Exhaustion after Cyber/Gamma Knife treatments for brain mets?
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Exhaustion after Cyber/Gamma Knife treatments for brain mets?

› Forums › General Melanoma Community › Exhaustion after Cyber/Gamma Knife treatments for brain mets?

  • Post
    • August 15, 2014 at 12:26 pm
    kalisama
    Participant

    Hi all,

    It's been a week + since I underwent two 3 series Cyberknife treatments on 2 brain mets. I have been exhausted ever since. Have you experienced same? Is this normal or am I just depressed that the targeted immunotherapy I'm on (Mek/Taf) isn't getting up in to my brain? Curious about others' experiences after radio surgery to the brain.

    PS- so glad I found this forum where people understand what I'm going through and my language doesn't sound like Swahili! Thank you!

    Best,

    kali

Viewing 2 reply threads
  • Replies
      • August 15, 2014 at 4:51 pm
      ed williams
      Participant

      I had 3 small mets last Oct. and had cyber knife treatment at the Ottawa General in Canada. I was back on my mountain bike the next day. Last scan was July and shows things are still clear. I have a MRI scan every 3 months. I started a Immunotherapy trial in Jan of 2014 for two lung mets that they found July of 2013 and I have some fatigue associated with the trial drugs. Stage 4 with Brain and lung mets used to have a 5 month average survival time. I am happy to be able to say that the old stats need to be updated!!!!! Best wishes Ed

      • August 15, 2014 at 4:51 pm
      ed williams
      Participant

      I had 3 small mets last Oct. and had cyber knife treatment at the Ottawa General in Canada. I was back on my mountain bike the next day. Last scan was July and shows things are still clear. I have a MRI scan every 3 months. I started a Immunotherapy trial in Jan of 2014 for two lung mets that they found July of 2013 and I have some fatigue associated with the trial drugs. Stage 4 with Brain and lung mets used to have a 5 month average survival time. I am happy to be able to say that the old stats need to be updated!!!!! Best wishes Ed

        • August 15, 2014 at 5:36 pm
        kalisama
        Participant

        thanks ed, glad to hear of your success. how many treatments did you have on the 3 mets? was it a single treatment or multiple sessions? appreciate your input.

        • August 15, 2014 at 5:36 pm
        kalisama
        Participant

        thanks ed, glad to hear of your success. how many treatments did you have on the 3 mets? was it a single treatment or multiple sessions? appreciate your input.

        • August 15, 2014 at 5:55 pm
        ed williams
        Participant

        One treatment that lasted about one hour. The mets that I had were about 3mm in size in three different regions of the brain. The surgeon name was Dr. Sinclair who trained at Standord in stereotactic radiosurgery. I still have the mask , which my 5 year old daughter thinks is really neat. It does get easier, in time, to deal with Melanoma. Best wishes Ed  

        • August 15, 2014 at 5:55 pm
        ed williams
        Participant

        One treatment that lasted about one hour. The mets that I had were about 3mm in size in three different regions of the brain. The surgeon name was Dr. Sinclair who trained at Standord in stereotactic radiosurgery. I still have the mask , which my 5 year old daughter thinks is really neat. It does get easier, in time, to deal with Melanoma. Best wishes Ed  

        • August 18, 2014 at 12:24 pm
        tschmith
        Participant

        I had Stereotactic Radiosurgery after the removal of a brain met.  I don't recall fatigue as a problem.  However, later on I was treated with Yervoy and went through quite a a difficult trial at NIH. Both failed. My immune system was compromised so that naturally caused fatigue. When the fatigue continued longer than my blood work indicated (I was anemic), I was put on an anti-depressant, focused on a good diet, and exercised.  It helped.  I'm now on Pembro and am feeling better than I was. I think the stress of this disease is hard to deal with so talk to your doctors about your fatigue and concerns of depression.  They can help.  Best wishes!  Terrie

        • August 18, 2014 at 3:23 pm
        kalisama
        Participant

        Thank you Terrie. Makes a lot of sense.

        Best of health to you,
        kali

        • August 18, 2014 at 3:23 pm
        kalisama
        Participant

        Thank you Terrie. Makes a lot of sense.

        Best of health to you,
        kali

        • August 18, 2014 at 3:23 pm
        kalisama
        Participant

        Thank you Terrie. Makes a lot of sense.

        Best of health to you,
        kali

        • August 18, 2014 at 12:24 pm
        tschmith
        Participant

        I had Stereotactic Radiosurgery after the removal of a brain met.  I don't recall fatigue as a problem.  However, later on I was treated with Yervoy and went through quite a a difficult trial at NIH. Both failed. My immune system was compromised so that naturally caused fatigue. When the fatigue continued longer than my blood work indicated (I was anemic), I was put on an anti-depressant, focused on a good diet, and exercised.  It helped.  I'm now on Pembro and am feeling better than I was. I think the stress of this disease is hard to deal with so talk to your doctors about your fatigue and concerns of depression.  They can help.  Best wishes!  Terrie

        • August 18, 2014 at 12:24 pm
        tschmith
        Participant

        I had Stereotactic Radiosurgery after the removal of a brain met.  I don't recall fatigue as a problem.  However, later on I was treated with Yervoy and went through quite a a difficult trial at NIH. Both failed. My immune system was compromised so that naturally caused fatigue. When the fatigue continued longer than my blood work indicated (I was anemic), I was put on an anti-depressant, focused on a good diet, and exercised.  It helped.  I'm now on Pembro and am feeling better than I was. I think the stress of this disease is hard to deal with so talk to your doctors about your fatigue and concerns of depression.  They can help.  Best wishes!  Terrie

        • August 15, 2014 at 5:55 pm
        ed williams
        Participant

        One treatment that lasted about one hour. The mets that I had were about 3mm in size in three different regions of the brain. The surgeon name was Dr. Sinclair who trained at Standord in stereotactic radiosurgery. I still have the mask , which my 5 year old daughter thinks is really neat. It does get easier, in time, to deal with Melanoma. Best wishes Ed  

        • August 15, 2014 at 5:36 pm
        kalisama
        Participant

        thanks ed, glad to hear of your success. how many treatments did you have on the 3 mets? was it a single treatment or multiple sessions? appreciate your input.

      • August 15, 2014 at 4:51 pm
      ed williams
      Participant

      I had 3 small mets last Oct. and had cyber knife treatment at the Ottawa General in Canada. I was back on my mountain bike the next day. Last scan was July and shows things are still clear. I have a MRI scan every 3 months. I started a Immunotherapy trial in Jan of 2014 for two lung mets that they found July of 2013 and I have some fatigue associated with the trial drugs. Stage 4 with Brain and lung mets used to have a 5 month average survival time. I am happy to be able to say that the old stats need to be updated!!!!! Best wishes Ed

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