Hi guys and ladies. It’s Warren

This topic has 27 replies, 5 voices, and was last updated 12 years, 4 months ago by wgalinat.

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- December 12, 2011 at 2:16 am
- Quote
wgalinat
Participant
It’s Warren G. Just an update for those who know me or might want some questions answered about the clinical trial at NIH. Free feel to email directly at [email protected]. I’m now ten years out of the melanoma discovery and five years out from stage 4 very tough clinical trial at NIH. In light of our friend Val passing recently I will say that when I went to NIH by comparison my cancer was not as advanced or developed as many others on the 3rd floor.. I was lucky to get through it and recover over time. I now know many that did not however.

It’s Warren G. Just an update for those who know me or might want some questions answered about the clinical trial at NIH. Free feel to email directly at [email protected]. I’m now ten years out of the melanoma discovery and five years out from stage 4 very tough clinical trial at NIH. In light of our friend Val passing recently I will say that when I went to NIH by comparison my cancer was not as advanced or developed as many others on the 3rd floor.. I was lucky to get through it and recover over time. I now know many that did not however. I’ve often said on here that NIH is a persons best option. I will say now I still think its a great option, the docs and nurses are great, the building is brand new so you just feel comfortable, will you know what I mean. There are lots of other options, many new drugs that may prove even better for you. Review all your options.
A bit on me. A year ago I moved to Las Vegas to be close to my son and his young family. Fun place, lots to do and I am a bit of a gambler. Following my NIH trial I was one of five of us that was left with kidney damage following the intensive full body radiation. After our study group they stopped zapping people with so much of it. I’ve been told that recently Dr Rosenberg has reinstated it. You can draw your own conclusion why. Most survivors have their immune systems reduced as well. This can be a dangerous over time, other cancers will have an easier time against you. They did against me. I had a few bumps on the top of my head. Got em tested. I got Merkel Cell carcinoma, a super rare, very aggressive cancer that’s got no proven plan of attack study because it’s so rare. In three months I’ve had four surgeries, two sets of radiation treatments. My head, my ear, and down my neck to my throat area. Worst news being the latest removed 17 lymph nodes, 15 were bad. The neck surgery had the cancer wrapped in my muscle which was stripped away from my nerve. Neck drain, etc. if you know me you know I don’t quit. I never lose my sense of reality however. I’m in a dangerous zone. I don’t get why I did get two killer cancers. I do get a chance again. I’m very grateful for the last ten years. I am hopeful for more.

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- - December 12, 2011 at 1:46 pm
  - Quote
  Phil S
  Participant
  Warren. Thanks so much for sharing your story, I know how hard it is that Val passed away and that adoptive cell can be such a tough treatment. We all have our own path with this disease! I admire your attitude and fight, “don’t ever give up”. I am writing this email from my husband’s hospital room at MDAnderson as he is finishing up his second round of biochemo, another tough treatment with no guarantees, but like you, we fight today and hope tomorrow holds promise. God bless you! Valerie (Phil’s wife)
- - December 12, 2011 at 1:46 pm
  - Quote
  Phil S
  Participant
  Warren. Thanks so much for sharing your story, I know how hard it is that Val passed away and that adoptive cell can be such a tough treatment. We all have our own path with this disease! I admire your attitude and fight, “don’t ever give up”. I am writing this email from my husband’s hospital room at MDAnderson as he is finishing up his second round of biochemo, another tough treatment with no guarantees, but like you, we fight today and hope tomorrow holds promise. God bless you! Valerie (Phil’s wife)
- - December 12, 2011 at 1:46 pm
  - Quote
  Phil S
  Participant
  Warren. Thanks so much for sharing your story, I know how hard it is that Val passed away and that adoptive cell can be such a tough treatment. We all have our own path with this disease! I admire your attitude and fight, “don’t ever give up”. I am writing this email from my husband’s hospital room at MDAnderson as he is finishing up his second round of biochemo, another tough treatment with no guarantees, but like you, we fight today and hope tomorrow holds promise. God bless you! Valerie (Phil’s wife)
- - December 12, 2011 at 2:38 pm
  - Quote
  wgalinat
  Participant
  Thanks for the kind words. I could have been your husbands roommate. The insurance here in Vegas actually was going to send me there for my Merkel cell but your place rejected them for being bad pay. Go figure. Anyway best of luck to you guys and thanks again.
- - December 12, 2011 at 2:38 pm
  - Quote
  wgalinat
  Participant
  Thanks for the kind words. I could have been your husbands roommate. The insurance here in Vegas actually was going to send me there for my Merkel cell but your place rejected them for being bad pay. Go figure. Anyway best of luck to you guys and thanks again.
- - December 12, 2011 at 2:38 pm
  - Quote
  wgalinat
  Participant
  Thanks for the kind words. I could have been your husbands roommate. The insurance here in Vegas actually was going to send me there for my Merkel cell but your place rejected them for being bad pay. Go figure. Anyway best of luck to you guys and thanks again.
- - December 12, 2011 at 11:56 pm
  - Quote
  jag
  Participant
  Warren, thank you for posting this. I am sorry that you are going through 2ndary effects of the NCI treatment, I've been through biochemotherapy myself-which is pretty toxic, still, it is nice to see stage IVers alive so far out of treatment.
  
  God Bless, and enjoy Las Vegas!
  - December 13, 2011 at 12:03 am
    
    Quote
    NYKaren
    Participant
    
    Hi Warren,
    
    thanks so much for posting. I too am sorry you're going throung the secondary effects.
    
