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Heavy Foot after ILP

Forums General Melanoma Community Heavy Foot after ILP

  • Post
    Camp Host
    Participant

      Just wondering how long…. it will be before the feeling in my foot returns… feels like my foot is in a brick

      toenails look like they may fall off.. Not  one of 5 docs explained this to me just what the healing process would be… 

      I know everones healing process is different… But come'on … was told the nerves re-route about 1mm a month .. 

      Just wondering how long…. it will be before the feeling in my foot returns… feels like my foot is in a brick

      toenails look like they may fall off.. Not  one of 5 docs explained this to me just what the healing process would be… 

      I know everones healing process is different… But come'on … was told the nerves re-route about 1mm a month .. 

    Viewing 5 reply threads
    • Replies
        Gene_S
        Participant

          Hi,

          I don't know anything about your problem but I was told from my dentist after some oral surgery that taking 2000 of Vitamin C with 2000 of Vitamin B12 a day  helps with nerve regrowth and speed up the healing process.  I had no sense of smell as it affected the the olfactory nerve and this vitamin regiment helped me regain my sense in a shorter period of time.  Hope this helps.

          Judy (loving wife and caregiver of Gene Stage IV)

          Gene_S
          Participant

            Hi,

            I don't know anything about your problem but I was told from my dentist after some oral surgery that taking 2000 of Vitamin C with 2000 of Vitamin B12 a day  helps with nerve regrowth and speed up the healing process.  I had no sense of smell as it affected the the olfactory nerve and this vitamin regiment helped me regain my sense in a shorter period of time.  Hope this helps.

            Judy (loving wife and caregiver of Gene Stage IV)

            Gene_S
            Participant

              Hi,

              I don't know anything about your problem but I was told from my dentist after some oral surgery that taking 2000 of Vitamin C with 2000 of Vitamin B12 a day  helps with nerve regrowth and speed up the healing process.  I had no sense of smell as it affected the the olfactory nerve and this vitamin regiment helped me regain my sense in a shorter period of time.  Hope this helps.

              Judy (loving wife and caregiver of Gene Stage IV)

                Camp Host
                Participant

                  Thank you Judy for the suggestion… I will add more C and B12 to my regiment… 

                  Judy, Best wishes for the new Year 

                  Gene_S
                  Participant

                    You are quite welcome.  I hope someone has an idea of an answer for your question.

                    Best wishes for the New Year to you and your family as well.

                    Judy

                    Vermont_Donna
                    Participant

                      Hi,

                      I have written to you before about my experience with the ILP. I too have neuropathy after my ILP….. in my right foot, and parts of my leg below my knee, mostly from the ILP but also because I am type 2 diabetic. My foot and leg feel kind of "wooden" and I have to wear shoes that tie now as slip ons fall off, etc as I cant feel the shoe on my foot. I also have leg lymphadema, and wear a compression stocking. 

                      I saw a neurologist recently who did nerve conduction studies on my leg and foot (this is two years post ILP), and he reccomended blood tests for several B vitamins, including B6 and B 12, I dont remember the other one. I had blood drawn but those somehow didnt get drawn at my last oncology checkup so I will do them at my next oncology checkup (I have a port). He said that sometimes those B vitamins can help. My neuropathy is probably NOT going to get better. its just something I live with. i dont think that the doctors know who will have these kinds of side effects but I certainly was told that neuropathy was a side effect that could happen and my symptoms started 20 days after my ILP procedure.  I was hospitalized one month after my ILP for 5 days due to severe neuropathic pain in my foot and a cellulitis infection in my leg. 

                      I am sorry that you are having such bothersome symptoms.Perhaps your oncologist can refer you to a neurologist if you havent already seen one. Also have some Vitamin B levels done once you find out which ones are importnat to test for.

                      Vermont_Donna, stage 3a, NED

                      Vermont_Donna
                      Participant

                        Hi,

                        I have written to you before about my experience with the ILP. I too have neuropathy after my ILP….. in my right foot, and parts of my leg below my knee, mostly from the ILP but also because I am type 2 diabetic. My foot and leg feel kind of "wooden" and I have to wear shoes that tie now as slip ons fall off, etc as I cant feel the shoe on my foot. I also have leg lymphadema, and wear a compression stocking. 

                        I saw a neurologist recently who did nerve conduction studies on my leg and foot (this is two years post ILP), and he reccomended blood tests for several B vitamins, including B6 and B 12, I dont remember the other one. I had blood drawn but those somehow didnt get drawn at my last oncology checkup so I will do them at my next oncology checkup (I have a port). He said that sometimes those B vitamins can help. My neuropathy is probably NOT going to get better. its just something I live with. i dont think that the doctors know who will have these kinds of side effects but I certainly was told that neuropathy was a side effect that could happen and my symptoms started 20 days after my ILP procedure.  I was hospitalized one month after my ILP for 5 days due to severe neuropathic pain in my foot and a cellulitis infection in my leg. 

                        I am sorry that you are having such bothersome symptoms.Perhaps your oncologist can refer you to a neurologist if you havent already seen one. Also have some Vitamin B levels done once you find out which ones are importnat to test for.

