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Doctor Suggestions

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  • Post
    • January 5, 2013 at 5:33 am
    JoshF
    Participant

      Hello to everyone out there. I'm hoping someone can refer me to a melanoma specialist in IL preferably Chicago area. I have heard of a few names and di some research (Dr. Jon Richards came highly recommened) as well as some other from University of Chicago, Rush, and Loyola. Any experiences out there or suggestions?

       

      Thanks

       

      JB

      Hello to everyone out there. I'm hoping someone can refer me to a melanoma specialist in IL preferably Chicago area. I have heard of a few names and di some research (Dr. Jon Richards came highly recommened) as well as some other from University of Chicago, Rush, and Loyola. Any experiences out there or suggestions?

       

      Thanks

       

      JB

    Viewing 14 reply threads
    • Replies
        • January 5, 2013 at 12:00 pm
        JC
        Participant

          What I know of:

          Dr Kaufman at Rush

          Dr Kuzel at Northwestern

          Dr Brockstein at NorthShore

          Dr Gajewski at U of Chicago

          Dr Richards at Lutheran General

          Dr Clark at Loyola

          Those are oncologists, as far as surgery:

          Dr Winchester Jr, NorthShore

          Dr Yao, NorthShore

          Dr Sharpless, Lake Forest

          Dr Wayne, Northwestern

          Dermatologists:  Dr Mary Martini, Pigmented Skin Lesion Clinic, Northwestern

           

          There's also more info at http://www.chicagomelanomaconsortium.org/

          You may also want to try the Carbone cancer center in Madison WI.  The melanoma specialist there.  Mark Albertini, is very knowledgable and easy to deal with.  The cancer center is part of the University of Wisconsin and is about 90 miles from the western burbs of Chicago.

          • January 5, 2013 at 12:00 pm
          JC
          Participant

            What I know of:

            Dr Kaufman at Rush

            Dr Kuzel at Northwestern

            Dr Brockstein at NorthShore

            Dr Gajewski at U of Chicago

            Dr Richards at Lutheran General

            Dr Clark at Loyola

            Those are oncologists, as far as surgery:

            Dr Winchester Jr, NorthShore

            Dr Yao, NorthShore

            Dr Sharpless, Lake Forest

            Dr Wayne, Northwestern

            Dermatologists:  Dr Mary Martini, Pigmented Skin Lesion Clinic, Northwestern

             

            There's also more info at http://www.chicagomelanomaconsortium.org/

            You may also want to try the Carbone cancer center in Madison WI.  The melanoma specialist there.  Mark Albertini, is very knowledgable and easy to deal with.  The cancer center is part of the University of Wisconsin and is about 90 miles from the western burbs of Chicago.

            • January 5, 2013 at 12:00 pm
            JC
            Participant

              What I know of:

              Dr Kaufman at Rush

              Dr Kuzel at Northwestern

              Dr Brockstein at NorthShore

              Dr Gajewski at U of Chicago

              Dr Richards at Lutheran General

              Dr Clark at Loyola

              Those are oncologists, as far as surgery:

              Dr Winchester Jr, NorthShore

              Dr Yao, NorthShore

              Dr Sharpless, Lake Forest

              Dr Wayne, Northwestern

              Dermatologists:  Dr Mary Martini, Pigmented Skin Lesion Clinic, Northwestern

               

              There's also more info at http://www.chicagomelanomaconsortium.org/

              You may also want to try the Carbone cancer center in Madison WI.  The melanoma specialist there.  Mark Albertini, is very knowledgable and easy to deal with.  The cancer center is part of the University of Wisconsin and is about 90 miles from the western burbs of Chicago.

              • January 5, 2013 at 5:31 pm
              Angela C
              Participant

                Hi JB. I have seen Dr. Joseph Clark at Loyola. He is a great doctor! He is very caring and returns phone calls on his own. He has a bit of a dry sense of humor, but that's part of what my husband and I like about him.

                He's fairly up to date on things in the field, but sometimes if it's not happening at Loyola, he's not overly familiar with it. So, when I was just doing run of the mill FDA approved treatments, he was our guy. When it came to clinical trials, he was usually only familar with what Loyola had to offer and we would have to do our own research.

