halfway high dose interferon and feel totally exhausted

a couple of things that helped our son was to take his IV later in the day, he would then go home eat a little then go to bed for the night. Also i am sure you have been told lots of fluids, and bananas seem to help because of their Potassium which can help lessen side effects. Not sure if its fact or myth but seemed to help in our situation.

best wishes

James

a couple of things that helped our son was to take his IV later in the day, he would then go home eat a little then go to bed for the night. Also i am sure you have been told lots of fluids, and bananas seem to help because of their Potassium which can help lessen side effects. Not sure if its fact or myth but seemed to help in our situation.

best wishes

James

a couple of things that helped our son was to take his IV later in the day, he would then go home eat a little then go to bed for the night. Also i am sure you have been told lots of fluids, and bananas seem to help because of their Potassium which can help lessen side effects. Not sure if its fact or myth but seemed to help in our situation.

best wishes

James

How much water are you getting in per day?  Are they giving you IV fluids before each infusion?  If they're giving you 500ml ask if they'll give you a liter.  My husband TJ is 9 weeks from finishing his year.   He measures out a gallon of water a day and tries to get it in before the end of his workday. 

I have heard of some patients trying Ritalin during treatment.  It would help with your energy and the brain fog that many people experience as the weeks go on.  

Beginning week 3 means you get to start counting down the days…. half way there!!  I remember that milestone and it felt good!  Just think on Friday you'll be 75% done with the daily infusions.

Hang in there it will be different when the injections start. 

Kelly 

How much water are you getting in per day?  Are they giving you IV fluids before each infusion?  If they're giving you 500ml ask if they'll give you a liter.  My husband TJ is 9 weeks from finishing his year.   He measures out a gallon of water a day and tries to get it in before the end of his workday. 

I have heard of some patients trying Ritalin during treatment.  It would help with your energy and the brain fog that many people experience as the weeks go on.  

Beginning week 3 means you get to start counting down the days…. half way there!!  I remember that milestone and it felt good!  Just think on Friday you'll be 75% done with the daily infusions.

Hang in there it will be different when the injections start. 

Kelly 

How much water are you getting in per day?  Are they giving you IV fluids before each infusion?  If they're giving you 500ml ask if they'll give you a liter.  My husband TJ is 9 weeks from finishing his year.   He measures out a gallon of water a day and tries to get it in before the end of his workday. 

I have heard of some patients trying Ritalin during treatment.  It would help with your energy and the brain fog that many people experience as the weeks go on.  

Beginning week 3 means you get to start counting down the days…. half way there!!  I remember that milestone and it felt good!  Just think on Friday you'll be 75% done with the daily infusions.

Hang in there it will be different when the injections start. 

Kelly 

The point you are at was my worst point.  It got better by the last week.  You can do this.  Eat what tastes good to you and drink lots.  Listen to your body and don't feel bad about sleeping when you need to.  I really don't remember much about that month, but I remember being so glad it was over.  Keep up the good work and it will be over before you know it!

Amy S. in Michigan

The point you are at was my worst point.  It got better by the last week.  You can do this.  Eat what tastes good to you and drink lots.  Listen to your body and don't feel bad about sleeping when you need to.  I really don't remember much about that month, but I remember being so glad it was over.  Keep up the good work and it will be over before you know it!

Amy S. in Michigan

The point you are at was my worst point.  It got better by the last week.  You can do this.  Eat what tastes good to you and drink lots.  Listen to your body and don't feel bad about sleeping when you need to.  I really don't remember much about that month, but I remember being so glad it was over.  Keep up the good work and it will be over before you know it!

Amy S. in Michigan

The reason for fluids is to flush the intron through your body as fast as possible.  Don't worry about "flushing" it out equals dilution.  No matter how fast or slow it goes through, your body will metabolize it equally. 

One can easily determine if water intake is adequate.  What you want is water clear urine with no smell.  Urine is dark and stinks?  More water. Water intake will modify urine in less than an hour.  The importance of the fluid is the longer intron is in your body, the more pronounced the side effects…………………..so flush it on out and the time window is best four hours following infusion.  So clear your urine as soon as possible folowing infusion.

Three things about fatigue:

 One is ask for a vitamin B-12 shot…………….you will be amazed: get the shot and not an  IV, IV makes more work and takes longer for the nurses.

 Two, ask for an oxygen (O2) script, and when you are weary, huff up on the oxygen.

 Three right after hitting the o2, go for a short, even three to five minute walk outdoors………….drag yourself if you must, but it WILL help knock down the fatigue.

As far as appetite, throw out the pizza and eat the box it came in………….it will taste better (kidding). .  Put your ensure or whatever your choice of nutrient drink is in the fridge until it is blistering cold, then chug it.

Keep going, you are almost there.

