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For JustMeInCA – dunno if this will help

Forums General Melanoma Community For JustMeInCA – dunno if this will help

  • Post
    arthurjedi007
    Participant

      Sorry I didn't post this sooner. It sounded like if your dad gets a little better he might be well enough to travel.

      If so it seems to be getting more difficult for us non naieve patients to have a decent trial. There is one in Oregon so some distance from San Francisco but if he's up to it might be worth it. It combines Opdivo pd1 with anti-lag-3. I've been trying to get into it in Chicago since November but my body has kept failing me but I'm still trying to get good enough for it.

      NCT01968109

      Providence Portland Med Ctr
      Portland, Oregon, United States, 97213
      Contact: Rachel Sanborn, Site 0002    
      503-215-2604

      Artie

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        JustMeInCA
        Participant

          Thank you, Artie — that's really sweet of you! My dad is very much a homebody and complains the whole 1.5 hour drive to San Francisco, so I can only imagine what he'd say about flights to Portland! :-p 

          They've actually put in an order for Opdivo now that he's pretty much recovered from his hospital stay, and we have an appointment next week with a radiation oncologist to see if there's anything they can do with the tumors on his leg.

          His doctor in San Francisco said either Nivo…or start hospice. Not a happy time.

          JustMeInCA
          Participant

            Thank you, Artie — that's really sweet of you! My dad is very much a homebody and complains the whole 1.5 hour drive to San Francisco, so I can only imagine what he'd say about flights to Portland! :-p 

            They've actually put in an order for Opdivo now that he's pretty much recovered from his hospital stay, and we have an appointment next week with a radiation oncologist to see if there's anything they can do with the tumors on his leg.

            His doctor in San Francisco said either Nivo…or start hospice. Not a happy time.

            JustMeInCA
            Participant

              Thank you, Artie — that's really sweet of you! My dad is very much a homebody and complains the whole 1.5 hour drive to San Francisco, so I can only imagine what he'd say about flights to Portland! :-p 

              They've actually put in an order for Opdivo now that he's pretty much recovered from his hospital stay, and we have an appointment next week with a radiation oncologist to see if there's anything they can do with the tumors on his leg.

              His doctor in San Francisco said either Nivo…or start hospice. Not a happy time.

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