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It’s been a while….
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It’s been a while….

› Forums › General Melanoma Community › It’s been a while….

  • Post
    • January 18, 2013 at 10:57 pm
    Kelli100299
    Participant

      It was a year this month that I was diagnosed…Clark Level 4, Breslow 1.2MM. I remember being scared, upset, confused and sick. There hasn't been a day since that I haven't thought about it or everyone on this board. I had a Pet Scan in October that came back clear, keeping my quarterly Dermatologist visits, so far so good…and saw my Surgeon yesterday and I am healing well. Just wanted to check in with my MPIP friends and let you know that whether you are recently diagnosed or been fighting it for years.

      It was a year this month that I was diagnosed…Clark Level 4, Breslow 1.2MM. I remember being scared, upset, confused and sick. There hasn't been a day since that I haven't thought about it or everyone on this board. I had a Pet Scan in October that came back clear, keeping my quarterly Dermatologist visits, so far so good…and saw my Surgeon yesterday and I am healing well. Just wanted to check in with my MPIP friends and let you know that whether you are recently diagnosed or been fighting it for years. Keep your head up, it does get better and you are always in 'someones' thoughts. Much love my MPIP friends….Kelli

    Viewing 5 reply threads
    • Replies
        • January 18, 2013 at 11:07 pm
        JC
        Participant

          you're not alone.   i'm a year and a half out and i still think about it every day too

           

          are PET scans common/routine for your stage??

            • January 19, 2013 at 1:58 pm
            Kelli100299
            Participant

              Hello….Not sure if PET scans are common, however, I am a big believer in you have to take your health into your own hands. I am not waiting around for some doctor to decide if I need an additional test or not. I don't ever want to be in a situation where something happens and I feel like there was more I could have done. As long as I am doing everything that I believe to be right, whatever happens – happens. I guess it gives me an additional comfort level in being proactive.

               

              Kelli

              • January 19, 2013 at 1:58 pm
              Kelli100299
              Participant

                Hello….Not sure if PET scans are common, however, I am a big believer in you have to take your health into your own hands. I am not waiting around for some doctor to decide if I need an additional test or not. I don't ever want to be in a situation where something happens and I feel like there was more I could have done. As long as I am doing everything that I believe to be right, whatever happens – happens. I guess it gives me an additional comfort level in being proactive.

                 

                Kelli

                • January 19, 2013 at 1:58 pm
                Kelli100299
                Participant

                  Hello….Not sure if PET scans are common, however, I am a big believer in you have to take your health into your own hands. I am not waiting around for some doctor to decide if I need an additional test or not. I don't ever want to be in a situation where something happens and I feel like there was more I could have done. As long as I am doing everything that I believe to be right, whatever happens – happens. I guess it gives me an additional comfort level in being proactive.

                   

                  Kelli

                • January 18, 2013 at 11:07 pm
                JC
                Participant

                  you're not alone.   i'm a year and a half out and i still think about it every day too

                   

                  are PET scans common/routine for your stage??

                  • January 18, 2013 at 11:07 pm
                  JC
                  Participant

                    you're not alone.   i'm a year and a half out and i still think about it every day too

                     

                    are PET scans common/routine for your stage??

                    • January 19, 2013 at 2:15 pm
                    JC
                    Participant

                      makes sense.

                       

                      i try to weigh the risk/benefit of scans at an earlier stage. . . .the risk of the radiation, false positive leading to other unnecessary tests, etc. . vs the benefit of it showing something before I'd have symptoms anyway

                        • January 20, 2013 at 2:24 am
                        Janner
                        Participant

                          Pretty rare for an insurance company to approve CT/PET scans for stage I unless you have symptoms.  So while the OP might have found ways to get scans, it is NOT the norm for stage I.

                          • January 20, 2013 at 2:24 am
                          Janner
                          Participant

                            Pretty rare for an insurance company to approve CT/PET scans for stage I unless you have symptoms.  So while the OP might have found ways to get scans, it is NOT the norm for stage I.

                            • January 20, 2013 at 2:24 am
                            Janner
                            Participant

                              Pretty rare for an insurance company to approve CT/PET scans for stage I unless you have symptoms.  So while the OP might have found ways to get scans, it is NOT the norm for stage I.

                            • January 19, 2013 at 2:15 pm
                            JC
                            Participant

                              makes sense.

                               

                              i try to weigh the risk/benefit of scans at an earlier stage. . . .the risk of the radiation, false positive leading to other unnecessary tests, etc. . vs the benefit of it showing something before I'd have symptoms anyway

                              • January 19, 2013 at 2:15 pm
                              JC
                              Participant

                                makes sense.

                                 

                                i try to weigh the risk/benefit of scans at an earlier stage. . . .the risk of the radiation, false positive leading to other unnecessary tests, etc. . vs the benefit of it showing something before I'd have symptoms anyway

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