    We lived in Vegas for 2 years…it was fun and beautiful. My husband has more of a taste for gambling…I only like it if I'm winning!
    
    take care,
    
    karen
  - December 13, 2011 at 12:24 am
    
    Quote
    wgalinat
    Participant
    
    Trust me, I know all so well it’s much more fun when you walk away with the big casino money instead of giving them your money. Hehe. My son is actually a director for Steve Wynn. I’m sure you spent some time in his two properties….certainly the best of the strip.
  - December 13, 2011 at 12:24 am
    
    Quote
    wgalinat
    Participant
    
    Trust me, I know all so well it’s much more fun when you walk away with the big casino money instead of giving them your money. Hehe. My son is actually a director for Steve Wynn. I’m sure you spent some time in his two properties….certainly the best of the strip.
  - December 13, 2011 at 12:24 am
    
    Quote
    wgalinat
    Participant
    
    Trust me, I know all so well it’s much more fun when you walk away with the big casino money instead of giving them your money. Hehe. My son is actually a director for Steve Wynn. I’m sure you spent some time in his two properties….certainly the best of the strip.
  - December 13, 2011 at 12:03 am
    
    Quote
    NYKaren
    Participant
    
    Hi Warren,
    
    thanks so much for posting. I too am sorry you're going throung the secondary effects.
    
    We lived in Vegas for 2 years…it was fun and beautiful. My husband has more of a taste for gambling…I only like it if I'm winning!
    
    take care,
    
    karen
  - December 13, 2011 at 12:03 am
    
    Quote
    NYKaren
    Participant
    
    Hi Warren,
    
    thanks so much for posting. I too am sorry you're going throung the secondary effects.
    
    We lived in Vegas for 2 years…it was fun and beautiful. My husband has more of a taste for gambling…I only like it if I'm winning!
    
    take care,
    
    karen
  - December 13, 2011 at 12:20 am
    
    Quote
    wgalinat
    Participant
    
    Thanks Jag. Appreciate it. Have a nice holiday and a great new year.
  - December 13, 2011 at 12:20 am
    
    Quote
    wgalinat
    Participant
    
    Thanks Jag. Appreciate it. Have a nice holiday and a great new year.
  - December 13, 2011 at 12:20 am
    
    Quote
    wgalinat
    Participant
    
    Thanks Jag. Appreciate it. Have a nice holiday and a great new year.
  - December 13, 2011 at 12:40 am
    
    Quote
    boot2aboot
    Participant
    
    Warren,
    
    i am glad you have had good response with TIL…
    
    some vegas tips from someone who (yuck) had to live there…
    
    for gambling….
    
    1. stay away from the strip unless you want to see shows, go clubbing
    
    2. go out to the casinos in the burbs…the payouts and odds much better there, plus cheap eats
    
    3. only play black jack (best odds)
    
    4. go to the hot springs and take a healthy dip in the pools
    
    boots
  - December 13, 2011 at 12:40 am
    
    Quote
    boot2aboot
    Participant
    
    Warren,
    
    i am glad you have had good response with TIL…
    
    some vegas tips from someone who (yuck) had to live there…
    
    for gambling….
    
    1. stay away from the strip unless you want to see shows, go clubbing
    
    2. go out to the casinos in the burbs…the payouts and odds much better there, plus cheap eats
    
    3. only play black jack (best odds)
    
    4. go to the hot springs and take a healthy dip in the pools
    
    boots
  - December 13, 2011 at 12:46 am
    
    Quote
    boot2aboot
    Participant
    
    i was a stage-hand in Vegas…I know ALL the stories and witnessed a few more…i could tell dozens of stories just about the Wynn…just don't gamble on the strip…go to the burbs…if you want to win
  - December 13, 2011 at 12:46 am
    
    Quote
    boot2aboot
    Participant
    
    i was a stage-hand in Vegas…I know ALL the stories and witnessed a few more…i could tell dozens of stories just about the Wynn…just don't gamble on the strip…go to the burbs…if you want to win
  - December 13, 2011 at 12:46 am
    
    Quote
    boot2aboot
    Participant
    
    i was a stage-hand in Vegas…I know ALL the stories and witnessed a few more…i could tell dozens of stories just about the Wynn…just don't gamble on the strip…go to the burbs…if you want to win
  - December 13, 2011 at 4:43 pm
    
    Quote
    wgalinat
    Participant
    
    Thanks boots, I do agree with you. Warren
  - December 13, 2011 at 4:43 pm
    
    Quote
    wgalinat
    Participant
    
    Thanks boots, I do agree with you. Warren
  - December 13, 2011 at 4:43 pm
    
    Quote
    wgalinat
    Participant
    
    Thanks boots, I do agree with you. Warren
  - December 13, 2011 at 12:40 am
    
    Quote
    boot2aboot
    Participant
    
    Warren,
    
    i am glad you have had good response with TIL…
    
    some vegas tips from someone who (yuck) had to live there…
    
    for gambling….
    
    1. stay away from the strip unless you want to see shows, go clubbing
    
    2. go out to the casinos in the burbs…the payouts and odds much better there, plus cheap eats
    
    3. only play black jack (best odds)
    
    4. go to the hot springs and take a healthy dip in the pools
    
    boots
- - December 12, 2011 at 11:56 pm
  - Quote
  jag
  Participant
  Warren, thank you for posting this. I am sorry that you are going through 2ndary effects of the NCI treatment, I've been through biochemotherapy myself-which is pretty toxic, still, it is nice to see stage IVers alive so far out of treatment.
  
  God Bless, and enjoy Las Vegas!
- - December 12, 2011 at 11:56 pm
  - Quote
  jag
  Participant
  Warren, thank you for posting this. I am sorry that you are going through 2ndary effects of the NCI treatment, I've been through biochemotherapy myself-which is pretty toxic, still, it is nice to see stage IVers alive so far out of treatment.
  
  God Bless, and enjoy Las Vegas!

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