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Good News

Forums General Melanoma Community Good News

  • Post
    s Mom
    Participant

      Brain MRI is clear (last one was February 3rd)!!!  Jeff will have body scans at the end of this month, and we are hoping to see some shrinkage of those liver and lung tumors.  RELIEF!!!!

      Bridgette (Jeff's Mom)

      Brain MRI is clear (last one was February 3rd)!!!  Jeff will have body scans at the end of this month, and we are hoping to see some shrinkage of those liver and lung tumors.  RELIEF!!!!

      Bridgette (Jeff's Mom)

    Viewing 29 reply threads
    • Replies
        hope4cure1
        Participant

          Awesome!!!   My best to your family 🙂

          Hope

          hope4cure1
          Participant

            Awesome!!!   My best to your family 🙂

            Hope

              s Mom
              Participant

                Hi Hope,

                Thanks for the kind words – we are just so happy to finally get some good news (it's been pretty scary).

                I read your profile and see that your doctor is Dr. Omid.  What do you think of him?  Jeff is going to LA to talk to him in May (2nd opinion – consultation).  Dr. Omid seems to be on the cutting edge of treatment options and has a lot of trials available.  Any input, opinions, etc. that you could share with us would be so appreciated.  

                Thanks in advance,

                Bridgette

                s Mom
                Participant

                  Hi Hope,

                  Thanks for the kind words – we are just so happy to finally get some good news (it's been pretty scary).

                  I read your profile and see that your doctor is Dr. Omid.  What do you think of him?  Jeff is going to LA to talk to him in May (2nd opinion – consultation).  Dr. Omid seems to be on the cutting edge of treatment options and has a lot of trials available.  Any input, opinions, etc. that you could share with us would be so appreciated.  

                  Thanks in advance,

                  Bridgette

                  killmel
                  Participant

                    Hi Bridgette,

                     

                    Since your son is going to be in LA, I would have him see Dr. Ribas, at UCLA Medical Center. [email protected]

                    Dr. Tony Ribas at UCLA is great, and UCLA are a leading research and treatment center in California. Dr. Ribas is very caring and has many of the newest drug  clinical trials plus standard therapies. Dr. Ribas has been in the news for being a contributor to the latest finding in melanoma research.

                    For what it  is worth, I have also seen Dr.Hamid. I found him not as caring as Dr. Ribas and seems very busy with not much time to spare. Angeles Clinic is very commercial and motivated more by profit.

                    My preference is Dr. Ribas. If you email him, he will email you back. If it I were your son, I would first & foremeost see Dr. Ribas.

                    Good Luck

                    killmel
                    Participant

                      Hi Bridgette,

                       

                      Since your son is going to be in LA, I would have him see Dr. Ribas, at UCLA Medical Center. [email protected]

                      Dr. Tony Ribas at UCLA is great, and UCLA are a leading research and treatment center in California. Dr. Ribas is very caring and has many of the newest drug  clinical trials plus standard therapies. Dr. Ribas has been in the news for being a contributor to the latest finding in melanoma research.

                      For what it  is worth, I have also seen Dr.Hamid. I found him not as caring as Dr. Ribas and seems very busy with not much time to spare. Angeles Clinic is very commercial and motivated more by profit.

                      My preference is Dr. Ribas. If you email him, he will email you back. If it I were your son, I would first & foremeost see Dr. Ribas.

                      Good Luck

                      killmel
                      Participant

                        Hi Bridgette,

                         

                        Since your son is going to be in LA, I would have him see Dr. Ribas, at UCLA Medical Center. [email protected]

                        Dr. Tony Ribas at UCLA is great, and UCLA are a leading research and treatment center in California. Dr. Ribas is very caring and has many of the newest drug  clinical trials plus standard therapies. Dr. Ribas has been in the news for being a contributor to the latest finding in melanoma research.

                        For what it  is worth, I have also seen Dr.Hamid. I found him not as caring as Dr. Ribas and seems very busy with not much time to spare. Angeles Clinic is very commercial and motivated more by profit.

                        My preference is Dr. Ribas. If you email him, he will email you back. If it I were your son, I would first & foremeost see Dr. Ribas.

                        Good Luck

                        s Mom
                        Participant

                          Hi Hope,

                          Thanks for the kind words – we are just so happy to finally get some good news (it's been pretty scary).

                          I read your profile and see that your doctor is Dr. Omid.  What do you think of him?  Jeff is going to LA to talk to him in May (2nd opinion – consultation).  Dr. Omid seems to be on the cutting edge of treatment options and has a lot of trials available.  Any input, opinions, etc. that you could share with us would be so appreciated.  

