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Good News??? Cyberknife did not work, WBRT being done.
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Good News??? Cyberknife did not work, WBRT being done.

› Forums › General Melanoma Community › Good News??? Cyberknife did not work, WBRT being done.

  • Post
    • October 17, 2014 at 6:26 pm
    ABELL
    Participant

      Friend who was having trouble thinking, walking and talking has now made a turn for the better.

      The cyberknife did not  work, the tumors never shrunk and were pressing on new parts of the brain that control motor skills & body movements, thus the issues stated above. They discontinued Yervoy for the time being, until the radiation is done.

      The docs kept thinking it was just swelling of the brain until they did another MRI which revealed the fail of the cyberknife. She is coughing a lot & out of breath (tumors in the lungs)

      The put her through 10 sessions of WBRT, and after the 3rd one, was welcoming visitors again after a long 2 months of agony. She is able to walk (with a walker), text, talk and make descions in regards to her family and medical treatment again. She seems almost back to her normal (somewhat) self.

      She starts chemo next week… Is it false hope that she could be heading towards recovery & a longer life expectancy? Or is this something normally done to keep her comfortable for the time she has left.

      All these treatments are so confusing! When you think of treatment, you think of a cure or that they are going to fix her… That doesn't seem to be the case with Melanoma.

      Any ideas? Thoughts?

      I'm so happy she is finally comfortable again, but want to be prepared for a relapse in her condition.

       

      Thanks!!

       

      Amanda

    Viewing 2 reply threads
    • Replies
        • October 17, 2014 at 6:39 pm
        Bubbles
        Participant

          Glad things are looking better.  What is the "chemo" they are planning to start?  Is your friend BRAF positive?  If so, has she been on the BRAF inhibitors?  If positive she could try those.  If she has already failed those, or is not BRAF positve, and since she already failred yervoy…then she qualifies for Keytruda.

          Wishing you and your friend my best.  Celeste

            • October 17, 2014 at 11:02 pm
            tschmith
            Participant

              Sounds like your friend is strong and a fighter.  I hope whatever the chemo is works.  Temodar? (Not sure I spelled it correctly.)  I'm currently getting Keytruda infusions.  It's an immunotherapy and I'm seeing positive results.

              Best wishes to you and your friend.

              Terrie

              • October 17, 2014 at 11:02 pm
              tschmith
              Participant

                Sounds like your friend is strong and a fighter.  I hope whatever the chemo is works.  Temodar? (Not sure I spelled it correctly.)  I'm currently getting Keytruda infusions.  It's an immunotherapy and I'm seeing positive results.

                Best wishes to you and your friend.

                Terrie

                • October 17, 2014 at 11:02 pm
                tschmith
                Participant

                  Sounds like your friend is strong and a fighter.  I hope whatever the chemo is works.  Temodar? (Not sure I spelled it correctly.)  I'm currently getting Keytruda infusions.  It's an immunotherapy and I'm seeing positive results.

                  Best wishes to you and your friend.

                  Terrie

                • October 17, 2014 at 6:39 pm
                Bubbles
                Participant

                  Glad things are looking better.  What is the "chemo" they are planning to start?  Is your friend BRAF positive?  If so, has she been on the BRAF inhibitors?  If positive she could try those.  If she has already failed those, or is not BRAF positve, and since she already failred yervoy…then she qualifies for Keytruda.

                  Wishing you and your friend my best.  Celeste

                  • October 17, 2014 at 6:39 pm
                  Bubbles
                  Participant

                    Glad things are looking better.  What is the "chemo" they are planning to start?  Is your friend BRAF positive?  If so, has she been on the BRAF inhibitors?  If positive she could try those.  If she has already failed those, or is not BRAF positve, and since she already failred yervoy…then she qualifies for Keytruda.

                    Wishing you and your friend my best.  Celeste

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