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Good news and some questions

Forums General Melanoma Community Good news and some questions

  • Post
    Marianne quinn
    Participant

      My husband was diagnosed with stage 3C melanoma under his thumbnail in Sepetember 2013.. After a partial amuptation and a lymphendectomy, he started on the ip vs. Interferon trial. He completed the induction phase of 10 mg. ipi and was able to manage the side effects. In week 14, a CAT scan showed a small metastasis in his liver. He was removed from the trial and did not receive any maintenance doses. We were devastated by the news and the removal from the trial. He underwent successful microwave ablation of the lesion. Our Christmas present was a clean scan today-nine months after progession on ipi. His 3rd clean scan. Our doctor is optimistic. It was nice to hear after all the negative stuff you hear when first diagnosed.

      My question is does anyone now if the maintenance doses are effective?

      I think that my husband is a responder to ipi. I would like BMS to examine his blood.I think it would be provide beneficial information  to BMS. Does anyone have an idea of how to make that happen? We have Kaiser and I am basically pleased with them, but I doubt if Kaiser would point us in the direction to get this done. I don't think they would be opposed to it either.

      Wishing all of you mel warriors and their families a healthy new year.

    Viewing 2 reply threads
    • Replies
        arthurjedi007
        Participant

          When ipi failed me I remember asking about the I think it is 4 month maintenance dose and my doc said he never does it and insurance rarely approves it. Since it didn't work for me anyway it was pretty much a moot point but I do remember asking. But that was for the FDA approved dosage and stuff.

          Artie

           

          arthurjedi007
          Participant

            When ipi failed me I remember asking about the I think it is 4 month maintenance dose and my doc said he never does it and insurance rarely approves it. Since it didn't work for me anyway it was pretty much a moot point but I do remember asking. But that was for the FDA approved dosage and stuff.

            Artie

             

            arthurjedi007
            Participant

              When ipi failed me I remember asking about the I think it is 4 month maintenance dose and my doc said he never does it and insurance rarely approves it. Since it didn't work for me anyway it was pretty much a moot point but I do remember asking. But that was for the FDA approved dosage and stuff.

              Artie

               

          Viewing 2 reply threads
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