                          Thanks in advance,

                          Bridgette

                        hope4cure1
                        Participant

                          Awesome!!!   My best to your family 🙂

                          Hope

                          Richard_K
                          Participant
                            Bridgette
                            Great news. Thanks for sharing
                            Dick
                            Richard_K
                            Participant
                              Bridgette
                              Great news. Thanks for sharing
                              Dick
                              Richard_K
                              Participant
                                Bridgette
                                Great news. Thanks for sharing
                                Dick
                                Lori C
                                Participant

                                  Much due good news !  Glad to hear it and healing thoughts for continued good results.

                                   

                                  Lori, caregiver to Will

                                  Lori C
                                  Participant

                                    Much due good news !  Glad to hear it and healing thoughts for continued good results.

                                     

                                    Lori, caregiver to Will

                                    Lori C
                                    Participant

                                      Much due good news !  Glad to hear it and healing thoughts for continued good results.

                                       

                                      Lori, caregiver to Will

                                      JerryfromFauq
                                      Participant

                                        Great on the MRI.  now anything from no groth to shrinikage will be good.

                                          Karin L
                                          Participant

                                            So glad for the good news!

                                            Karin

                                            Karin L
                                            Participant

                                              So glad for the good news!

                                              Karin

                                              Karin L
                                              Participant

                                                So glad for the good news!

                                                Karin

                                              JerryfromFauq
                                              Participant

                                                Great on the MRI.  now anything from no groth to shrinikage will be good.

                                                JerryfromFauq
                                                Participant

                                                  Great on the MRI.  now anything from no groth to shrinikage will be good.

                                                  triciad
                                                  Participant

                                                    Congratulations on the wonderful news!  Prayers that the scans show good news, too!

                                                    Tricia

                                                    triciad
                                                    Participant

                                                      Congratulations on the wonderful news!  Prayers that the scans show good news, too!

                                                      Tricia

                                                      triciad
                                                      Participant

                                                        Congratulations on the wonderful news!  Prayers that the scans show good news, too!

                                                        Tricia

                                                        aldakota22
                                                        Participant

                                                          Great news keep it comming.Know you feel a sense of relief that things are finally heading in the right direction.My prayers and thoughts go out to Jeff and family.   Al

                                                          aldakota22
                                                          Participant

                                                            Great news keep it comming.Know you feel a sense of relief that things are finally heading in the right direction.My prayers and thoughts go out to Jeff and family.   Al

                                                            aldakota22
                                                            Participant

                                                              Great news keep it comming.Know you feel a sense of relief that things are finally heading in the right direction.My prayers and thoughts go out to Jeff and family.   Al

                                                              bikerwife
                                                              Participant
                                                                Oh Mrs. Bridgette I am so happy for you and your family. Our God is awesome may he continue to bless you with healing hands.
                                                                bikerwife
                                                                Participant
                                                                  Oh Mrs. Bridgette I am so happy for you and your family. Our God is awesome may he continue to bless you with healing hands.
                                                                    Kelly7
                                                                    Participant

                                                                      Bridgette,

                                                                       

                                                                      That is great news! I know its been awhile since you have had good news! So, please celebrate this moment!

                                                                       

                                                                      Kelly:)

                                                                      Kelly7
                                                                      Participant

                                                                        Bridgette,

                                                                         

                                                                        That is great news! I know its been awhile since you have had good news! So, please celebrate this moment!

                                                                         

                                                                        Kelly:)

                                                                        Kelly7
                                                                        Participant

                                                                          Bridgette,

                                                                           

                                                                          That is great news! I know its been awhile since you have had good news! So, please celebrate this moment!

                                                                           

                                                                          Kelly:)

                                                                          s Mom
                                                                          Participant

                                                                            Hi Kelly 🙂

                                                                            How is your brother doing?  How was that first Ippi infusion?  How has he been feeling?  I hope he's doing well – what dosage is he on?

                                                                            Any labor pains yet (I ask my daughter that almost every day – lol)?  I think of you often, and I am hoping and praying everything is going well with you, too.  Cannot wait to hear about that beautiful baby 🙂  Keep me updated – God Bless!!

                                                                            Bridgette (Jeff's Mom)

                                                                            s Mom
                                                                            Participant

                                                                              Hi Kelly 🙂

                                                                              How is your brother doing?  How was that first Ippi infusion?  How has he been feeling?  I hope he's doing well – what dosage is he on?

