He really had a fantastic report !!! Dr. B told Wayne "again" that he was one of the very few COMPLETE RESPONDER'S they had seen. His Billirubin was up a tad, but nothing to be alarmed about. They gave him Neurotin for the NERVE pain in his legs and feet that is keeping him up nights in crying pain. We expected that, and are hopeful it will fix that problem, and give him some much needed relief and sleep.
He really had a fantastic report !!! Dr. B told Wayne "again" that he was one of the very few COMPLETE RESPONDER'S they had seen. His Billirubin was up a tad, but nothing to be alarmed about. They gave him Neurotin for the NERVE pain in his legs and feet that is keeping him up nights in crying pain. We expected that, and are hopeful it will fix that problem, and give him some much needed relief and sleep.
Wayne's largest tumor was in his left lung. It was 2.6 cm. That tumor has not shown "any activity" on PET SCANS since June. It remains there, but has died down to 0,9, so the stinker is SHRINKING away and dying off. YES !!!
FUTURE TREAMENT PLAN: Dr. B says that if all PETS continue to come back NED like they have been, they will probably take him completey off ZEL at the one year mark, which would be JUNE, 2013. AND IF the little "STINKER TUMOR" has not totally died a miserable death at that point, they would probably consider removing it through surgery, just to know it's out of there, and has no chance of WAKING UP AGAIN ! WE BELIEVE that may be the SEED, or the first of the tumors to begin the mets. Our humble opinion. Largest one, toughest one to get rid of.
They were sorry to hear he had the heart cath and about the 95% blockage in the one artery, but the nurse use to be a Heart Cath Nurse and said it was great they got that fixed and he would have more energy now with blood/oxygen beginning to flow better thorugh his arteries, and we have already seen that begin to happen. If we can get this DREADFUL LEG/FOOT PAIN under control, I think we might actually really BREATHE HERE for a while ! TEARS………….sniff, sniff. Even good news is very emotional with this monster isn't it !!!
We are grateful to GOD for this awesome report !!!
WE HOPE THIS WILL "ENCOURAGE" someone – everyone – no matter what stage and circumstance you are in. Remember Wayne had mets to lungs, liver, sternum, spine, and bone, so this was so small fete. We know that every GOOD REPORT we read encourages us, and we hope this one will encourage you too ! (Sometimes it's hard to post GOOD REPORTS when so many are having such tough time, but hopefully it will be a post of encouragement ! )
OK, so I think I will go cry like a baby now…….let those PENT UP EMOTIONS OUT. He is over there finding himself a couch or recliner to take a nap in right now, and will fly back in tonight. We'll go back in Jan. for the next PET SCAN and VISIT ! We are so very GRATEFUL for M. D. ANDERSON CANCER CENTER and our beloved Dr. B.
GOD BLESS YOU ALL and KEEP THE FAITH ! MIRACLES HAPPEN EVERYDAY !!!
Nancy (devoted and excited wife of 3 X Warrior Wayne) <><
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