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headaches on ipi and eye problems
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headaches on ipi and eye problems

› Forums › Cutaneous Melanoma Community › headaches on ipi and eye problems

  • Post
    • January 6, 2012 at 9:29 pm
    lyndaloo
    Participant

      Hello – My husband had his third round of ipi last Friday.  I have tried to fill in his profile but cannot get it to work so here is a brief history, he had lung surgery last February and brain surgery in May followed with tomotherapy (targeted brain radiation) and whole brain radiation.  His scans a couple of months ago before starting ipi were ok,  a small tumor in his abdomen and several subcutaneous tumors.  His eyesight has been deteriorating for the last two months and the past week he has been getting headaches with eye pain. Because of th

      Hello – My husband had his third round of ipi last Friday.  I have tried to fill in his profile but cannot get it to work so here is a brief history, he had lung surgery last February and brain surgery in May followed with tomotherapy (targeted brain radiation) and whole brain radiation.  His scans a couple of months ago before starting ipi were ok,  a small tumor in his abdomen and several subcutaneous tumors.  His eyesight has been deteriorating for the last two months and the past week he has been getting headaches with eye pain. Because of the holidays we saw an on-call eye specialist on Monday and they said the eye looks ok but they figure it was a weakened muscle behind the eye and was probably due to the brain  radiation.  We have to see his opthamologist next week when he gets back from holidays.  I called our oncolgist yesterday and they said it is probably a side effect from the ipi and if the headaches get severe in nature and tylenol doesnt' help then to call back.  Our oncologist said to discontinue the steriod eye drops.  My husband cannot read, write or drive,  his eyesight seems to be deteriorating fast and I am worried.  We have to wait until next week to see someone but just wondered if anyone else has had this happen.  I know some people responded to my inquiry last week regarding this.  I am confused though because the eye doctor said they couldn't see any eye pressure yet they blamed it on the eye muscle.  FYI, the ipi seems to be working, all his subcutaneous tumors on his body have shrunk to nothing which is awesome!!  If there is any one else able to respond with anything else, I would appreciate it.

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        • January 6, 2012 at 9:39 pm
        lhaley
        Participant

          I had SRS 2.5 months. An MRI just a month ago. I was being weaned off of the steroids and was having horrible headaches and other issues.  On Tuesday I started seeing double vision. It is edema that is pushing across the eye (another MRI has been done).  They have now put the steroids up again and a discussion going to be had if they are going to do a crainectomy or to see if the steroids will help enough.  It now looks like the whites of one eye is now pink. 

          I would not assume this is Ippi. Edema occurs and could cause major issues.  When was the last brain MRI?

          Good luck, It is now Friday and there is always the emergency room.

          Linda

            • January 7, 2012 at 4:32 pm
            lyndaloo
            Participant

              Thanks for your reply Linda.  The last brain mri was just before he started ipi which was 9 weeks ago, all was clear at that point. The headaches seem to be subsiding and I hope it continues that way.  He is scheduled for a ct scan in Feb when he is done the 4 rounds of ipi at which point we will know exactly what is going on, we will continue to monitor the side effects carefully. As for your situation, I hope all goes well for you and the steroids will be enough to decrease the swelling..

              • January 7, 2012 at 4:32 pm
              lyndaloo
              Participant

                Thanks for your reply Linda.  The last brain mri was just before he started ipi which was 9 weeks ago, all was clear at that point. The headaches seem to be subsiding and I hope it continues that way.  He is scheduled for a ct scan in Feb when he is done the 4 rounds of ipi at which point we will know exactly what is going on, we will continue to monitor the side effects carefully. As for your situation, I hope all goes well for you and the steroids will be enough to decrease the swelling..

                • January 7, 2012 at 4:32 pm
                lyndaloo
                Participant

                  Thanks for your reply Linda.  The last brain mri was just before he started ipi which was 9 weeks ago, all was clear at that point. The headaches seem to be subsiding and I hope it continues that way.  He is scheduled for a ct scan in Feb when he is done the 4 rounds of ipi at which point we will know exactly what is going on, we will continue to monitor the side effects carefully. As for your situation, I hope all goes well for you and the steroids will be enough to decrease the swelling..

                • January 6, 2012 at 9:39 pm
                lhaley
                Participant

                  I had SRS 2.5 months. An MRI just a month ago. I was being weaned off of the steroids and was having horrible headaches and other issues.  On Tuesday I started seeing double vision. It is edema that is pushing across the eye (another MRI has been done).  They have now put the steroids up again and a discussion going to be had if they are going to do a crainectomy or to see if the steroids will help enough.  It now looks like the whites of one eye is now pink. 

                  I would not assume this is Ippi. Edema occurs and could cause major issues.  When was the last brain MRI?

                  Good luck, It is now Friday and there is always the emergency room.

                  Linda

                  • January 6, 2012 at 9:39 pm
                  lhaley
                  Participant

                    I had SRS 2.5 months. An MRI just a month ago. I was being weaned off of the steroids and was having horrible headaches and other issues.  On Tuesday I started seeing double vision. It is edema that is pushing across the eye (another MRI has been done).  They have now put the steroids up again and a discussion going to be had if they are going to do a crainectomy or to see if the steroids will help enough.  It now looks like the whites of one eye is now pink. 

                    I would not assume this is Ippi. Edema occurs and could cause major issues.  When was the last brain MRI?

                    Good luck, It is now Friday and there is always the emergency room.

                    Linda

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