Hello Melanoma Family!!!
I will scroll down reading posts from “Forum Friends’ who have helped me these last 2 years!
I am happy to see Bubbles and Melanoma Mike still posting and will read about others.
Diagnosed Stage 4 May’17. 3 of 4 combo cocktail Opdivo/Yervoy liver enzymes: hepatitis
d, 4 months of Prednisone. Started Opdivo maintenance Jan ’18. I still get 1 mg (90) infusions
every 2 weeks at Kaiser Woodland Hills. with bloodwork several days before. Pet Scans every 3 months, haven’t had brain MRI in a year, I had 5
within a year tho. After 2 years of the same oncology nurses they are amazed that I am the lowest dose
of Opdivo they have administered to any patient. Dr. Wang said I was his first patient to get such a low dose.
Worried me initially. \
Just had latest Pet scan report: still NED!
Had lung mass, lymph node in armpit, groin, mass in chest, by pancreas-7 total that could be seen.
Dr. said still Stage 4. But tested positive for the what I call mutant gene ha! and can get targeted therapy and radiation etc if necessary going forward.
72 year old grandma of 6. I take Sadie my daughters labradoodle to Dog Park. Have been on 3 cruises in last year. I have a lot of arthritis and use a cane now.
Short term memory is bad. Was referred to Palative Care. Trying Retalin to see if it will help with fatigue. Osteoarthritis, takin glucosamine for it.
Sat by a patient on my last treatment, over 80 years old, his bladder and kidney cancer gone.
His wife hospitalized but ok with intestinal problems just finished all 4 combo treatments. Melanoma tumor on leg shrank,.
Seems like those that are fortunate to have all 4 combo treatments do suffer some stronger side effects.
My worst ones was the brain fog and rashes.
Again thanks to all that have helped me with well wishes, advice etc these last 2 years. You gave me hope! (now I will scroll to see how my (forum friends are doing)
Blessings, Sharon
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