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Is PD-1 the way to go-Opinion/Advice
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Is PD-1 the way to go-Opinion/Advice

› Forums › General Melanoma Community › Is PD-1 the way to go-Opinion/Advice

  • Post
    • November 15, 2012 at 7:21 pm
    susanr
    Participant

      Thanks for all who responded to my previous post.  You all are great !!!!!!  I am going to talk with my brother this weekend about the PD1 trials.  It will not be easy.  I have not finished his profile yet….Don't have time to eat lately…He is stage IV as of feb. 2012.  dx. 2/2009 stage III 3a. prim. acral left heel.

      Thanks for all who responded to my previous post.  You all are great !!!!!!  I am going to talk with my brother this weekend about the PD1 trials.  It will not be easy.  I have not finished his profile yet….Don't have time to eat lately…He is stage IV as of feb. 2012.  dx. 2/2009 stage III 3a. prim. acral left heel.

      Mult. surgeries.  SNL, groin dissect.  left pelvic wall mass removed.  Mets to lung, nodes, left. femur, and monster abd. tumor. This is the one thats the big issue.  Failed yervoy…12/2011.  HAd temdor, abraxane, carbo and nexavar….some imporvement with lung mets but not the abdominal monster. 

       

      All opinions and advice again appreciated.  Think Pd-1 is the way to go.  Just need some more advice/comments before I go to the judge….my brother.

       

      Thank you all !!!!!!!!

      Susan

    Viewing 5 reply threads
    • Replies
        • November 15, 2012 at 7:36 pm
        killmel
        Participant

          Hi Susan,

           

          I am a little confused. Many people posted their opinions regarding PD1 from your last post:

          http://www.melanoma.org/community/mpip-melanoma-patients-information-page/pd-1-trial-questions

           

          Are you looking for more opinions regarding PD1?  of different opinions about PD1

           

          May I suggest that you share this forum with your brotther so he can read opinions regarding PD1. I think that if your brother has specific questions regarding PD1, he/you should post them.

           

          Anonymous

          • November 15, 2012 at 7:36 pm
          killmel
          Participant

            Hi Susan,

             

            I am a little confused. Many people posted their opinions regarding PD1 from your last post:

            http://www.melanoma.org/community/mpip-melanoma-patients-information-page/pd-1-trial-questions

             

            Are you looking for more opinions regarding PD1?  of different opinions about PD1

             

            May I suggest that you share this forum with your brotther so he can read opinions regarding PD1. I think that if your brother has specific questions regarding PD1, he/you should post them.

             

            Anonymous

            • November 15, 2012 at 7:36 pm
            killmel
            Participant

              Hi Susan,

               

              I am a little confused. Many people posted their opinions regarding PD1 from your last post:

              http://www.melanoma.org/community/mpip-melanoma-patients-information-page/pd-1-trial-questions

               

              Are you looking for more opinions regarding PD1?  of different opinions about PD1

               

              May I suggest that you share this forum with your brotther so he can read opinions regarding PD1. I think that if your brother has specific questions regarding PD1, he/you should post them.

               

              Anonymous

              • November 16, 2012 at 6:04 am
              JerryfromFauq
              Participant

                It does appear that PD-1 is the most likely item currently in clinical trials that will have at least a quick nearterm beneficial effect on many people with lower side-effects than many other treatments.  If quality of life is one f your brothers major concerns, I cana understand his caution about many of the chemo/immunotherapy trials.  I turned down some possible treatments in my past and went for what, to me seemed to provide the shortest bad side-effects and the longest good quality of life benefits.  At this point, I certainly consider PD-1 trials to be a future option if I need it.

                • November 16, 2012 at 6:04 am
                JerryfromFauq
                Participant

                  It does appear that PD-1 is the most likely item currently in clinical trials that will have at least a quick nearterm beneficial effect on many people with lower side-effects than many other treatments.  If quality of life is one f your brothers major concerns, I cana understand his caution about many of the chemo/immunotherapy trials.  I turned down some possible treatments in my past and went for what, to me seemed to provide the shortest bad side-effects and the longest good quality of life benefits.  At this point, I certainly consider PD-1 trials to be a future option if I need it.

                  • November 16, 2012 at 6:04 am
                  JerryfromFauq
                  Participant

                    It does appear that PD-1 is the most likely item currently in clinical trials that will have at least a quick nearterm beneficial effect on many people with lower side-effects than many other treatments.  If quality of life is one f your brothers major concerns, I cana understand his caution about many of the chemo/immunotherapy trials.  I turned down some possible treatments in my past and went for what, to me seemed to provide the shortest bad side-effects and the longest good quality of life benefits.  At this point, I certainly consider PD-1 trials to be a future option if I need it.

                Viewing 5 reply threads

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