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It is kind of hard for me to post and say that I

Forums General Melanoma Community It is kind of hard for me to post and say that I

  • Post
    jag
    Participant

    am going in for surgery on Tuesday for Craniotomy #6.  Sometimes I feel like it must be scary for new people to know that might be in their future, and so I hope this post doesn't end up causing someone to stop researching information regarding their particular situation and drive you away from the MPIP.

    am going in for surgery on Tuesday for Craniotomy #6.  Sometimes I feel like it must be scary for new people to know that might be in their future, and so I hope this post doesn't end up causing someone to stop researching information regarding their particular situation and drive you away from the MPIP.  There are plenty of people who have had 1 brain surgery and done very well,  In my case my brain is very radiation sensitive, and so it is either surgery or necrosis, luckily last time it was necrosis(from previous SRS)and I am hoping the same results come through this time.  It has been 2 years since I have had any evidence of disease, and it has been four since I was initially diagnosed with a brain tumor.   So, if you are a newbie-this isn't a common situation and this may not end up being your situation at all.  Things may well never comeback if you are stage II or III.  That has been the case with many people.  If they do, address one issue at a time, and go from there.  First I thought melanoma was a death sentence, then I thought stage IV was a death sentence, then brain metastases were a death sentence, and so far none of that has proven to be true.  Don't read into the statistics whatever you do.   New therapies are coming out faster than ever, and more and more trials are adding up to improved statistics overall.  I am going into surgery with a very optomistic attitude, saying my prayers and there really isn't much else I can do.  Sometimes life gets out of your hands, there are some things one can control and some that one cannot.  Either way, keep on planning for the future and enjoy yourself.  When I first got diagnosed, I used to search this site and see tons of people dying and it scared me so much that I avoided scans as much as possible (sometimes to my own detriment) so whatever you do, remember, scans are your friends.  Even if there is a bad result, the sooner you get working on it, the better your outcome will be.

    Best, 

    John

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  • Replies
      Love_Monkey
      Participant

      John, you are so sensitive and kind.  Thinking of you as you go in on Tuesday.

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      Love_Monkey
      Participant

      John, you are so sensitive and kind.  Thinking of you as you go in on Tuesday.

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      akls
      Participant

      John

      I'm so sorry you have to go through another surgery.  Your posts are inspiring!  I hope if I have to face melanoma again I can do it in the same way that you have.  I'll be thinking about you on Tuesday.  I know it will all go well for you.

       

      Amy S. in Michigan

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      akls
      Participant

      John

      I'm so sorry you have to go through another surgery.  Your posts are inspiring!  I hope if I have to face melanoma again I can do it in the same way that you have.  I'll be thinking about you on Tuesday.  I know it will all go well for you.

       

      Amy S. in Michigan

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      Linda J
      Participant

      Thank you for your post – it was what I needed to hear today.  I wish you a successful sugery and a smooth recovery and long life filled with laughter and love.

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      Linda J
      Participant

      Thank you for your post – it was what I needed to hear today.  I wish you a successful sugery and a smooth recovery and long life filled with laughter and love.

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      JenM
      Participant

      Hi John,

      As you are going thru so much, thank you for writing such a sensitive post for others.  I really needed to read your post today.  I have been feeling so scared ever since my brain mets were found in June (3 small ones: 4mm, 4mm and 8mm).  I had gamma knife in July and at first felt really good.  But there are days that I just feel these brain mets are just a death sentence.

      I will be praying for you on Tues.  Hope that all goes well.

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      JenM
      Participant

      Hi John,

      As you are going thru so much, thank you for writing such a sensitive post for others.  I really needed to read your post today.  I have been feeling so scared ever since my brain mets were found in June (3 small ones: 4mm, 4mm and 8mm).  I had gamma knife in July and at first felt really good.  But there are days that I just feel these brain mets are just a death sentence.

      I will be praying for you on Tues.  Hope that all goes well.

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      James from Sydney
      Participant

      John, good luck with the Op. i am sure it will be like the last one. 

      best wishes

      James

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      James from Sydney
      Participant

      John, good luck with the Op. i am sure it will be like the last one. 

      best wishes

      James

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      dian in spokane
      Participant

      Good luck John. I know many people will be thinking of you on Tuesday. Please drop us an update as soon as you  can.

       

      dian in spokane

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      dian in spokane
      Participant

      Good luck John. I know many people will be thinking of you on Tuesday. Please drop us an update as soon as you  can.

