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Hypercalcemia

Forums Ocular Melanoma Community Hypercalcemia

  • Post
    edamaser
    Participant

      Hi All,

      I have metastatic Ocular Melanoma, and have been fighting mets in the liver for 9 years.  I have mets in the liver, lungs, peritoneum, abdominal wall, and more. 

      Hi All,

      I have metastatic Ocular Melanoma, and have been fighting mets in the liver for 9 years.  I have mets in the liver, lungs, peritoneum, abdominal wall, and more. 

      I would like to share with you something that has come up recently for me as a consequence of metastatic cancer that I never heard of before. The condition is hypercalcemia–too much calcium in the blood. In my case, I ended up in the hospital for 3 days while they figured out the situation and what to do about it. They think it is caused by the melanoma itself, which releases some substance that encourages calcium to be leached out of my bones. For anybody this is pretty serious, but for an old lady like me, it's scary. I will end up getting zometa, which only will slow down the leaching. Nothing can replace the calcium already leached out. Be sure to note that I do not have any bone mets, if my hypercalcemia is caused by cancer, it is all soft tissue cancer.

      They checked out and rejected the most obvious cause, parathyroid involvement, and probably other possible causes, but settled on cancer as the default hypothesis.

      The possible symptoms of hypercalcemia are wide-ranging: for e.g., confusion, memory loss, constipation, abdominal pain, kidney stones, etc. etc. The condition of hypercalcemia is discovered by a simple blood test.

      Has anyone encountered hypercalcemia due to cancer before? 

      Esther

    Viewing 5 reply threads
    • Replies
        natasha
        Participant

          Hi ,Esther !

             I am sorry I cannot provide you with information you need. All I can say – I will pray for you and for all cancer patients !

          My nanny battled cancer and she lost

          My cousine is battling lymph cancer now

          I am melanoma patient.

          My heart goes out for everyone and I am asking God to fogive us and stop cancer .

          Best wishes.

          Natasha ,UK

            edamaser
            Participant

              Hi Natasha,

              Thank you for your sympathy, and I'm sending some right back at you.

              Do you have metastatic melanoma?  If so, what treatments have you received?

              Wishing you the best of luck,

              Esther

              natasha
              Participant

                Hi! I am stage 1A so far. Breslow is 0.2 mm Clark2 ,n mitosis no ulceration. I had Wide Excision day before yesterday .

                No more treatment was recommended. I was asking for SNB PET tests or even something ,but seems I am going to get it.   Which treatments did you have ,Esther ?

                Thank you

                edamaser
                Participant

                  Hi Natasha,

                  You may not believe the following, but truly I have had all the following treatments. At least I'm still here.

                  1980- photocoagulation of eye

                  1988 plaque radiation of eye

                  Starting 2003 the following

                  7 immuno-embos of liver-with GMCSF

                  Abdominal infusions with Taxol

                  Avastin & Nexavar clinical trial

                  Surgery removing 2 large peritoneal mets

                  Sutent clinical trial

                  Cyberknife on two lgrowing liver lesions

                  VATS lung surgery–removes two new lesions

                  Vaccine/PD-1 troa;

                  4 monthly immuno-embos with GMCSF & IL2

                  Yervoy

                   

                  In between I have had surgery as above, but also including several laparoscopies, and both placement and removal of a port.

                  I'm still here, and you are too,

                  Esther

                  edamaser
                  Participant

                    Hi Natasha,

                    You may not believe the following, but truly I have had all the following treatments. At least I'm still here.

                    1980- photocoagulation of eye

                    1988 plaque radiation of eye

                    Starting 2003 the following

                    7 immuno-embos of liver-with GMCSF

                    Abdominal infusions with Taxol

                    Avastin & Nexavar clinical trial

                    Surgery removing 2 large peritoneal mets

                    Sutent clinical trial

                    Cyberknife on two lgrowing liver lesions

                    VATS lung surgery–removes two new lesions

                    Vaccine/PD-1 troa;

                    4 monthly immuno-embos with GMCSF & IL2

                    Yervoy

                     

                    In between I have had surgery as above, but also including several laparoscopies, and both placement and removal of a port.

                    I'm still here, and you are too,

                    Esther

                    edamaser
                    Participant

                      Hi Natasha,

                      You may not believe the following, but truly I have had all the following treatments. At least I'm still here.

                      1980- photocoagulation of eye

                      1988 plaque radiation of eye

                      Starting 2003 the following

                      7 immuno-embos of liver-with GMCSF

                      Abdominal infusions with Taxol

                      Avastin & Nexavar clinical trial

                      Surgery removing 2 large peritoneal mets

                      Sutent clinical trial

                      Cyberknife on two lgrowing liver lesions

                      VATS lung surgery–removes two new lesions

                      Vaccine/PD-1 troa;

                      4 monthly immuno-embos with GMCSF & IL2

                      Yervoy

                       

                      In between I have had surgery as above, but also including several laparoscopies, and both placement and removal of a port.

