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Diagnosed Nodular Mel Stage 3C in 2006 and still “living with cancer”
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Diagnosed Nodular Mel Stage 3C in 2006 and still “living with cancer”

› Forums › Cutaneous Melanoma Community › Diagnosed Nodular Mel Stage 3C in 2006 and still “living with cancer”

  • Post
    • April 9, 2014 at 5:21 am
    Denise – Wife of Mike Stage 4
    Participant

      I know what a horrible battle you all fight. It gave me so much strength when I would come here and read your stories. This board kept me from losing my mind while my husband battled a Stage 3C and then Stage 4 agressive Nodular Melanoma diagnosis and treatment. I was a 39 year old mom with two little daughters when this entered our lives.

      There is hope. And there were always people who came back here and posted to give others hope. After diagnosis, 3 surgeries that included a massive facial skin graft and over 70 lymph nodes removed, radiation, a year of interferon and many years of monitoring and scans my husband is still alive. I now say he is "living with cancer"

      It was scary to log in and see these postings again, and I often wonder if posting this is asking for trouble from the evil cancer demons. 

      It is my deepest hope that you get through this too, and live….no thrive….after this nightmare. 

      Much love and appreciation for all that post here. You saved me in my darkest hours. I hope I can give you a thread of hope this evening.

       

    Viewing 8 reply threads
    • Replies
        • April 9, 2014 at 11:41 am
        Hstevens0072
        Participant

          🙂 thank you.

          • April 9, 2014 at 11:41 am
          Hstevens0072
          Participant

            🙂 thank you.

            • April 9, 2014 at 11:41 am
            Hstevens0072
            Participant

              🙂 thank you.

              • April 9, 2014 at 12:11 pm
              katie1
              Participant

                Thanks for this!  My husbancd (3C agressive amelanotic nodular melanoma on his face 12mm/ulcerated) just passed the 1 year mark NED!  He had 4 rounds of Ipi as part of a clinical trial (had to stop due to hypophysitis).  Stories like yours bring hope, so thanks.

                Kate

                • April 9, 2014 at 12:11 pm
                katie1
                Participant

                  Thanks for this!  My husbancd (3C agressive amelanotic nodular melanoma on his face 12mm/ulcerated) just passed the 1 year mark NED!  He had 4 rounds of Ipi as part of a clinical trial (had to stop due to hypophysitis).  Stories like yours bring hope, so thanks.

                  Kate

                  • April 9, 2014 at 12:11 pm
                  katie1
                  Participant

                    Thanks for this!  My husbancd (3C agressive amelanotic nodular melanoma on his face 12mm/ulcerated) just passed the 1 year mark NED!  He had 4 rounds of Ipi as part of a clinical trial (had to stop due to hypophysitis).  Stories like yours bring hope, so thanks.

                    Kate

                    • April 9, 2014 at 5:09 pm
                    Jahendry12
                    Participant

                      Thank you so much for this post Denise.  Your words are giving many on this board much needed hope. My husband's story is similar to your husband's.  He was diagnosed with aggressive nodular melanoma in 2011 (on upper leg) followed by surgery to remove initial growth, then surgery to remove groin lymph nodes & 2 surgeries to remove lung mets (only 1 of the surgeries found a melanoma met).  No treatment to date.  We are on watch & wait – scans every 3 months through this year.  This past March he was 1 year NED!  He is healthy & active and I don't plan on him going anywhere any time soon!

                      Live life to the fullest and always always have HOPE.

                      Julie

                       

                      • April 9, 2014 at 5:09 pm
                      Jahendry12
                      Participant

                        Thank you so much for this post Denise.  Your words are giving many on this board much needed hope. My husband's story is similar to your husband's.  He was diagnosed with aggressive nodular melanoma in 2011 (on upper leg) followed by surgery to remove initial growth, then surgery to remove groin lymph nodes & 2 surgeries to remove lung mets (only 1 of the surgeries found a melanoma met).  No treatment to date.  We are on watch & wait – scans every 3 months through this year.  This past March he was 1 year NED!  He is healthy & active and I don't plan on him going anywhere any time soon!

                        Live life to the fullest and always always have HOPE.

                        Julie

                         

                        • April 9, 2014 at 5:09 pm
                        Jahendry12
                        Participant

                          Thank you so much for this post Denise.  Your words are giving many on this board much needed hope. My husband's story is similar to your husband's.  He was diagnosed with aggressive nodular melanoma in 2011 (on upper leg) followed by surgery to remove initial growth, then surgery to remove groin lymph nodes & 2 surgeries to remove lung mets (only 1 of the surgeries found a melanoma met).  No treatment to date.  We are on watch & wait – scans every 3 months through this year.  This past March he was 1 year NED!  He is healthy & active and I don't plan on him going anywhere any time soon!

                          Live life to the fullest and always always have HOPE.

                          Julie

                           

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