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Hello Everyone!! Haven’t been here since 2003

Forums General Melanoma Community Hello Everyone!! Haven’t been here since 2003

  • Post
    TerriNGa
    Participant

    Hello Everyone, Came here n 2003, with Mel. wide Etc clear margins. Today Iam back because mel. is back running in my body like crazy.(Just found out Friday) not going back to Emory, just went to a local Cancer Dr here in Columbus Ga,and this man is really on the ball. Get PET scan, & 2 blood works done Monday, to see if I can do a trail In  Bethesda , Maryland. For the first time since this all began, I finally feel like someone is paying attention.I do have some new questions- Like NCI in Bethesda is it any good?

    Hello Everyone, Came here n 2003, with Mel. wide Etc clear margins. Today Iam back because mel. is back running in my body like crazy.(Just found out Friday) not going back to Emory, just went to a local Cancer Dr here in Columbus Ga,and this man is really on the ball. Get PET scan, & 2 blood works done Monday, to see if I can do a trail In  Bethesda , Maryland. For the first time since this all began, I finally feel like someone is paying attention.I do have some new questions- Like NCI in Bethesda is it any good? Kinda scared of the pet scan. should I be trying to go to MD Anderson?Just any info would really help. If any of u use to be around here in 2003 I went by the name memega. Thanks everyone.

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      JoanR
      Participant

      I was anxious to open your post, but was not expecting your news. Sounds as though you have  a good onc and they have reponsing quickly. Please keep in touch and know your "old" MPIP friends as well as the new ones are here for you.

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      JoanR
      Participant

      I was anxious to open your post, but was not expecting your news. Sounds as though you have  a good onc and they have reponsing quickly. Please keep in touch and know your "old" MPIP friends as well as the new ones are here for you.

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      Linda/Kentucky
      Participant

      So sorry to hear you come back here for this reason.  I don't know anything much about Bethesda except my husand and I talked about going there when he was first diagnosed.  We chose Vanderbilt because it was closer.  Not sure if at some point we may go there??  I wish you luck in whatever you decide to do.  Keep us posted and welcome back wish it was under different circumstances.

       

      Linda/Kentucky

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      Linda/Kentucky
      Participant

      So sorry to hear you come back here for this reason.  I don't know anything much about Bethesda except my husand and I talked about going there when he was first diagnosed.  We chose Vanderbilt because it was closer.  Not sure if at some point we may go there??  I wish you luck in whatever you decide to do.  Keep us posted and welcome back wish it was under different circumstances.

       

      Linda/Kentucky

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      Tim–MRF
      Guest

      NIH has an excellent program for patients and families, but they don't have all the trials that are currently available.  Their big claim to fame is the TIL study.  It has rigorous exclusion criteria, and a lot of people get kicked out of the study before it is completed.  If you can make it all the way through, though, the results are very strong.

      The biggest thing is to go to a place that sees a lot of melanoma and has access to the best trials and studies.  M. D. Anderson is in this category.  Jeff Sosman at Vanderbilt is very much on top of his game.  Moffit, Sloan-Kettering, Penn, Dana Farber–the usual suspects. 

      If you come to Bethesday give me a shout.  I am in DC and NIH is just a few stops up on the Metro.

      Tim–MRF

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      Tim–MRF
      Guest

      NIH has an excellent program for patients and families, but they don't have all the trials that are currently available.  Their big claim to fame is the TIL study.  It has rigorous exclusion criteria, and a lot of people get kicked out of the study before it is completed.  If you can make it all the way through, though, the results are very strong.

      The biggest thing is to go to a place that sees a lot of melanoma and has access to the best trials and studies.  M. D. Anderson is in this category.  Jeff Sosman at Vanderbilt is very much on top of his game.  Moffit, Sloan-Kettering, Penn, Dana Farber–the usual suspects. 

      If you come to Bethesday give me a shout.  I am in DC and NIH is just a few stops up on the Metro.

      Tim–MRF

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