                      I'm still here, and you are too,

                      Esther

                      natasha
                      Participant

                        Hi! I am stage 1A so far. Breslow is 0.2 mm Clark2 ,n mitosis no ulceration. I had Wide Excision day before yesterday .

                        No more treatment was recommended. I was asking for SNB PET tests or even something ,but seems I am going to get it.   Which treatments did you have ,Esther ?

                        Thank you

                        natasha
                        Participant

                          Hi! I am stage 1A so far. Breslow is 0.2 mm Clark2 ,n mitosis no ulceration. I had Wide Excision day before yesterday .

                          No more treatment was recommended. I was asking for SNB PET tests or even something ,but seems I am going to get it.   Which treatments did you have ,Esther ?

                          Thank you

                          edamaser
                          Participant

                            Hi Natasha,

                            Thank you for your sympathy, and I'm sending some right back at you.

                            Do you have metastatic melanoma?  If so, what treatments have you received?

                            Wishing you the best of luck,

                            Esther

                            edamaser
                            Participant

                              Hi Natasha,

                              Thank you for your sympathy, and I'm sending some right back at you.

                              Do you have metastatic melanoma?  If so, what treatments have you received?

                              Wishing you the best of luck,

                              Esther

                            natasha
                            Participant

                              Hi ,Esther !

                                 I am sorry I cannot provide you with information you need. All I can say – I will pray for you and for all cancer patients !

                              My nanny battled cancer and she lost

                              My cousine is battling lymph cancer now

                              I am melanoma patient.

                              My heart goes out for everyone and I am asking God to fogive us and stop cancer .

                              Best wishes.

                              Natasha ,UK

                              natasha
                              Participant

                                Hi ,Esther !

                                   I am sorry I cannot provide you with information you need. All I can say – I will pray for you and for all cancer patients !

                                My nanny battled cancer and she lost

                                My cousine is battling lymph cancer now

                                I am melanoma patient.

                                My heart goes out for everyone and I am asking God to fogive us and stop cancer .

                                Best wishes.

                                Natasha ,UK

                                mzeigler
                                Participant

                                  I'm sorry for your situation with liver mets and your battle with melanoma.  My wife, before she passed away had high calcium levels in her blood.  She had lytic lesions on some of her bones like the femur and pelvic bones.  The bones being damaged by melanoma caused the high calcium levels in her blood.  Some of the symptoms included mental confusion and fatigue before they got her levels lowered.  Mike

                                    boot2aboot
                                    Participant

                                      thanks for letting us know Esther…and yes, that would be very scary…i hope that they get your calcium levels down asap

                                      boots

                                      edamaser
                                      Participant

                                        Thanks Mike & Boots,

                                        Tomorrow I'll find out it I have brain mets (previous scan was suspicious), how my calcium level is, and I'll probably get Zometa.

                                        It never ends, does it?

                                        Esther

                                        edamaser
                                        Participant

                                          Thanks Mike & Boots,

                                          Tomorrow I'll find out it I have brain mets (previous scan was suspicious), how my calcium level is, and I'll probably get Zometa.

                                          It never ends, does it?

                                          Esther

                                          edamaser
                                          Participant

                                            Thanks Mike & Boots,

                                            Tomorrow I'll find out it I have brain mets (previous scan was suspicious), how my calcium level is, and I'll probably get Zometa.

                                            It never ends, does it?

                                            Esther

                                            boot2aboot
                                            Participant

                                              thanks for letting us know Esther…and yes, that would be very scary…i hope that they get your calcium levels down asap

                                              boots

                                              boot2aboot
                                              Participant

                                                thanks for letting us know Esther…and yes, that would be very scary…i hope that they get your calcium levels down asap

                                                boots

                                              mzeigler
                                              Participant

                                                I'm sorry for your situation with liver mets and your battle with melanoma.  My wife, before she passed away had high calcium levels in her blood.  She had lytic lesions on some of her bones like the femur and pelvic bones.  The bones being damaged by melanoma caused the high calcium levels in her blood.  Some of the symptoms included mental confusion and fatigue before they got her levels lowered.  Mike

                                                mzeigler
                                                Participant

                                                  I'm sorry for your situation with liver mets and your battle with melanoma.  My wife, before she passed away had high calcium levels in her blood.  She had lytic lesions on some of her bones like the femur and pelvic bones.  The bones being damaged by melanoma caused the high calcium levels in her blood.  Some of the symptoms included mental confusion and fatigue before they got her levels lowered.  Mike

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