                                                                              Any labor pains yet (I ask my daughter that almost every day – lol)?  I think of you often, and I am hoping and praying everything is going well with you, too.  Cannot wait to hear about that beautiful baby 🙂  Keep me updated – God Bless!!

                                                                              Bridgette (Jeff's Mom)

                                                                              s Mom
                                                                              Participant

                                                                                Hi Kelly 🙂

                                                                                How is your brother doing?  How was that first Ippi infusion?  How has he been feeling?  I hope he's doing well – what dosage is he on?

                                                                                Any labor pains yet (I ask my daughter that almost every day – lol)?  I think of you often, and I am hoping and praying everything is going well with you, too.  Cannot wait to hear about that beautiful baby 🙂  Keep me updated – God Bless!!

                                                                                Bridgette (Jeff's Mom)

                                                                              bikerwife
                                                                              Participant
                                                                                Oh Mrs. Bridgette I am so happy for you and your family. Our God is awesome may he continue to bless you with healing hands.
                                                                                hope4cure1
                                                                                Participant

                                                                                  Hi Bridgette,

                                                                                  My husband is being seen by Dr. Boasberg and Dr. Hamid at Angeles Clinic. They are also involved in cutting-edge research and have been generous with their time, support, and knowledge.  We have been very comfortable with both of them, and have found them to be accessible,  warm, and on top of things.  We are happy with the therapies and numerous clinical trials available.  The staff members have also become like family to us.  My husband has been NED since July.  We, obviously, couldn't be happier.

                                                                                  Preference in doctors is very personal.  At my urging, we went to Dr. Ribas at UCLA for a second opinion.  My husband left there feeling downhearted and without hope.  I felt horrible for urging him to go there.  I don't know if he'd ever elect to go back there.  Does that mean that Ribas isn't a great doctor?  Certainly NOT!!!!!  Would I try to discourage you from going to UCLA?  No!  You will find positive and negative posts in this forum on many doctors and clinics. 

                                                                                  The important step your son is taking is in getting a second opinion.  "Anonymous" has his/her opinion.  That's natural.  However, I don't think your son will go wrong at either Angeles or UCLA.  Have faith and move forward.  There are happy and sad experiences at both UCLA and Angeles……and everywhere else, for that matter.  You could go crazy second-guessing your decisions.

                                                                                  In the meantime, enjoy your good news, and be very mindful of these happy times!!!

                                                                                  Hope

                                                                                  hope4cure1
                                                                                  Participant

                                                                                    Hi Bridgette,

                                                                                    My husband is being seen by Dr. Boasberg and Dr. Hamid at Angeles Clinic. They are also involved in cutting-edge research and have been generous with their time, support, and knowledge.  We have been very comfortable with both of them, and have found them to be accessible,  warm, and on top of things.  We are happy with the therapies and numerous clinical trials available.  The staff members have also become like family to us.  My husband has been NED since July.  We, obviously, couldn't be happier.

                                                                                    Preference in doctors is very personal.  At my urging, we went to Dr. Ribas at UCLA for a second opinion.  My husband left there feeling downhearted and without hope.  I felt horrible for urging him to go there.  I don't know if he'd ever elect to go back there.  Does that mean that Ribas isn't a great doctor?  Certainly NOT!!!!!  Would I try to discourage you from going to UCLA?  No!  You will find positive and negative posts in this forum on many doctors and clinics. 

                                                                                    The important step your son is taking is in getting a second opinion.  "Anonymous" has his/her opinion.  That's natural.  However, I don't think your son will go wrong at either Angeles or UCLA.  Have faith and move forward.  There are happy and sad experiences at both UCLA and Angeles……and everywhere else, for that matter.  You could go crazy second-guessing your decisions.

                                                                                    In the meantime, enjoy your good news, and be very mindful of these happy times!!!

                                                                                    Hope

                                                                                      s Mom
                                                                                      Participant

                                                                                        Thank you, Hope – I love your name 🙂

                                                                                        Jeff will be seeing both doctors (Dr. Ribas squeezed him in) in Los Angeles.  I agree having a second opinion is what's important and choosing a doctor is a very personal decision.  That's why it's up to Jeff to decide – he gets to have a little bit of control in a situation where control is in very short supply.  We feel so fortunate to have the opportunity to see these experts and to "pick" their brains as to next steps on a journey we never wanted to travel.  

                                                                                        Glad to hear of your husband's NED status – that is SO wonderful and makes me hopeful that Dr. Hamid might help our Jeff get to NED too. 

                                                                                        We will enjoy these happy days and our recent good news and, like you, hope for a cure…soon!