       

      dian in spokane

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      Rebecca and Bob
      Participant

      John,

       

      I'm so sorry to hear this. I have never met you, don't know you but you have always made me feel like everything will be okay. I hate the thought of you going through this and will send a ton or prayers for you that this is necrosis. I'm so very upset that you are going through this again.

      God Bless you,

       

      Rebecca and Bob

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      Rebecca and Bob
      Participant

      John,

       

      I'm so sorry to hear this. I have never met you, don't know you but you have always made me feel like everything will be okay. I hate the thought of you going through this and will send a ton or prayers for you that this is necrosis. I'm so very upset that you are going through this again.

      God Bless you,

       

      Rebecca and Bob

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      Jerry from Cape Cod
      Participant

      John,

      I'll keep you in my thoughts.  What a great post. 

      Jerry from Cape Cod

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      Jerry from Cape Cod
      Participant

      John,

      I'll keep you in my thoughts.  What a great post. 

      Jerry from Cape Cod

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      lhaley
      Participant

      John,

      What an uplifting post while you are going through this. This site can be so scary as well helpful and your post was great for newbie's.

      Will be thinking of you Tuesday,

      Linda

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      lhaley
      Participant

      John,

      What an uplifting post while you are going through this. This site can be so scary as well helpful and your post was great for newbie's.

      Will be thinking of you Tuesday,

      Linda

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      BethA in VA
      Participant

      Good luck with your surgery.  My prayers will go with you into surgery on Tuesday.  I wish you a speedy return to good health.  I'm amazed how cautious you were in telling your story (at a time which must be very stressful to you), so as not to scare newbies.  Your story will be one of the successes…and in a couple of weeks you can write about how good this surgery went.  Good thoughts. 

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      BethA in VA
      Participant

      Good luck with your surgery.  My prayers will go with you into surgery on Tuesday.  I wish you a speedy return to good health.  I'm amazed how cautious you were in telling your story (at a time which must be very stressful to you), so as not to scare newbies.  Your story will be one of the successes…and in a couple of weeks you can write about how good this surgery went.  Good thoughts. 

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      ValinMtl
      Participant

      John, my thoughts will be with you on Tuesday.  What a wonderful post…you are so right about the scans.  They scare us to death but best to know early.  Val

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      ValinMtl
      Participant

      John, my thoughts will be with you on Tuesday.  What a wonderful post…you are so right about the scans.  They scare us to death but best to know early.  Val

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      BonnieLea
      Participant

      Oh Dear John

       

      My thoughts will be with you totallyy on Tuesday.  You have been such a great help to me regarding computer/just because stuff, and I will always appreciate that.

      I fully expect you to be in control of the facilties soooooon and be able to pick up where you have had to leave off here.  Give your Merry and Big fat HUG from me. 

      And also remember how your wee doggie now is your number one (or two) fan, and will soon be sharing lap space with you.

       

      Take care and hope to get postings from Merry or even  (dare we hope) yourself.

       

      Bonnie Leaheart

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      BonnieLea
      Participant

      Oh Dear John

       

      My thoughts will be with you totallyy on Tuesday.  You have been such a great help to me regarding computer/just because stuff, and I will always appreciate that.

      I fully expect you to be in control of the facilties soooooon and be able to pick up where you have had to leave off here.  Give your Merry and Big fat HUG from me. 

      And also remember how your wee doggie now is your number one (or two) fan, and will soon be sharing lap space with you.

       

      Take care and hope to get postings from Merry or even  (dare we hope) yourself.

       

      Bonnie Leaheart

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      Lori C
      Participant

      John, your ability to think of others when you are facing your own surgery is very inspiring and humbling.  That is one of the things I appreciate most about this board – everyone here is dealing with their own challenges and yet regularly come together to help others. 

      You are in my thoughts and prayers and may your surgery be a complete success.

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      Lori C
      Participant

      John, your ability to think of others when you are facing your own surgery is very inspiring and humbling.  That is one of the things I appreciate most about this board – everyone here is dealing with their own challenges and yet regularly come together to help others. 

      You are in my thoughts and prayers and may your surgery be a complete success.

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      Jim M.
      Participant

      John,

       You are so inspiring and what you say is absolutely true. God Bless you now and always.

       

       Jim M.

