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Ipi caused brain swelling but is working awesome on tumors

Forums Ocular Melanoma Community Ipi caused brain swelling but is working awesome on tumors

  • Post
    lyndaloo
    Participant

      My husband had his third round of ipi (3mg) three weeks ago and his eyesight became increasingly bad with headaches. When he became nauseous I took him to emerg and they did a cat scan and mri. Today we found out the drug caused brain swelling because he had some tumors that were radiated in August (near his ocular vision) and the drug irritated the tumors and caused edema. There was a lot of edema but now the steriods have taken down the brain swelling. This was a scary two weeks not knowing if the tumors had become active or if more disease had occurred.

      My husband had his third round of ipi (3mg) three weeks ago and his eyesight became increasingly bad with headaches. When he became nauseous I took him to emerg and they did a cat scan and mri. Today we found out the drug caused brain swelling because he had some tumors that were radiated in August (near his ocular vision) and the drug irritated the tumors and caused edema. There was a lot of edema but now the steriods have taken down the brain swelling. This was a scary two weeks not knowing if the tumors had become active or if more disease had occurred. Today the doctors were happy to report that his tumor burden has decreased by 2/3rds. The edema has cleared up enough to get the 4th and final dose of ipi. All his skin tumors have disappeared. We are so happy that he is able to get the fourth dose of ipi as he is responding to this drug amazingly well.

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        LynnLuc
        Participant

          this is great news!!!

          LynnLuc
          Participant

            this is great news!!!

              lyndaloo
              Participant

                Thank you, we think so too!

                lyndaloo
                Participant

                  Thank you, we think so too!

                  lyndaloo
                  Participant

                    Thank you, we think so too!

                  LynnLuc
                  Participant

                    this is great news!!!

                    Gene_S
                    Participant

                      Wow sorry you had the scarey part but the news is great.  Glad to hear he is an Ipi responder.

                      Judy (loving wife and caregiver of Gene Stage IV on Ipi 10 mg/kg and GM-CSF)

                      Gene_S
                      Participant

                        Wow sorry you had the scarey part but the news is great.  Glad to hear he is an Ipi responder.

                        Judy (loving wife and caregiver of Gene Stage IV on Ipi 10 mg/kg and GM-CSF)

                          lyndaloo
                          Participant

                            Thank you Judy

                            lyndaloo
                            Participant

                              Thank you Judy

                              lyndaloo
                              Participant

                                Thank you Judy

                              Gene_S
                              Participant

                                Wow sorry you had the scarey part but the news is great.  Glad to hear he is an Ipi responder.

                                Judy (loving wife and caregiver of Gene Stage IV on Ipi 10 mg/kg and GM-CSF)

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