participant

                                                                          Yes you are right but if any human goes through this incident then no any proper solution and then we say science should be do on such problems.

                                                                          http://www.promos10.com

                                                                        scots
                                                                        Participant
                                                                          Congrats on getting this far. I completed 11months of interferon almost a year ago. 11/10/2011. It was a great feeling to finally see the end. I think once you see the end the weekly shots do not weigh on you as much. Each day after the last shot I felt better and better. It took me about a month and half before I started feeling some what normal again. As others have posted I did have that feeling of what’s next? Currently I see my oncologist every 6 months, CT scans every 6 months and the derm. every 4 months. 2 years NED.

                                                                          Scot

                                                                      Viewing 14 reply threads
                                                                      • You must be logged in to reply to this topic.
                                                                      About the MRF Patient Forum

                                                                      The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                                      The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                                                      Popular Topics