                                                                                        Take care and thanks again,

                                                                                        Bridgette (Jeff's Mom)

                                                                                         

                                                                                        s Mom
                                                                                        Participant

                                                                                          Thank you, Hope – I love your name 🙂

                                                                                          Jeff will be seeing both doctors (Dr. Ribas squeezed him in) in Los Angeles.  I agree having a second opinion is what's important and choosing a doctor is a very personal decision.  That's why it's up to Jeff to decide – he gets to have a little bit of control in a situation where control is in very short supply.  We feel so fortunate to have the opportunity to see these experts and to "pick" their brains as to next steps on a journey we never wanted to travel.  

                                                                                          Glad to hear of your husband's NED status – that is SO wonderful and makes me hopeful that Dr. Hamid might help our Jeff get to NED too. 

                                                                                          We will enjoy these happy days and our recent good news and, like you, hope for a cure…soon!

                                                                                          Take care and thanks again,

                                                                                          Bridgette (Jeff's Mom)

                                                                                           

                                                                                          s Mom
                                                                                          Participant

                                                                                            Thank you, Hope – I love your name 🙂

                                                                                            Jeff will be seeing both doctors (Dr. Ribas squeezed him in) in Los Angeles.  I agree having a second opinion is what's important and choosing a doctor is a very personal decision.  That's why it's up to Jeff to decide – he gets to have a little bit of control in a situation where control is in very short supply.  We feel so fortunate to have the opportunity to see these experts and to "pick" their brains as to next steps on a journey we never wanted to travel.  

                                                                                            Glad to hear of your husband's NED status – that is SO wonderful and makes me hopeful that Dr. Hamid might help our Jeff get to NED too. 

                                                                                            We will enjoy these happy days and our recent good news and, like you, hope for a cure…soon!

                                                                                            Take care and thanks again,

                                                                                            Bridgette (Jeff's Mom)

                                                                                             

                                                                                          hope4cure1
                                                                                          Participant

                                                                                            Hi Bridgette,

                                                                                            My husband is being seen by Dr. Boasberg and Dr. Hamid at Angeles Clinic. They are also involved in cutting-edge research and have been generous with their time, support, and knowledge.  We have been very comfortable with both of them, and have found them to be accessible,  warm, and on top of things.  We are happy with the therapies and numerous clinical trials available.  The staff members have also become like family to us.  My husband has been NED since July.  We, obviously, couldn't be happier.

                                                                                            Preference in doctors is very personal.  At my urging, we went to Dr. Ribas at UCLA for a second opinion.  My husband left there feeling downhearted and without hope.  I felt horrible for urging him to go there.  I don't know if he'd ever elect to go back there.  Does that mean that Ribas isn't a great doctor?  Certainly NOT!!!!!  Would I try to discourage you from going to UCLA?  No!  You will find positive and negative posts in this forum on many doctors and clinics. 

                                                                                            The important step your son is taking is in getting a second opinion.  "Anonymous" has his/her opinion.  That's natural.  However, I don't think your son will go wrong at either Angeles or UCLA.  Have faith and move forward.  There are happy and sad experiences at both UCLA and Angeles……and everywhere else, for that matter.  You could go crazy second-guessing your decisions.

                                                                                            In the meantime, enjoy your good news, and be very mindful of these happy times!!!

                                                                                            Hope

                                                                                            LynnLuc
                                                                                            Participant

                                                                                              Great News!

                                                                                              LynnLuc
                                                                                              Participant

                                                                                                Great News!

                                                                                                  deardad
                                                                                                  Participant

                                                                                                    Wonderful news, hope it continues to work for years.

                                                                                                    Nahmi from Melbourne

                                                                                                    deardad
                                                                                                    Participant

                                                                                                      Wonderful news, hope it continues to work for years.

                                                                                                      Nahmi from Melbourne

                                                                                                      deardad
                                                                                                      Participant

                                                                                                        Wonderful news, hope it continues to work for years.

                                                                                                        Nahmi from Melbourne

                                                                                                      LynnLuc
                                                                                                      Participant

                                                                                                        Great News!

                                                                                                        MeNDave
                                                                                                        Participant

                                                                                                          That's wonderful!   I hope you contine to keep getting good news!

                                                                                                          All our best,

                                                                                                          Maria

                                                                                                            killmel
                                                                                                            Participant

                                                                                                              Hi Maria,

                                                                                                              It was very smart of your family to see both Dr. Hamid & Dr. Ribas. You are absolutely correct that picking a doctor is very personal & Jeff should do that.

