› Forums › General Melanoma Community › FAMM or Dysplastic Nevi Syndrome
- This topic has 3 replies, 1 voice, and was last updated 12 years ago by
Janner.
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- April 3, 2012 at 9:48 pm
Hello.
I have had numerous dysplastic nevi removed.
I am trying to determine if I have FAMM or dysplastic nevi syndrome.
Does anyone have FAMM or dysplastic nevi syndrome?
Can you share how you were recognized with the syndrome?
Did your dermatologist recognize it? Did your oncologist? Did your genetic counselor?
What is your understanding of the criteria for FAMM or dysplastic nevi syndrome?
At what age where you diagnosed?Thank you.
jrjrjr
Hello.
I have had numerous dysplastic nevi removed.
I am trying to determine if I have FAMM or dysplastic nevi syndrome.
Does anyone have FAMM or dysplastic nevi syndrome?
Can you share how you were recognized with the syndrome?
Did your dermatologist recognize it? Did your oncologist? Did your genetic counselor?
What is your understanding of the criteria for FAMM or dysplastic nevi syndrome?
At what age where you diagnosed?Thank you.
jrjrjr
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- April 4, 2012 at 1:16 am
The US National Institutes of Health Consensus Conference on the diagnosis and treatment of early melanoma defined a syndrome of familial atypical mole and melanoma (FAMM). The criteria for FAMM syndrome are as follows[10] :
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The occurrence of malignant melanoma in 1 or more first- or second-degree relatives
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The presence of numerous (often >50) melanocytic nevi, some of which are clinically atypical
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Many of the associated nevi showing certain histologic features
Usually, a dermatologist would make the official diagnosis. Unless you've had melanoma, there's not much reason to see an oncologist so the dermatologist makes most sense. A genetic counselor could be seen after the diagnosis, but they wouldn't be the ones to make the diagnosis either. If you have a strong family history of melanoma, then talking to a genetic counselor may be of help. If you have no family history of melanoma, then there really isn't much point. There are many people here with dysplastic nevus syndrome. Some have a family history of melanoma, many don't. However, I also know quite a few people with many dysplastic moles who have no history of melanoma. It puts you at higher risk, but isn't any guarantee that you will get melanoma. Truthfully, these questions would be best discussed with a dermatologist who is familiar with melanoma. They can make an assessment given your history and skin assessment.Janner -
- April 4, 2012 at 1:16 am
The US National Institutes of Health Consensus Conference on the diagnosis and treatment of early melanoma defined a syndrome of familial atypical mole and melanoma (FAMM). The criteria for FAMM syndrome are as follows[10] :
-
The occurrence of malignant melanoma in 1 or more first- or second-degree relatives
-
The presence of numerous (often >50) melanocytic nevi, some of which are clinically atypical
-
Many of the associated nevi showing certain histologic features
Usually, a dermatologist would make the official diagnosis. Unless you've had melanoma, there's not much reason to see an oncologist so the dermatologist makes most sense. A genetic counselor could be seen after the diagnosis, but they wouldn't be the ones to make the diagnosis either. If you have a strong family history of melanoma, then talking to a genetic counselor may be of help. If you have no family history of melanoma, then there really isn't much point. There are many people here with dysplastic nevus syndrome. Some have a family history of melanoma, many don't. However, I also know quite a few people with many dysplastic moles who have no history of melanoma. It puts you at higher risk, but isn't any guarantee that you will get melanoma. Truthfully, these questions would be best discussed with a dermatologist who is familiar with melanoma. They can make an assessment given your history and skin assessment.Janner -
- April 4, 2012 at 1:16 am
The US National Institutes of Health Consensus Conference on the diagnosis and treatment of early melanoma defined a syndrome of familial atypical mole and melanoma (FAMM). The criteria for FAMM syndrome are as follows[10] :
-
The occurrence of malignant melanoma in 1 or more first- or second-degree relatives
-
The presence of numerous (often >50) melanocytic nevi, some of which are clinically atypical
-
Many of the associated nevi showing certain histologic features
Usually, a dermatologist would make the official diagnosis. Unless you've had melanoma, there's not much reason to see an oncologist so the dermatologist makes most sense. A genetic counselor could be seen after the diagnosis, but they wouldn't be the ones to make the diagnosis either. If you have a strong family history of melanoma, then talking to a genetic counselor may be of help. If you have no family history of melanoma, then there really isn't much point. There are many people here with dysplastic nevus syndrome. Some have a family history of melanoma, many don't. However, I also know quite a few people with many dysplastic moles who have no history of melanoma. It puts you at higher risk, but isn't any guarantee that you will get melanoma. Truthfully, these questions would be best discussed with a dermatologist who is familiar with melanoma. They can make an assessment given your history and skin assessment.Janner
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