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I talked with Dr Weber today…had scans etc..I remain stage 4 NED!

Forums Cutaneous Melanoma Community I talked with Dr Weber today…had scans etc..I remain stage 4 NED!

  • Post
    LynnLuc
    Participant

      I talked with Dr Weber today…had scans etc..I remain stage 4  NED!  2 treatments left in the 30 month trial. I also discussed the possible release of BMS's anti pd-1. He says there is no way its going to go for approval UNTIL phase 2 trials are completed and we are still in phase 1. We have been in phase 1 trials since 2010 at Moffitt and still in phase 1 trials. I told him alot of people are trying to get in to the trials and it doesn't seem fair.

      I talked with Dr Weber today…had scans etc..I remain stage 4  NED!  2 treatments left in the 30 month trial. I also discussed the possible release of BMS's anti pd-1. He says there is no way its going to go for approval UNTIL phase 2 trials are completed and we are still in phase 1. We have been in phase 1 trials since 2010 at Moffitt and still in phase 1 trials. I told him alot of people are trying to get in to the trials and it doesn't seem fair.

      Now perhaps this will benefit some of you all…Dr Weber has opened the trial for resected melanoma to Stage 3 c… he has only 5 slots left in this trial. If you are interested in either trial you can e-mail him at [email protected] .

      Here is that trial http://cancer.gov/clinicaltrials/search/view?cdrid=682183&version=HealthProfessional&protocolsearchid=10185044#AlternateTitle_CDR0000682183

      NOW..here is some other good news…he still has slots in the unresected melanoma trial and he is thinking on asking BMS to expand it to include more people….
      that trial is
      http://cancer.gov/clinicaltrials/search/view?cdrid=682171&version=HealthProfessional&protocolsearchid=10185044#AlternateTitle_CDR0000682171

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    • Replies
        killmel
        Participant

          Lynn,

          Congrat on being NED.

          After your last 2 treatments, are you stopping treatment. Is the trial "over" for you?

           

          Jamie

          killmel
          Participant

            Lynn,

            Congrat on being NED.

            After your last 2 treatments, are you stopping treatment. Is the trial "over" for you?

             

            Jamie

            killmel
            Participant

              Lynn,

              Congrat on being NED.

              After your last 2 treatments, are you stopping treatment. Is the trial "over" for you?

               

              Jamie

              triciad
              Participant

                I'm so happy to hear about your NED status…go out and celebrate!  Best wishes for continued success!

                Thanks for sharing the information on the openings in the trial.

                Tricia

                triciad
                Participant

                  I'm so happy to hear about your NED status…go out and celebrate!  Best wishes for continued success!

                  Thanks for sharing the information on the openings in the trial.

                  Tricia

                  triciad
                  Participant

                    I'm so happy to hear about your NED status…go out and celebrate!  Best wishes for continued success!

                    Thanks for sharing the information on the openings in the trial.

                    Tricia

                    audgator
                    Participant

                      Good news again, Lynn. Did Weber say anything about how others in the trial are doing? Any numbers?  Dr. K. has been very happy with most of the results.   Dan

                      audgator
                      Participant

                        Good news again, Lynn. Did Weber say anything about how others in the trial are doing? Any numbers?  Dr. K. has been very happy with most of the results.   Dan

                        audgator
                        Participant

                          Good news again, Lynn. Did Weber say anything about how others in the trial are doing? Any numbers?  Dr. K. has been very happy with most of the results.   Dan

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