Cheers,

Charlie S

The reason for fluids is to flush the intron through your body as fast as possible.  Don't worry about "flushing" it out equals dilution.  No matter how fast or slow it goes through, your body will metabolize it equally. 

One can easily determine if water intake is adequate.  What you want is water clear urine with no smell.  Urine is dark and stinks?  More water. Water intake will modify urine in less than an hour.  The importance of the fluid is the longer intron is in your body, the more pronounced the side effects…………………..so flush it on out and the time window is best four hours following infusion.  So clear your urine as soon as possible folowing infusion.

Three things about fatigue:

 One is ask for a vitamin B-12 shot…………….you will be amazed: get the shot and not an  IV, IV makes more work and takes longer for the nurses.

 Two, ask for an oxygen (O2) script, and when you are weary, huff up on the oxygen.

 Three right after hitting the o2, go for a short, even three to five minute walk outdoors………….drag yourself if you must, but it WILL help knock down the fatigue.

As far as appetite, throw out the pizza and eat the box it came in………….it will taste better (kidding). .  Put your ensure or whatever your choice of nutrient drink is in the fridge until it is blistering cold, then chug it.

Keep going, you are almost there.

Cheers,

Charlie S

The reason for fluids is to flush the intron through your body as fast as possible.  Don't worry about "flushing" it out equals dilution.  No matter how fast or slow it goes through, your body will metabolize it equally. 

One can easily determine if water intake is adequate.  What you want is water clear urine with no smell.  Urine is dark and stinks?  More water. Water intake will modify urine in less than an hour.  The importance of the fluid is the longer intron is in your body, the more pronounced the side effects…………………..so flush it on out and the time window is best four hours following infusion.  So clear your urine as soon as possible folowing infusion.

Three things about fatigue:

 One is ask for a vitamin B-12 shot…………….you will be amazed: get the shot and not an  IV, IV makes more work and takes longer for the nurses.

 Two, ask for an oxygen (O2) script, and when you are weary, huff up on the oxygen.

 Three right after hitting the o2, go for a short, even three to five minute walk outdoors………….drag yourself if you must, but it WILL help knock down the fatigue.

As far as appetite, throw out the pizza and eat the box it came in………….it will taste better (kidding). .  Put your ensure or whatever your choice of nutrient drink is in the fridge until it is blistering cold, then chug it.

Keep going, you are almost there.

Cheers,

Charlie S

Know you are normal and it will get better! By week 3, I was crying when hubby woke me up and having anxiety attacks when I got to the chemo floor. Ativan through the IV was my new best friend. You are almost there. I went on ritalin to get me through the lower doses, but I doubt ritalin would have helped during the first month. If you need to function more than you currently are, it is worth a try!

Know you are normal and it will get better! By week 3, I was crying when hubby woke me up and having anxiety attacks when I got to the chemo floor. Ativan through the IV was my new best friend. You are almost there. I went on ritalin to get me through the lower doses, but I doubt ritalin would have helped during the first month. If you need to function more than you currently are, it is worth a try!

Know you are normal and it will get better! By week 3, I was crying when hubby woke me up and having anxiety attacks when I got to the chemo floor. Ativan through the IV was my new best friend. You are almost there. I went on ritalin to get me through the lower doses, but I doubt ritalin would have helped during the first month. If you need to function more than you currently are, it is worth a try!

Hi,

I guess you treatment with ifn is done now?

I also went through a year of this 30 MIU induction, 18 MIU maintanence. A very high dose if you ask me.

You are back to normal by now right. I lost 35 pounds (16kg) in a year but got it back in about 4 months once my therapy stopped.

Now i am trying to do a research about all the people who went through this therapy in order to gain some info that could help people who are about to start the treatment or currently on it. Is anyone interested to participate in my research?

The ultimate goal  is to help other people with our stories , suggestions and understanding.

May you all be well,

Claude

Hi,

I guess you treatment with ifn is done now?

I also went through a year of this 30 MIU induction, 18 MIU maintanence. A very high dose if you ask me.

You are back to normal by now right. I lost 35 pounds (16kg) in a year but got it back in about 4 months once my therapy stopped.

Now i am trying to do a research about all the people who went through this therapy in order to gain some info that could help people who are about to start the treatment or currently on it. Is anyone interested to participate in my research?

The ultimate goal  is to help other people with our stories , suggestions and understanding.

May you all be well,

Claude

Hi,

I guess you treatment with ifn is done now?

I also went through a year of this 30 MIU induction, 18 MIU maintanence. A very high dose if you ask me.

You are back to normal by now right. I lost 35 pounds (16kg) in a year but got it back in about 4 months once my therapy stopped.

Now i am trying to do a research about all the people who went through this therapy in order to gain some info that could help people who are about to start the treatment or currently on it. Is anyone interested to participate in my research?

The ultimate goal  is to help other people with our stories , suggestions and understanding.

May you all be well,

Claude