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JULIE IN SO California
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JULIE IN SO California

› Forums › General Melanoma Community › JULIE IN SO California

  • Post
    • December 29, 2016 at 3:44 pm
    killmel
    Participant

      Hi Julie,

      I was reading old posts and saw your last post in September and was wondering how you are doing? I hope that you are doing well and enjoying your Hanukkah. Please post to let us know your OK!

      Shalom

       

    Viewing 8 reply threads
    • Replies
        • December 29, 2016 at 8:57 pm
        jenny22
        Participant

          I too was reading through her recent upates and wondering how she is doing.

          Julie- please let us know how you are.

           

          Best,

          jenny

          • December 29, 2016 at 8:57 pm
          jenny22
          Participant

            I too was reading through her recent upates and wondering how she is doing.

            Julie- please let us know how you are.

             

            Best,

            jenny

            • December 29, 2016 at 8:57 pm
            jenny22
            Participant

              I too was reading through her recent upates and wondering how she is doing.

              Julie- please let us know how you are.

               

              Best,

              jenny

              • December 29, 2016 at 10:35 pm
              BrianP
              Participant

                Hope you are well Julie. Been thinking of you also. 

                • December 29, 2016 at 10:35 pm
                BrianP
                Participant

                  Hope you are well Julie. Been thinking of you also. 

                  • December 29, 2016 at 10:35 pm
                  BrianP
                  Participant

                    Hope you are well Julie. Been thinking of you also. 

                    • December 30, 2016 at 9:46 pm
                    Julie in SoCal
                    Participant

                      Hi Friends,

                      Thanks so much for asking!  I'm in a much better place than I was at in Sept/Oct!  That was bad funk time.

                      While testing for clinical trials I found out that I have (now had) hepatitis c. This was a shock- more like a gut kick. Of course excludes me from any clinical trial so my melanoma options were surgery, or watch and wait.

                      Since then I've taken the treatment for hep c.  It's a kick upside the head as the fatigue and muscle / bone/joint pain have been debilitating at times.  But it's working and this is temporary (this is my mantra when I feel crummy).  I should be back to my normal self when the treatment's over.  

                      Meanwhile on the melanoma front, I chose to watch and wait.  I have a very small tumor burden (yea!!).  One lunch met under 2 cm.  Also it's been slow, but smart- it's evaded all the smart drugs we've thrown at it.  So watch and wait was a real option. In early Dec I had scans and they show stable disease.  essentially no change. At the end of Jan I should be finished with the evil hep c meds and I'll make a decision whether to have surgery or try for a clinical trial.

                      To be honest, right now, if I had to make a decision, I'd probably pick surgery.  I'm not sure I want to keep feeling crummy.  And who knows what a clinical trial will do.  

                      So this is where I'm at.  I appreciate the community that this has become for me. Thanks for asking for an update!

                      May you all have a blessed (and NED!!) 2017!

                      Shalom,

                      Julie

                        • January 1, 2017 at 9:14 pm
                        Bubbles
                        Participant

                          Oh my goodness!  As if melanoma were not enough!  Sounds like you are hanging tough and plowing through your hep c treatment, though!  Hang in there!  You are right…it's not forever.  But, gracious!!!  Glad you are feeling pretty good about your melanoma options. Warm wishes for you and yours in the coming year!  celeste

                          • January 1, 2017 at 9:14 pm
                          Bubbles
                          Participant

                            Oh my goodness!  As if melanoma were not enough!  Sounds like you are hanging tough and plowing through your hep c treatment, though!  Hang in there!  You are right…it's not forever.  But, gracious!!!  Glad you are feeling pretty good about your melanoma options. Warm wishes for you and yours in the coming year!  celeste

                            • January 1, 2017 at 9:14 pm
                            Bubbles
                            Participant

                              Oh my goodness!  As if melanoma were not enough!  Sounds like you are hanging tough and plowing through your hep c treatment, though!  Hang in there!  You are right…it's not forever.  But, gracious!!!  Glad you are feeling pretty good about your melanoma options. Warm wishes for you and yours in the coming year!  celeste

                            • December 30, 2016 at 9:46 pm
                            Julie in SoCal
                            Participant

                              Hi Friends,

                              Thanks so much for asking!  I'm in a much better place than I was at in Sept/Oct!  That was bad funk time.

                              While testing for clinical trials I found out that I have (now had) hepatitis c. This was a shock- more like a gut kick. Of course excludes me from any clinical trial so my melanoma options were surgery, or watch and wait.

                              Since then I've taken the treatment for hep c.  It's a kick upside the head as the fatigue and muscle / bone/joint pain have been debilitating at times.  But it's working and this is temporary (this is my mantra when I feel crummy).  I should be back to my normal self when the treatment's over.  

                              Meanwhile on the melanoma front, I chose to watch and wait.  I have a very small tumor burden (yea!!).  One lunch met under 2 cm.  Also it's been slow, but smart- it's evaded all the smart drugs we've thrown at it.  So watch and wait was a real option. In early Dec I had scans and they show stable disease.  essentially no change. At the end of Jan I should be finished with the evil hep c meds and I'll make a decision whether to have surgery or try for a clinical trial.

                              To be honest, right now, if I had to make a decision, I'd probably pick surgery.  I'm not sure I want to keep feeling crummy.  And who knows what a clinical trial will do.  

                              So this is where I'm at.  I appreciate the community that this has become for me. Thanks for asking for an update!

                              May you all have a blessed (and NED!!) 2017!

                              Shalom,

                              Julie

                              • December 30, 2016 at 9:46 pm
                              Julie in SoCal
                              Participant

                                Hi Friends,

                                Thanks so much for asking!  I'm in a much better place than I was at in Sept/Oct!  That was bad funk time.

                                While testing for clinical trials I found out that I have (now had) hepatitis c. This was a shock- more like a gut kick. Of course excludes me from any clinical trial so my melanoma options were surgery, or watch and wait.

                                Since then I've taken the treatment for hep c.  It's a kick upside the head as the fatigue and muscle / bone/joint pain have been debilitating at times.  But it's working and this is temporary (this is my mantra when I feel crummy).  I should be back to my normal self when the treatment's over.  

                                Meanwhile on the melanoma front, I chose to watch and wait.  I have a very small tumor burden (yea!!).  One lunch met under 2 cm.  Also it's been slow, but smart- it's evaded all the smart drugs we've thrown at it.  So watch and wait was a real option. In early Dec I had scans and they show stable disease.  essentially no change. At the end of Jan I should be finished with the evil hep c meds and I'll make a decision whether to have surgery or try for a clinical trial.

                                To be honest, right now, if I had to make a decision, I'd probably pick surgery.  I'm not sure I want to keep feeling crummy.  And who knows what a clinical trial will do.  

                                So this is where I'm at.  I appreciate the community that this has become for me. Thanks for asking for an update!

                                May you all have a blessed (and NED!!) 2017!

                                Shalom,

                                Julie

                            Viewing 8 reply threads
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