ipilimumab-fusion #2
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ipilimumab-fusion #2

› Forums › General Melanoma Community › ipilimumab-fusion #2

  • Post
    • August 2, 2013 at 5:15 pm
    Jims wife
    Participant

    My husband had his second treatment on Wednesday.  He is stage 4 (into lungs).  On the way home from Boston, his system let loose and he could noy control the diahrea.  They had him take prednisone and return to the hospital for a few hours.  He has had one or two incidents since but nothing like that commute home and the following hours.  Has anyone experienced this reaction?  I see people mentioning rashes.  This was very frustrating and upsetting for him.

    Any thoughts?

    My husband had his second treatment on Wednesday.  He is stage 4 (into lungs).  On the way home from Boston, his system let loose and he could noy control the diahrea.  They had him take prednisone and return to the hospital for a few hours.  He has had one or two incidents since but nothing like that commute home and the following hours.  Has anyone experienced this reaction?  I see people mentioning rashes.  This was very frustrating and upsetting for him.

    Any thoughts?

Viewing 2 reply threads
  • Replies
      • August 2, 2013 at 6:30 pm
      NYKaren
      Participant
      Yes.
      Some docs do Budesonide EC, a steroid that is for the gut. I was in it for months, and it is very helpful. I had to check in with the onc nurse practically every day. If he does get put on that it is NOT like prednisone, meaning it is not a systemic steroid, and does not count “towards” a systemic (I believe you can only take 7.5 mg of systemic steroids a day on Ipi. Some docs will have you take immodium first.
      This is a serious side effect, but can be managed, trust me, I was the queen!
      Please feel to message me. I have a lot of posts on this.
      All the best,
      Karen
      • August 2, 2013 at 6:30 pm
      NYKaren
      Participant
      Yes.
      Some docs do Budesonide EC, a steroid that is for the gut. I was in it for months, and it is very helpful. I had to check in with the onc nurse practically every day. If he does get put on that it is NOT like prednisone, meaning it is not a systemic steroid, and does not count “towards” a systemic (I believe you can only take 7.5 mg of systemic steroids a day on Ipi. Some docs will have you take immodium first.
      This is a serious side effect, but can be managed, trust me, I was the queen!
      Please feel to message me. I have a lot of posts on this.
      All the best,
      Karen
      • August 2, 2013 at 6:30 pm
      NYKaren
      Participant
      Yes.
      Some docs do Budesonide EC, a steroid that is for the gut. I was in it for months, and it is very helpful. I had to check in with the onc nurse practically every day. If he does get put on that it is NOT like prednisone, meaning it is not a systemic steroid, and does not count “towards” a systemic (I believe you can only take 7.5 mg of systemic steroids a day on Ipi. Some docs will have you take immodium first.
      This is a serious side effect, but can be managed, trust me, I was the queen!
      Please feel to message me. I have a lot of posts on this.
      All the best,
      Karen
      • August 4, 2013 at 1:33 am
      NYKaren
      Participant
      Hi, I’ve sent you my email… Please let me know you’ve gotten it. I am not a doctor, just know what questions to ask!
      All the best,
      Karen
      • August 4, 2013 at 1:33 am
      NYKaren
      Participant
      Hi, I’ve sent you my email… Please let me know you’ve gotten it. I am not a doctor, just know what questions to ask!
      All the best,
      Karen
      • August 4, 2013 at 1:33 am
      NYKaren
      Participant
      Hi, I’ve sent you my email… Please let me know you’ve gotten it. I am not a doctor, just know what questions to ask!
      All the best,
      Karen
Viewing 2 reply threads
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