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      Jim M.
      Participant

      John,

       You are so inspiring and what you say is absolutely true. God Bless you now and always.

       

       Jim M.

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      lovingwifedeb
      Participant

      John,

      I have to admit this "newbie" was a little bit shaken when I read your post Friday night. I wish you well fellow traveler. You were one of the first to come to the aid of my defense in my posts and in the searching of my husband's treatment plan in this frightening disease. Your words are comforting to me considering what you, yourself, must be feeling right now. You are a brave soul and I admire you for what you bring to others. If I can someday bring to this kind of energy into my environment especially to my husband then I will forever be humbled. 

      Sending positive thoughts, and the color red (heart chakra) your way…

      Deb

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      lovingwifedeb
      Participant

      John,

      I have to admit this "newbie" was a little bit shaken when I read your post Friday night. I wish you well fellow traveler. You were one of the first to come to the aid of my defense in my posts and in the searching of my husband's treatment plan in this frightening disease. Your words are comforting to me considering what you, yourself, must be feeling right now. You are a brave soul and I admire you for what you bring to others. If I can someday bring to this kind of energy into my environment especially to my husband then I will forever be humbled. 

      Sending positive thoughts, and the color red (heart chakra) your way…

      Deb

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      NicOz
      Participant

      Hmph. I know that you're trying to catch up to me, given that you hate a girly beating you in anything, but you didn't have to go to these lengths, surely?!?! 

      'Talk' to you when you get out, mate… I'll be thinking of you.

      Love to both you and Merry and hope it's the walk in the park that we both know it can be!!

      Nic

      xxx

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      NicOz
      Participant

      Hmph. I know that you're trying to catch up to me, given that you hate a girly beating you in anything, but you didn't have to go to these lengths, surely?!?! 

      'Talk' to you when you get out, mate… I'll be thinking of you.

      Love to both you and Merry and hope it's the walk in the park that we both know it can be!!

      Nic

      xxx

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      Father is stage IV
      Participant

      Sending positive thoughts to you on Tuesday and for a quick recovery!

       

      Krista–Father is stage IV

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      Father is stage IV
      Participant

      Sending positive thoughts to you on Tuesday and for a quick recovery!

       

      Krista–Father is stage IV

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      Rocklove
      Participant

      What and inspiration John.

      Sending positive thoughts and prayers to you and family.

      Rocky (Stage IV Liver Mets)

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      Rocklove
      Participant

      What and inspiration John.

      Sending positive thoughts and prayers to you and family.

      Rocky (Stage IV Liver Mets)

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      BarbieGirl
      Participant

      So sorry to hear this news, John, and sorry you're having to deal with this crap again.  You're in my prayers, guy.  I'll be looking for an update.  *Hugz*

      ~Lisa~

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      BarbieGirl
      Participant

      So sorry to hear this news, John, and sorry you're having to deal with this crap again.  You're in my prayers, guy.  I'll be looking for an update.  *Hugz*

      ~Lisa~

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      LV
      Participant

      John, you never cease to surprise me! I'll be holding good thoughts for you, and looking forard to seeing you back here asap! You're one tough guy. And tell Merry we'll be thinking about her, too.

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      LV
      Participant

      John, you never cease to surprise me! I'll be holding good thoughts for you, and looking forard to seeing you back here asap! You're one tough guy. And tell Merry we'll be thinking about her, too.

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      Hey John

       

      I want to thank you for the reality Check. Since my first and second posts and the replys left I now have taken the time to learn about this beast and have gotten some good advise from people like yourself. I hope all goes well tomorrow. I am heading to MD Anderson on Thursday and Have an APPT with Doctor Weber. The Tumor in my neck has grown now to the size of a lemon but from what I have read this is small compared to others. I hope I can help others in the journey into this as all of you have helped me get my head into the right place and take control.

       

      Thanks and Godspeed

       

      Mac Under the Knife

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      Hey John

       

      I want to thank you for the reality Check. Since my first and second posts and the replys left I now have taken the time to learn about this beast and have gotten some good advise from people like yourself. I hope all goes well tomorrow. I am heading to MD Anderson on Thursday and Have an APPT with Doctor Weber. The Tumor in my neck has grown now to the size of a lemon but from what I have read this is small compared to others. I hope I can help others in the journey into this as all of you have helped me get my head into the right place and take control.

       

      Thanks and Godspeed

       

      Mac Under the Knife

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