                So, depending on what your stage is and what you are looking for, he may be a great fit.

                ~Angela

                  • January 5, 2013 at 8:58 pm
                  JoshF
                  Participant

                    Thanks Angela. I know of someone else who had seen Dr. Clark and liked him. Did his IL 2 treatments which was successful for him and I think its been over 10 years. At this point I'm unknown stage as I have no unknown primary. Did PET Scan & SLNB which was negative but need to find a specialist as I'd like to be prepared in the event something happens down the road. Current oncologist is good but isn't up to speed or know the in & outs of melanoma. She said she has researched and seen some people do well or that potentially it is a dermal melnoma which would mean no metastis. Appears odds are comprable in regards to unknown primary and a dermal melanoma (2-3%). See need to find specialist. Thanks for advice….wishing you the very best!!

                     

                    JB

                    • January 5, 2013 at 8:58 pm
                    JoshF
                    Participant

                      Thanks Angela. I know of someone else who had seen Dr. Clark and liked him. Did his IL 2 treatments which was successful for him and I think its been over 10 years. At this point I'm unknown stage as I have no unknown primary. Did PET Scan & SLNB which was negative but need to find a specialist as I'd like to be prepared in the event something happens down the road. Current oncologist is good but isn't up to speed or know the in & outs of melanoma. She said she has researched and seen some people do well or that potentially it is a dermal melnoma which would mean no metastis. Appears odds are comprable in regards to unknown primary and a dermal melanoma (2-3%). See need to find specialist. Thanks for advice….wishing you the very best!!

                       

                      JB

                      • January 5, 2013 at 8:58 pm
                      JoshF
                      Participant

                        Thanks Angela. I know of someone else who had seen Dr. Clark and liked him. Did his IL 2 treatments which was successful for him and I think its been over 10 years. At this point I'm unknown stage as I have no unknown primary. Did PET Scan & SLNB which was negative but need to find a specialist as I'd like to be prepared in the event something happens down the road. Current oncologist is good but isn't up to speed or know the in & outs of melanoma. She said she has researched and seen some people do well or that potentially it is a dermal melnoma which would mean no metastis. Appears odds are comprable in regards to unknown primary and a dermal melanoma (2-3%). See need to find specialist. Thanks for advice….wishing you the very best!!

                         

                        JB

                      • January 5, 2013 at 5:31 pm
                      Angela C
                      Participant

                        Hi JB. I have seen Dr. Joseph Clark at Loyola. He is a great doctor! He is very caring and returns phone calls on his own. He has a bit of a dry sense of humor, but that's part of what my husband and I like about him.

                        He's fairly up to date on things in the field, but sometimes if it's not happening at Loyola, he's not overly familiar with it. So, when I was just doing run of the mill FDA approved treatments, he was our guy. When it came to clinical trials, he was usually only familar with what Loyola had to offer and we would have to do our own research.

                        So, depending on what your stage is and what you are looking for, he may be a great fit.

                        ~Angela

                        • January 5, 2013 at 5:31 pm
                        Angela C
                        Participant

                          Hi JB. I have seen Dr. Joseph Clark at Loyola. He is a great doctor! He is very caring and returns phone calls on his own. He has a bit of a dry sense of humor, but that's part of what my husband and I like about him.

                          He's fairly up to date on things in the field, but sometimes if it's not happening at Loyola, he's not overly familiar with it. So, when I was just doing run of the mill FDA approved treatments, he was our guy. When it came to clinical trials, he was usually only familar with what Loyola had to offer and we would have to do our own research.

                          So, depending on what your stage is and what you are looking for, he may be a great fit.

                          ~Angela

                          • January 8, 2013 at 12:47 am
                          Cate
                          Participant

                            Hi, I have experience with Dr. Gawjeski (Sp?) at University of Chicago and Dr. Clark at Loyola.  My father and I were VERY happy with Dr. Clark!  He is an excellent, knowledgable, caring, physician. (Yes, with a dry sense of humor).  I would agree with the post above regarding clinical trials but Dr. Clark is very open to other types of treatment that may make sense.  He does a lot with IL-2 and is very responsive to his patients!  Good luck:)  

                              • January 8, 2013 at 1:03 am
                              JoshF
                              Participant
                                Hi Cate-

                                Thanks for advice. What about Gajewski at U of C? I’ve heard now that he along with Richards and Kaufman are foremost experts.

