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Interferon Side Effects

Forums General Melanoma Community Interferon Side Effects

  • Post
    neki
    Participant

      My dad just finished the high dose Interferon last week, and this is his first week of the low dose 3x a week. He's sleeping 20+ hours a day and starting this week is having a tough time finishing his sentences. Sometimes he's so out of it that it feels like he's disoriented/confused…but it may be that he's just asleep or sleepy. 

      Is this the normal fatigue that I read about in the side effects that people talk about? Did anyone experience similar side effects?

      My dad just finished the high dose Interferon last week, and this is his first week of the low dose 3x a week. He's sleeping 20+ hours a day and starting this week is having a tough time finishing his sentences. Sometimes he's so out of it that it feels like he's disoriented/confused…but it may be that he's just asleep or sleepy. 

      Is this the normal fatigue that I read about in the side effects that people talk about? Did anyone experience similar side effects?

      Thanks for any information. This board has been very helpful in researching what to do as we move along in this process.

      Thanks!!

    Viewing 17 reply threads
    • Replies
        audgator
        Participant

          All I can tell you is what my experience was.  I slept more than usual, maybe 10-12 hours a day including naps which was very unusual for me.  My appetite was off & I lost about 20 pounds (which didn't hurt!).  I tried playing golf one day and only made it 3 holes.  No effect on my speech.  I watched a lot of TV…at least what I didn't sleep through.

          audgator
          Participant

            All I can tell you is what my experience was.  I slept more than usual, maybe 10-12 hours a day including naps which was very unusual for me.  My appetite was off & I lost about 20 pounds (which didn't hurt!).  I tried playing golf one day and only made it 3 holes.  No effect on my speech.  I watched a lot of TV…at least what I didn't sleep through.

            audgator
            Participant

              All I can tell you is what my experience was.  I slept more than usual, maybe 10-12 hours a day including naps which was very unusual for me.  My appetite was off & I lost about 20 pounds (which didn't hurt!).  I tried playing golf one day and only made it 3 holes.  No effect on my speech.  I watched a lot of TV…at least what I didn't sleep through.

              dian in spokane
              Participant

                well, I had similar side effects, though they were later along in the process.

                But.. it was at that time that I quit driving too, because I could not depend on my reflexes.

                I slept a ton.

                dian

                dian in spokane
                Participant

                  well, I had similar side effects, though they were later along in the process.

                  But.. it was at that time that I quit driving too, because I could not depend on my reflexes.

                  I slept a ton.

                  dian

                  dian in spokane
                  Participant

                    well, I had similar side effects, though they were later along in the process.

                    But.. it was at that time that I quit driving too, because I could not depend on my reflexes.

                    I slept a ton.

                    dian

                    Gene_S
                    Participant

                      Checking out your profile that states your home town is Southborough, so forgive my igorance but where is Southborough?

                      Also please provide what stage he is in and what other treatments has helped him out or not. 

                      Gene_S
                      Participant

                        Checking out your profile that states your home town is Southborough, so forgive my igorance but where is Southborough?

                        Also please provide what stage he is in and what other treatments has helped him out or not. 

                        Gene_S
                        Participant

                          Checking out your profile that states your home town is Southborough, so forgive my igorance but where is Southborough?

                          Also please provide what stage he is in and what other treatments has helped him out or not. 

                          Hstevens0072
                          Participant
                            I’m sorry your dad has to go thru this. I did the one month infusion and eleven months of shots. It is manageable. Interferon does wear you out completely but 20 hours a day seems a lot. Has your dad been given anything for depression? I worked full time for the first three months and found it impossible…. They lowered my dose slightly, from 19 M to 15M and I was able to work the rest of the time. I think it’s important to try and go about business as usual, it helped me to function. As to the not completing sentences, well, that does happen. The good news is that once you stop interferon it will come back. Have your dad talk to his Onc about the sleeping so much. Good luck.
                              Hstevens0072
                              Participant
                                Not sure why this replied anon. Silly board.
                                Hstevens0072
                                Participant
                                  Not sure why this replied anon. Silly board.
                                  Hstevens0072
                                  Participant
                                    Not sure why this replied anon. Silly board.
                                    JerryfromFauq
                                    Participant

                                      The anon box shows up first  if one doesn't scroll far enough down and be sure they are hitting the Post message box first.  Happened to me more than once too!  I have marked it when I meant to mark reply:       to this post.

