keytruda and purpura
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

keytruda and purpura

› Forums › General Melanoma Community › keytruda and purpura

  • Post
    • January 8, 2017 at 3:36 am
    bayoulily
    Participant

    my husband has stage 4 maligant metatistic melanoma and dorment CLL ….

    2mm in lung…. MDA started him on keytruda…. 3 weeks later, he had mild itching, a rash then purpura (bleeding under skin due to lowered platlets)  … we were out of town and took him to the ER in Santa Fe… we had a wonderful oncologist who gave him IVIG which drastically improved his platlets and we returned home days later…. he warned us not to let the MDA oncologist take my husband off of keytruda as it will be his saving grace…. 

    went to MDA for a follow up and the oncologist decided to remove my husband from keytruda without an indepth discussion and said the only other options were chemo and radiation….

    we were devasted and are gonig to another large cancer center for a 2nd opinion…. 

    has anyone else had platlet issues while on keytruda? and if so, did you oncologist pull the treatment? 

    god bless all of you….cancer sucks but we will beat it!

Viewing 5 reply threads
  • Replies
      • January 8, 2017 at 4:33 am
      snow white
      Participant

      Wow!  They did this without ever discussing the pros and cons?  That seems strange.  Dad is on Opdivo and has low platelets, but the only thing that has been discussed is possibly postponing treatment until they come back up again.  Sounds like a second opinion is in order.

      Jen

      • January 8, 2017 at 4:33 am
      snow white
      Participant

      Wow!  They did this without ever discussing the pros and cons?  That seems strange.  Dad is on Opdivo and has low platelets, but the only thing that has been discussed is possibly postponing treatment until they come back up again.  Sounds like a second opinion is in order.

      Jen

      • January 8, 2017 at 4:33 am
      snow white
      Participant

      Wow!  They did this without ever discussing the pros and cons?  That seems strange.  Dad is on Opdivo and has low platelets, but the only thing that has been discussed is possibly postponing treatment until they come back up again.  Sounds like a second opinion is in order.

      Jen

      • January 8, 2017 at 12:33 pm
      maperny
      Participant

      This sounds very odd indeed.  So sorry for your frustration.  Which oncologist was this at MDA?  Very concerning.  He/she certainly should have taken the time to discuss this in depth and talk about clinical trials.  It is very rare for chemo to be offered except in very advanced cases to slow things down a bit when all else has failed.  This is all with only one 2mm met on lung?  BRAF positive or negative?

      • January 8, 2017 at 12:33 pm
      maperny
      Participant

      This sounds very odd indeed.  So sorry for your frustration.  Which oncologist was this at MDA?  Very concerning.  He/she certainly should have taken the time to discuss this in depth and talk about clinical trials.  It is very rare for chemo to be offered except in very advanced cases to slow things down a bit when all else has failed.  This is all with only one 2mm met on lung?  BRAF positive or negative?

      • January 8, 2017 at 12:33 pm
      maperny
      Participant

      This sounds very odd indeed.  So sorry for your frustration.  Which oncologist was this at MDA?  Very concerning.  He/she certainly should have taken the time to discuss this in depth and talk about clinical trials.  It is very rare for chemo to be offered except in very advanced cases to slow things down a bit when all else has failed.  This is all with only one 2mm met on lung?  BRAF positive or negative?

Viewing 5 reply threads

Tagged: 

  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.