› Forums › General Melanoma Community › F/u on Edwin’s 50+% 5 yr OS for mel peeps on ipi/nivo post
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Melanoma Gin.
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- October 5, 2019 at 2:04 pm
Edwin’s post of the BBC report (https://www.bbc.com/news/health-49853878) and the comments that went along with it were excellent and cheering! Here’s a link to that thread if you missed it:
https://melanoma.org/legacy/find-support/patient-community/mpip-melanoma-patients-information-page/half-people-survivingIf you’re interested in a further breakdown of the numbers past and present as well as a look at the abstract presented by Larkin and other Melanoma Big Dogs, I put a post together on it this morning. Nothing new really, just another way of looking at the numbers. http://chaoticallypreciselifeloveandmelanoma.blogspot.com/2019/10/ipinivo-combo-5-year-overall-survival.html
For what it’s worth. Thanks Edwin and the rest of you. Have a great weekend. – celeste
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- October 6, 2019 at 4:12 pm
Yep! I believe i responded to Edwins post on that to, even though i didnt quote “Complete” a substantial regiment of the Nivo part of it (stopped at #20 of Nivo alone but did do all 4 Yervoys) ill have to ask my new doc, Dr. Hamid about my specific situation, even though i was stopped on 3, really 2 different immunal therapys, first Pembro (only did 7 infusions/ stopped due to disease progression) then the Ipi/ Nivo (completed 4 Ipi’s and did a total of 20 Nivo’s and also stopped due to disease progression) question is, is my immune system better primed now? Would i have a hell of a lot more “new” tumors then i have now if i havnt done those 3 meds? All of those fabulous meds wernt a total waste of time, some tumors shrank, some disappeared, some stayed stable but! Some got larger and of course i grew new ones, Bitter/Sweet it all was….oh the science of it all! Alot to learn Still!! -
- October 9, 2019 at 2:23 am
These stats are very encouraging and yes you are completely right, we are blessed to be alive considering the statistics from even 2 years ago when I was diagnosed Stage4 Unresectable Metastatic. I am trying to stay positive and plan what will I do with the next 3 years of my life. I can’t believe I am typing those words! We are blessed!
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