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Has anyone done IPI with an automimmune disease
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Has anyone done IPI with an automimmune disease

› Forums › General Melanoma Community › Has anyone done IPI with an automimmune disease

  • Post
    • June 24, 2012 at 4:26 pm
    MaryEllen
    Participant

      Hi everyone,

      I would like to know if anyone has done IPI with an autoimmune disease and how you have made out. Still trying to sort out treatment options. I have very light MS and am not gene positive. Was headed for IL-2 but now doctor is looking at IPI with my neurologist.

      Many thanks to all,

      MaryEllen

       

      PS Thanks Eileen L for your quick answer. What did your Dr think about IPI and MS?

      Hi everyone,

      I would like to know if anyone has done IPI with an autoimmune disease and how you have made out. Still trying to sort out treatment options. I have very light MS and am not gene positive. Was headed for IL-2 but now doctor is looking at IPI with my neurologist.

      Many thanks to all,

      MaryEllen

       

      PS Thanks Eileen L for your quick answer. What did your Dr think about IPI and MS?

    Viewing 2 reply threads
    • Replies
        • June 25, 2012 at 4:21 am
        Swanee
        Participant

          Hi Mary Ellen…….I love your question……and I have wanted to ask it myself.  I did IPI, and was only able to receive one dose, I immediately was stricken with ulcerated colitis and IPI was stopped.  While I don't specifically suffer from auto immune disease currently….. I do have strong auto immune disorders from my father's side  and some I show weakness to and  are already experiencing   signs of having.  This has made me rethink all the treatments that have been suggested to me.  I also am a patient with "no primary" but diagnosed  as stage 4, which is very unusual and they told me my body probably fought off the primary melanoma. 

          It is now the plan for me to do the TIL but I am wondering if I might benefit from just surgery.  I was diagnosed 2 yrs. ago and the doctors are amazed that I am not further along in my disease……and I keep wondering if it is about my auto immune history.  My disease remains in the right flank, lower abdomen to upper armpit area…..I have had approximately 12 subcutaneous tumors removed  ……  but after two years does not appear to be anywhere else.  The doctors keep telling me I need a more systemic treatment, but I am wondering if lymphadenectomy surgery would be more beneficial to me right now and then wait and see what comes my way.

          I am so curious for the feedback and will be very interested in what the board has to say.  Sorry did not check to see what your specific situation is Mary Ellen…..but obviously, you are here with all of us and we are all   on this journey together.  I hope you are doing and feeling well.   Thanks for a question I've been  wanting to ask……..  Swanee

          • June 25, 2012 at 4:21 am
          Swanee
          Participant

            Hi Mary Ellen…….I love your question……and I have wanted to ask it myself.  I did IPI, and was only able to receive one dose, I immediately was stricken with ulcerated colitis and IPI was stopped.  While I don't specifically suffer from auto immune disease currently….. I do have strong auto immune disorders from my father's side  and some I show weakness to and  are already experiencing   signs of having.  This has made me rethink all the treatments that have been suggested to me.  I also am a patient with "no primary" but diagnosed  as stage 4, which is very unusual and they told me my body probably fought off the primary melanoma. 

            It is now the plan for me to do the TIL but I am wondering if I might benefit from just surgery.  I was diagnosed 2 yrs. ago and the doctors are amazed that I am not further along in my disease……and I keep wondering if it is about my auto immune history.  My disease remains in the right flank, lower abdomen to upper armpit area…..I have had approximately 12 subcutaneous tumors removed  ……  but after two years does not appear to be anywhere else.  The doctors keep telling me I need a more systemic treatment, but I am wondering if lymphadenectomy surgery would be more beneficial to me right now and then wait and see what comes my way.

            I am so curious for the feedback and will be very interested in what the board has to say.  Sorry did not check to see what your specific situation is Mary Ellen…..but obviously, you are here with all of us and we are all   on this journey together.  I hope you are doing and feeling well.   Thanks for a question I've been  wanting to ask……..  Swanee

            • June 25, 2012 at 4:21 am
            Swanee
            Participant

              Hi Mary Ellen…….I love your question……and I have wanted to ask it myself.  I did IPI, and was only able to receive one dose, I immediately was stricken with ulcerated colitis and IPI was stopped.  While I don't specifically suffer from auto immune disease currently….. I do have strong auto immune disorders from my father's side  and some I show weakness to and  are already experiencing   signs of having.  This has made me rethink all the treatments that have been suggested to me.  I also am a patient with "no primary" but diagnosed  as stage 4, which is very unusual and they told me my body probably fought off the primary melanoma. 

              It is now the plan for me to do the TIL but I am wondering if I might benefit from just surgery.  I was diagnosed 2 yrs. ago and the doctors are amazed that I am not further along in my disease……and I keep wondering if it is about my auto immune history.  My disease remains in the right flank, lower abdomen to upper armpit area…..I have had approximately 12 subcutaneous tumors removed  ……  but after two years does not appear to be anywhere else.  The doctors keep telling me I need a more systemic treatment, but I am wondering if lymphadenectomy surgery would be more beneficial to me right now and then wait and see what comes my way.

              I am so curious for the feedback and will be very interested in what the board has to say.  Sorry did not check to see what your specific situation is Mary Ellen…..but obviously, you are here with all of us and we are all   on this journey together.  I hope you are doing and feeling well.   Thanks for a question I've been  wanting to ask……..  Swanee

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