› Forums › Ocular Melanoma Community › Ipi caused brain swelling but is working awesome on tumors
- This topic has 12 replies, 3 voices, and was last updated 11 years, 4 months ago by
lyndaloo.
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- January 24, 2012 at 10:58 pm
My husband had his third round of ipi (3mg) three weeks ago and his eyesight became increasingly bad with headaches. When he became nauseous I took him to emerg and they did a cat scan and mri. Today we found out the drug caused brain swelling because he had some tumors that were radiated in August (near his ocular vision) and the drug irritated the tumors and caused edema. There was a lot of edema but now the steriods have taken down the brain swelling. This was a scary two weeks not knowing if the tumors had become active or if more disease had occurred.
My husband had his third round of ipi (3mg) three weeks ago and his eyesight became increasingly bad with headaches. When he became nauseous I took him to emerg and they did a cat scan and mri. Today we found out the drug caused brain swelling because he had some tumors that were radiated in August (near his ocular vision) and the drug irritated the tumors and caused edema. There was a lot of edema but now the steriods have taken down the brain swelling. This was a scary two weeks not knowing if the tumors had become active or if more disease had occurred. Today the doctors were happy to report that his tumor burden has decreased by 2/3rds. The edema has cleared up enough to get the 4th and final dose of ipi. All his skin tumors have disappeared. We are so happy that he is able to get the fourth dose of ipi as he is responding to this drug amazingly well.
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- January 25, 2012 at 2:10 pm
Wow sorry you had the scarey part but the news is great. Glad to hear he is an Ipi responder.
Judy (loving wife and caregiver of Gene Stage IV on Ipi 10 mg/kg and GM-CSF)
Tagged: ocular melanoma
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