                                • January 8, 2013 at 1:03 am
                                JoshF
                                Participant
                                  Hi Cate-

                                  Thanks for advice. What about Gajewski at U of C? I’ve heard now that he along with Richards and Kaufman are foremost experts.

                                  • January 8, 2013 at 1:03 am
                                  JoshF
                                  Participant
                                    Hi Cate-

                                    Thanks for advice. What about Gajewski at U of C? I’ve heard now that he along with Richards and Kaufman are foremost experts.

                                  • January 8, 2013 at 12:47 am
                                  Cate
                                  Participant

                                    Hi, I have experience with Dr. Gawjeski (Sp?) at University of Chicago and Dr. Clark at Loyola.  My father and I were VERY happy with Dr. Clark!  He is an excellent, knowledgable, caring, physician. (Yes, with a dry sense of humor).  I would agree with the post above regarding clinical trials but Dr. Clark is very open to other types of treatment that may make sense.  He does a lot with IL-2 and is very responsive to his patients!  Good luck:)  

                                    • January 8, 2013 at 12:47 am
                                    Cate
                                    Participant

                                      Hi, I have experience with Dr. Gawjeski (Sp?) at University of Chicago and Dr. Clark at Loyola.  My father and I were VERY happy with Dr. Clark!  He is an excellent, knowledgable, caring, physician. (Yes, with a dry sense of humor).  I would agree with the post above regarding clinical trials but Dr. Clark is very open to other types of treatment that may make sense.  He does a lot with IL-2 and is very responsive to his patients!  Good luck:)  

                                      • January 19, 2013 at 1:51 am
                                      Ranisa
                                      Participant

                                        Kaufmann at rush

                                        • January 19, 2013 at 1:51 am
                                        Ranisa
                                        Participant

                                          Kaufmann at rush

                                          • January 19, 2013 at 1:51 am
                                          Ranisa
                                          Participant

                                            Kaufmann at rush

                                              • January 19, 2013 at 1:59 am
                                              Ranisa
                                              Participant

                                                Just to add to it.  The man changed my life.  He went the extra mile.  Works with Dr. Rhodes who is odd….but a very good derm that specializes i melanoma.  I felt I had great care….amazing care.

                                                • January 19, 2013 at 1:59 am
                                                Ranisa
                                                Participant

                                                  Just to add to it.  The man changed my life.  He went the extra mile.  Works with Dr. Rhodes who is odd….but a very good derm that specializes i melanoma.  I felt I had great care….amazing care.

                                                  • January 19, 2013 at 1:59 am
                                                  Ranisa
                                                  Participant

                                                    Just to add to it.  The man changed my life.  He went the extra mile.  Works with Dr. Rhodes who is odd….but a very good derm that specializes i melanoma.  I felt I had great care….amazing care.

                                                  • January 19, 2013 at 2:01 am
                                                  JC
                                                  Participant

                                                    does Rhodes use MelaFind system at Rush?  just curious

                                                      • January 19, 2013 at 2:48 am
                                                      Ranisa
                                                      Participant

                                                        I have never heard of Melafind?  I moved last year and haven't seen him since….is it a new thing?

                                                        • January 19, 2013 at 2:48 am
                                                        Ranisa
                                                        Participant

                                                          I have never heard of Melafind?  I moved last year and haven't seen him since….is it a new thing?

                                                          • January 19, 2013 at 2:48 am
                                                          Ranisa
                                                          Participant

                                                            I have never heard of Melafind?  I moved last year and haven't seen him since….is it a new thing?

                                                          • January 19, 2013 at 2:01 am
                                                          JC
                                                          Participant

                                                            does Rhodes use MelaFind system at Rush?  just curious

                                                            • January 19, 2013 at 2:01 am
                                                            JC
                                                            Participant

                                                              does Rhodes use MelaFind system at Rush?  just curious

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