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Is this the standard? Help!
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Is this the standard? Help!

› Forums › General Melanoma Community › Is this the standard? Help!

  • Post
    • October 16, 2019 at 2:02 am
    nasullivan
    Participant
      Hello All,

      So, my grandmother was diagnosed stage 4. She has had 2 ipi/nivo treatments. She is currently on predisone and had her second dose of remicade today. She has had a rash and collitis.

      Nevertheless, oncology states that we are “just going to monitor her.”

      She may have had enough immunotherapy and we may not need to switch over to just NIVO (every 2 weeks for 2 years).

      I thought after the (up to 4 combinations) – someone was put on nivo for up to 2 years until they reach toxicity or achieve disease stabilzation?

      As it stands no – even if the collitis resolves – they are just monitoring because her tumors have shrunk (by about half – on average)? So no more treatment?

      Someone help!

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        • October 16, 2019 at 4:08 pm
        Julie in SoCal
        Participant
          Hi nasulivan,

          It’s possible that your grandmother’s docs are in watch and wait mode because Ipi / nivo takes a while to work. They may be watiting to see if ipi / nivo continues to do it’s thing. Strong side effects like collitis are a good indicator that the combo is working and often a good prognostic factor. Let’s hope that is the case with your grandmother.

          You are a caring and loving grandson!

          Shalom,
          Julie

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