                        Vermont_Donna, stage 3a, NED

                        Vermont_Donna
                        Participant

                          Hi,

                          I have written to you before about my experience with the ILP. I too have neuropathy after my ILP….. in my right foot, and parts of my leg below my knee, mostly from the ILP but also because I am type 2 diabetic. My foot and leg feel kind of "wooden" and I have to wear shoes that tie now as slip ons fall off, etc as I cant feel the shoe on my foot. I also have leg lymphadema, and wear a compression stocking. 

                          I saw a neurologist recently who did nerve conduction studies on my leg and foot (this is two years post ILP), and he reccomended blood tests for several B vitamins, including B6 and B 12, I dont remember the other one. I had blood drawn but those somehow didnt get drawn at my last oncology checkup so I will do them at my next oncology checkup (I have a port). He said that sometimes those B vitamins can help. My neuropathy is probably NOT going to get better. its just something I live with. i dont think that the doctors know who will have these kinds of side effects but I certainly was told that neuropathy was a side effect that could happen and my symptoms started 20 days after my ILP procedure.  I was hospitalized one month after my ILP for 5 days due to severe neuropathic pain in my foot and a cellulitis infection in my leg. 

                          I am sorry that you are having such bothersome symptoms.Perhaps your oncologist can refer you to a neurologist if you havent already seen one. Also have some Vitamin B levels done once you find out which ones are importnat to test for.

                          Vermont_Donna, stage 3a, NED

                          Camp Host
                          Participant

                            Thank you Donna, as always your info is so very helpful… I will ask my Oncologist about the neurologist..

                            Again Thank You ..Have a wonderful Day !! 

                            Camp Host Janet 

                            Camp Host
                            Participant

                              Thank you Donna, as always your info is so very helpful… I will ask my Oncologist about the neurologist..

                              Again Thank You ..Have a wonderful Day !! 

                              Camp Host Janet 

                              Camp Host
                              Participant

                                Thank you Donna, as always your info is so very helpful… I will ask my Oncologist about the neurologist..

                                Again Thank You ..Have a wonderful Day !! 

                                Camp Host Janet 

                                Gene_S
                                Participant

                                  You are quite welcome.  I hope someone has an idea of an answer for your question.

                                  Best wishes for the New Year to you and your family as well.

                                  Judy

                                  Gene_S
                                  Participant

                                    You are quite welcome.  I hope someone has an idea of an answer for your question.

                                    Best wishes for the New Year to you and your family as well.

                                    Judy

                                    Camp Host
                                    Participant

                                      Thank you Judy for the suggestion… I will add more C and B12 to my regiment… 

                                      Judy, Best wishes for the new Year 

                                      Camp Host
                                      Participant

                                        Thank you Judy for the suggestion… I will add more C and B12 to my regiment… 

                                        Judy, Best wishes for the new Year 

                                      Ashykay
                                      Participant
                                        Hi there

                                        My Mum is on Yervoy, and after a few transfusions she started complaining of numbness in her left foot. This was scary as mum has melanoma on her sacrum which has led to pain/loss of feeling in her right leg similar to a paraplegic. However, when I looked ups some of the side effects of Yervoy, numbness is common.

                                        I hope that she does regain some feeling in her left leg – everyone’s tips here are encouraging – thanks all.

                                        Ashley

                                        Ashykay
                                        Participant
                                          Hi there

                                          My Mum is on Yervoy, and after a few transfusions she started complaining of numbness in her left foot. This was scary as mum has melanoma on her sacrum which has led to pain/loss of feeling in her right leg similar to a paraplegic. However, when I looked ups some of the side effects of Yervoy, numbness is common.

                                          I hope that she does regain some feeling in her left leg – everyone’s tips here are encouraging – thanks all.

                                          Ashley

                                            boot2aboot
                                            Participant

                                              thanks…i have hand and foot neuropathy and will up my c and bs…no sugar vitamin water is good…i also crush my cs and bs in a morter and pestle and stick it in my yogurt cause my stomach hurts…

                                              boots

                                              boot2aboot
                                              Participant

                                                thanks…i have hand and foot neuropathy and will up my c and bs…no sugar vitamin water is good…i also crush my cs and bs in a morter and pestle and stick it in my yogurt cause my stomach hurts…

                                                boots

                                                boot2aboot
                                                Participant

                                                  thanks…i have hand and foot neuropathy and will up my c and bs…no sugar vitamin water is good…i also crush my cs and bs in a morter and pestle and stick it in my yogurt cause my stomach hurts…

                                                  boots

                                                Ashykay
                                                Participant
                                                  Hi there

                                                  My Mum is on Yervoy, and after a few transfusions she started complaining of numbness in her left foot. This was scary as mum has melanoma on her sacrum which has led to pain/loss of feeling in her right leg similar to a paraplegic. However, when I looked ups some of the side effects of Yervoy, numbness is common.

                                                  I hope that she does regain some feeling in her left leg – everyone’s tips here are encouraging – thanks all.

                                                  Ashley

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