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Ippy and Lump question
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Ippy and Lump question

› Forums › General Melanoma Community › Ippy and Lump question

  • Post
    • November 2, 2010 at 7:53 pm
    mcallan
    Participant

      A little back ground – Stage three mel. Male 52yrs. Original date Jan/07left groin, localized reoccurence May/09. Completely lymphandectomy June/09

      I have been on the Anti-CTLA4 trial since Oct/09. For the last couple of months, I have had this "feeling" under my right breast where I would find myself holding the area but never felt a lump or anything. I had my last clinical day/treatment at the end of this Oct. at which time I reported that I had felt small lumps under my left arm/breast area.

      A little back ground – Stage three mel. Male 52yrs. Original date Jan/07left groin, localized reoccurence May/09. Completely lymphandectomy June/09

      I have been on the Anti-CTLA4 trial since Oct/09. For the last couple of months, I have had this "feeling" under my right breast where I would find myself holding the area but never felt a lump or anything. I had my last clinical day/treatment at the end of this Oct. at which time I reported that I had felt small lumps under my left arm/breast area.

      Onocologist said, "it could be the ippy, so we best watch it". (I don't see him for another 3 months and he is 700km away)

      two weeks after seeing him, this large lump came up below my right breast (area I was holding) it came up over 2-4 days. I waited a week because I thought it could be something else (maybe being optimistic:)) then saw my dr who arranged for an ultrasound…that ball is rolling but slowly.

       

      What I want to know is if anyone else on ippy has has swelling in the breast area? My lump is not hurting but now (week later) I have a very sore spot to the left of my nipple and when I breath it becomes more pronnouced. More like a big ache. The lump below is very hard.

       

      Because of where I live, it only makes sense to wait til the ultrasound and then go from there. I'm just wondering what others have found.

       

      Thanks in advance

       

      Mike

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    • Replies
        • November 3, 2010 at 1:23 am
        jolainajo
        Participant

          Hi Mike, I have stage 4 and have been through the mill of tests. treatments and you name it. My melanoma always starts out like you are describing, Large lumps that sometimes hurts and are rollable. I think that is what you have, a subcutaneous lump of melanoma, You should follow up though, but my experience is the ultrasound will reveal not much and they will want to biopsy it to find out further, I hope that it is nothing, but from what you are describing, it sounds like the ones I get. I also just had my first infusion with ipi. Well, good luck to you.. If you ever need to talk let me know.. Jolaina

            • November 3, 2010 at 1:24 pm
            mcallan
            Participant

              Thanks for the input. I appreciate any experiences that people have. This disease seems to be such a mystery, even to the dr's.

              I get more, "I'm not sure"' responses from drs than anything else. Its also quite hard to sit and wait for a test when something like this has come up.

              • November 3, 2010 at 1:24 pm
              mcallan
              Participant

                Thanks for the input. I appreciate any experiences that people have. This disease seems to be such a mystery, even to the dr's.

                I get more, "I'm not sure"' responses from drs than anything else. Its also quite hard to sit and wait for a test when something like this has come up.

              • November 3, 2010 at 1:23 am
              jolainajo
              Participant

                Hi Mike, I have stage 4 and have been through the mill of tests. treatments and you name it. My melanoma always starts out like you are describing, Large lumps that sometimes hurts and are rollable. I think that is what you have, a subcutaneous lump of melanoma, You should follow up though, but my experience is the ultrasound will reveal not much and they will want to biopsy it to find out further, I hope that it is nothing, but from what you are describing, it sounds like the ones I get. I also just had my first infusion with ipi. Well, good luck to you.. If you ever need to talk let me know.. Jolaina

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