                                                                                                              My own experience is that I too had 2nd opinions with both doctors & I picked Dr. Ribas. I did not care for Dr.Hamids beside manner. After asking Dr.Hamid  questions about the trial, I felt that he was pushing some clinical trials because he needed to fill some slots. Dr.Hamid seemed impatient and bothered that I was questioning him.

                                                                                                              I am in the Braf/Mek trial with Dr. Ribas and have remained NED for 8 months. I love Dr. Ribas because he really cares. He spends the time with you and your family. UCLA  has the newest trials. Many trials sponsors respect Dr.Ribas research & he gets  the news trials that are coming out.

                                                                                                              I live in Las Vegas and have to pay for airfare to UCLA.

                                                                                                              I read one of your  earlier post about PALS. Is Jeff getting his airfare to LA picked up by any cancer helping group?

                                                                                                              God Bless Jeff & his family.

                                                                                                              Ann

                                                                                                              killmel
                                                                                                              Participant

                                                                                                                Bridgette, I am sorry for the mistake with your name.

                                                                                                                NYKaren
                                                                                                                Participant
                                                                                                                  Bridgette,
                                                                                                                  What great news. I’m so happy for you all!
                                                                                                                  NYKaren
                                                                                                                  Participant
                                                                                                                    Bridgette,
                                                                                                                    What great news. I’m so happy for you all!
                                                                                                                    NYKaren
                                                                                                                    Participant
                                                                                                                      Bridgette,
                                                                                                                      What great news. I’m so happy for you all!
                                                                                                                      killmel
                                                                                                                      Participant

                                                                                                                        Bridgette, I am sorry for the mistake with your name.

                                                                                                                        killmel
                                                                                                                        Participant

                                                                                                                          Bridgette, I am sorry for the mistake with your name.

                                                                                                                          killmel
                                                                                                                          Participant

                                                                                                                            Hi Maria,

                                                                                                                            It was very smart of your family to see both Dr. Hamid & Dr. Ribas. You are absolutely correct that picking a doctor is very personal & Jeff should do that.

                                                                                                                            My own experience is that I too had 2nd opinions with both doctors & I picked Dr. Ribas. I did not care for Dr.Hamids beside manner. After asking Dr.Hamid  questions about the trial, I felt that he was pushing some clinical trials because he needed to fill some slots. Dr.Hamid seemed impatient and bothered that I was questioning him.

                                                                                                                            I am in the Braf/Mek trial with Dr. Ribas and have remained NED for 8 months. I love Dr. Ribas because he really cares. He spends the time with you and your family. UCLA  has the newest trials. Many trials sponsors respect Dr.Ribas research & he gets  the news trials that are coming out.

                                                                                                                            I live in Las Vegas and have to pay for airfare to UCLA.

                                                                                                                            I read one of your  earlier post about PALS. Is Jeff getting his airfare to LA picked up by any cancer helping group?

                                                                                                                            God Bless Jeff & his family.

                                                                                                                            Ann

                                                                                                                            killmel
                                                                                                                            Participant

                                                                                                                              Hi Maria,

                                                                                                                              It was very smart of your family to see both Dr. Hamid & Dr. Ribas. You are absolutely correct that picking a doctor is very personal & Jeff should do that.

                                                                                                                              My own experience is that I too had 2nd opinions with both doctors & I picked Dr. Ribas. I did not care for Dr.Hamids beside manner. After asking Dr.Hamid  questions about the trial, I felt that he was pushing some clinical trials because he needed to fill some slots. Dr.Hamid seemed impatient and bothered that I was questioning him.

                                                                                                                              I am in the Braf/Mek trial with Dr. Ribas and have remained NED for 8 months. I love Dr. Ribas because he really cares. He spends the time with you and your family. UCLA  has the newest trials. Many trials sponsors respect Dr.Ribas research & he gets  the news trials that are coming out.

                                                                                                                              I live in Las Vegas and have to pay for airfare to UCLA.

                                                                                                                              I read one of your  earlier post about PALS. Is Jeff getting his airfare to LA picked up by any cancer helping group?

                                                                                                                              God Bless Jeff & his family.

                                                                                                                              Ann

                                                                                                                            MeNDave
                                                                                                                            Participant

                                                                                                                              That's wonderful!   I hope you contine to keep getting good news!

                                                                                                                              All our best,

                                                                                                                              Maria

                                                                                                                              MeNDave
                                                                                                                              Participant

                                                                                                                                That's wonderful!   I hope you contine to keep getting good news!

                                                                                                                                All our best,

                                                                                                                                Maria

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