Gamma Knife/Steriods Yervoy

Please talk to his oncologist about this information, these doctors should be discussing your boyfriend’s case, but sometimes we have to create the link. I would question any doctor who says call me in one month, about coming off steroids, they have to be weaned off slowly, so you are right to be concerned about the delay of the next yervoy. How is he doing, maybe you could start the weaning sooner, open up this line of dialogue with his doctors. I think for yervoy to have it’s maximum effectiveness the four doses need to be given within a certain time frame. Best wishes to you, Valerie ( Phil’s wife)

Please talk to his oncologist about this information, these doctors should be discussing your boyfriend’s case, but sometimes we have to create the link. I would question any doctor who says call me in one month, about coming off steroids, they have to be weaned off slowly, so you are right to be concerned about the delay of the next yervoy. How is he doing, maybe you could start the weaning sooner, open up this line of dialogue with his doctors. I think for yervoy to have it’s maximum effectiveness the four doses need to be given within a certain time frame. Best wishes to you, Valerie ( Phil’s wife)

Please talk to his oncologist about this information, these doctors should be discussing your boyfriend’s case, but sometimes we have to create the link. I would question any doctor who says call me in one month, about coming off steroids, they have to be weaned off slowly, so you are right to be concerned about the delay of the next yervoy. How is he doing, maybe you could start the weaning sooner, open up this line of dialogue with his doctors. I think for yervoy to have it’s maximum effectiveness the four doses need to be given within a certain time frame. Best wishes to you, Valerie ( Phil’s wife)

My husband had Gamma Knife for three mets in March after receiving two Yervoy Treatments. I was very concerned about using the steroids as I knew it is standard (cautionary procedure). I spoke to the neurosurgeon and explained about the Yervoy and how we needed to kick his immuion system into gear and I was afraid the steroids would defeat what we were trying to do with the Yervoy. He admitted  never having hearing of Yervoy (don't you just love how these docs stay up the industry) 

I have a package insert I obtained from the infusion nurse at the first infusion which I keep in my purse in case of emergencies, hospital visits and I showed it to all his other docs so we are all on the same page with allowing the Yervoy its best chance to work. When the neurosurgeon read about Yervoy he said steroids were standard procedure, but in my husband’s case they would forego them but we would keep on eye on him for swelling. (Brought on by bleeding in the mets area)

My husband had 3 Yervoy only 2 days after the Gamma Knife surgery. Now, seven months later the new brain MRI shows no mets at all, not even micro mets and all existing are gone.

This was his second Gamma Knife surgery for brain mets in six months.  He has since had a PetScan which showed his lung, pancreas and chest tumors are either gone or stable. He has so far been a responder.

He is now on Yervoy maintenance every 12 weeks, and we keep our fingers crossed that the immune system continues to fight this dreadful disease. It is still a day to day, week to week, month to month battle and we pray the Yervoy continues to work.

By the way , the Gamma Knife surgeon also told me he did not know about Yervoy, because his job isonly above the neck, meaning the brain and he is not responsible for anything else in the body. It baffles me that these doctors do not talk to each other or look at the big picture in caring for their patients. 

I wish the best for you and your Bfriend, but remember you have the right to question procedures and drugs and need to be sure all his docs understand Yervoy and the do's and don'ts to give it the best possible chance.

Keep informed and make sure everyone around you is tooooooo.  Linda

 

 

 

 

My husband had Gamma Knife for three mets in March after receiving two Yervoy Treatments. I was very concerned about using the steroids as I knew it is standard (cautionary procedure). I spoke to the neurosurgeon and explained about the Yervoy and how we needed to kick his immuion system into gear and I was afraid the steroids would defeat what we were trying to do with the Yervoy. He admitted  never having hearing of Yervoy (don't you just love how these docs stay up the industry) 

I have a package insert I obtained from the infusion nurse at the first infusion which I keep in my purse in case of emergencies, hospital visits and I showed it to all his other docs so we are all on the same page with allowing the Yervoy its best chance to work. When the neurosurgeon read about Yervoy he said steroids were standard procedure, but in my husband’s case they would forego them but we would keep on eye on him for swelling. (Brought on by bleeding in the mets area)

My husband had 3 Yervoy only 2 days after the Gamma Knife surgery. Now, seven months later the new brain MRI shows no mets at all, not even micro mets and all existing are gone.

This was his second Gamma Knife surgery for brain mets in six months.  He has since had a PetScan which showed his lung, pancreas and chest tumors are either gone or stable. He has so far been a responder.

He is now on Yervoy maintenance every 12 weeks, and we keep our fingers crossed that the immune system continues to fight this dreadful disease. It is still a day to day, week to week, month to month battle and we pray the Yervoy continues to work.

By the way , the Gamma Knife surgeon also told me he did not know about Yervoy, because his job isonly above the neck, meaning the brain and he is not responsible for anything else in the body. It baffles me that these doctors do not talk to each other or look at the big picture in caring for their patients. 

I wish the best for you and your Bfriend, but remember you have the right to question procedures and drugs and need to be sure all his docs understand Yervoy and the do's and don'ts to give it the best possible chance.

Keep informed and make sure everyone around you is tooooooo.  Linda

 

 

 

 

My husband had Gamma Knife for three mets in March after receiving two Yervoy Treatments. I was very concerned about using the steroids as I knew it is standard (cautionary procedure). I spoke to the neurosurgeon and explained about the Yervoy and how we needed to kick his immuion system into gear and I was afraid the steroids would defeat what we were trying to do with the Yervoy. He admitted  never having hearing of Yervoy (don't you just love how these docs stay up the industry) 

I have a package insert I obtained from the infusion nurse at the first infusion which I keep in my purse in case of emergencies, hospital visits and I showed it to all his other docs so we are all on the same page with allowing the Yervoy its best chance to work. When the neurosurgeon read about Yervoy he said steroids were standard procedure, but in my husband’s case they would forego them but we would keep on eye on him for swelling. (Brought on by bleeding in the mets area)

My husband had 3 Yervoy only 2 days after the Gamma Knife surgery. Now, seven months later the new brain MRI shows no mets at all, not even micro mets and all existing are gone.

This was his second Gamma Knife surgery for brain mets in six months.  He has since had a PetScan which showed his lung, pancreas and chest tumors are either gone or stable. He has so far been a responder.

He is now on Yervoy maintenance every 12 weeks, and we keep our fingers crossed that the immune system continues to fight this dreadful disease. It is still a day to day, week to week, month to month battle and we pray the Yervoy continues to work.

By the way , the Gamma Knife surgeon also told me he did not know about Yervoy, because his job isonly above the neck, meaning the brain and he is not responsible for anything else in the body. It baffles me that these doctors do not talk to each other or look at the big picture in caring for their patients. 

I wish the best for you and your Bfriend, but remember you have the right to question procedures and drugs and need to be sure all his docs understand Yervoy and the do's and don'ts to give it the best possible chance.

Keep informed and make sure everyone around you is tooooooo.  Linda