                                      JerryfromFauq
                                      Participant

                                        The anon box shows up first  if one doesn't scroll far enough down and be sure they are hitting the Post message box first.  Happened to me more than once too!  I have marked it when I meant to mark reply:       to this post.

                                        JerryfromFauq
                                        Participant

                                          The anon box shows up first  if one doesn't scroll far enough down and be sure they are hitting the Post message box first.  Happened to me more than once too!  I have marked it when I meant to mark reply:       to this post.

                                        Hstevens0072
                                        Participant
                                          I’m sorry your dad has to go thru this. I did the one month infusion and eleven months of shots. It is manageable. Interferon does wear you out completely but 20 hours a day seems a lot. Has your dad been given anything for depression? I worked full time for the first three months and found it impossible…. They lowered my dose slightly, from 19 M to 15M and I was able to work the rest of the time. I think it’s important to try and go about business as usual, it helped me to function. As to the not completing sentences, well, that does happen. The good news is that once you stop interferon it will come back. Have your dad talk to his Onc about the sleeping so much. Good luck.
                                          Hstevens0072
                                          Participant
                                            I’m sorry your dad has to go thru this. I did the one month infusion and eleven months of shots. It is manageable. Interferon does wear you out completely but 20 hours a day seems a lot. Has your dad been given anything for depression? I worked full time for the first three months and found it impossible…. They lowered my dose slightly, from 19 M to 15M and I was able to work the rest of the time. I think it’s important to try and go about business as usual, it helped me to function. As to the not completing sentences, well, that does happen. The good news is that once you stop interferon it will come back. Have your dad talk to his Onc about the sleeping so much. Good luck.
                                            Wolverine
                                            Participant

                                              Hello.  I am have been doing interferon since Nov. 2012.  My side effects were definite depression.  They gave me something for that and I have been in good spirits.  I really have slept more than usual but I still am working about 45 hours a week in an office setting.  I crash on Saturdays and relax on Sundays.  I have also had a lot of skin iritation and just really itchy skin which I used lotion on.  I have also had headaches.  I have suffered from dry eyes to the point where I quit wearing my contacts and my eyes always pretty red.  I did take one week off at the ocologist's request and by the end of the week was feeling like my old self gain.  Best of luck to your father.

                                              Wolverine
                                              Participant

                                                Hello.  I am have been doing interferon since Nov. 2012.  My side effects were definite depression.  They gave me something for that and I have been in good spirits.  I really have slept more than usual but I still am working about 45 hours a week in an office setting.  I crash on Saturdays and relax on Sundays.  I have also had a lot of skin iritation and just really itchy skin which I used lotion on.  I have also had headaches.  I have suffered from dry eyes to the point where I quit wearing my contacts and my eyes always pretty red.  I did take one week off at the ocologist's request and by the end of the week was feeling like my old self gain.  Best of luck to your father.

                                                Wolverine
                                                Participant

                                                  Hello.  I am have been doing interferon since Nov. 2012.  My side effects were definite depression.  They gave me something for that and I have been in good spirits.  I really have slept more than usual but I still am working about 45 hours a week in an office setting.  I crash on Saturdays and relax on Sundays.  I have also had a lot of skin iritation and just really itchy skin which I used lotion on.  I have also had headaches.  I have suffered from dry eyes to the point where I quit wearing my contacts and my eyes always pretty red.  I did take one week off at the ocologist's request and by the end of the week was feeling like my old self gain.  Best of luck to your father.

                                                  Ali
                                                  Participant

                                                    I had the same side effects, but maybe not as severe.  Depression meds helped a ton for me (if that is a factor here).  Also the interferon destroyed my thyroid (months after the high dose) which didn't help my fatigue.  Another thing that can be helped meds.  Best of luck, this is nasty stuff.  I do belive in my case it did what they said it could-delay a recurrence. 

                                                    Ali
                                                    Participant

                                                      I had the same side effects, but maybe not as severe.  Depression meds helped a ton for me (if that is a factor here).  Also the interferon destroyed my thyroid (months after the high dose) which didn't help my fatigue.  Another thing that can be helped meds.  Best of luck, this is nasty stuff.  I do belive in my case it did what they said it could-delay a recurrence. 

                                                      Ali
                                                      Participant

                                                        I had the same side effects, but maybe not as severe.  Depression meds helped a ton for me (if that is a factor here).  Also the interferon destroyed my thyroid (months after the high dose) which didn't help my fatigue.  Another thing that can be helped meds.  Best of luck, this is nasty stuff.  I do belive in my case it did what they said it could-delay a recurrence. 

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