› Forums › General Melanoma Community › diagnosed melonoma
- This topic has 42 replies, 6 voices, and was last updated 7 years, 5 months ago by
John-Q.
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- October 26, 2016 at 1:28 am
Recently diagnosed with melonoma. It has been removed however tumor was 4.7 mm mitosis was 7 not ulcerated and margin cleared by 0.3 mm. Seen oncologist and had fine needle as I have swollen node and shows cancer from pathology report. Nov 4th under going wide excision to clean up neck get more margin and SLN biospy removing all nodes on left side of neck where original melonoma detected. Well I am scared. My name is Lisa 3o have a family and now after this I have just stopped everything. Depressed anxiety you name it. My biggest fear is dying funny I work as a personal support worker.They haven’t given me a stage however I have been reading and if it’s in nodes I am stage 3 I guess I’m confused some say two some say three from what I read. So far organs are OK no spread at this time.
Any advice would be greatly appreciated
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- October 26, 2016 at 1:43 am
Your primary was stage 2 but the fine needle biopsy and/or positive SLNB would restage you to stage 3. Stage 3a, 3b or 3c would depend on the CLND.
This is not a death sentence and don't let melanoma win in your head before it ever does in your body!
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- October 26, 2016 at 1:43 am
Your primary was stage 2 but the fine needle biopsy and/or positive SLNB would restage you to stage 3. Stage 3a, 3b or 3c would depend on the CLND.
This is not a death sentence and don't let melanoma win in your head before it ever does in your body!
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- October 26, 2016 at 1:43 am
Your primary was stage 2 but the fine needle biopsy and/or positive SLNB would restage you to stage 3. Stage 3a, 3b or 3c would depend on the CLND.
This is not a death sentence and don't let melanoma win in your head before it ever does in your body!
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- October 26, 2016 at 2:31 am
Thank you very much. Yes from research that staging again came to me. I am stressed I think more from a few few appointments. First one last year said nope don’t worry about it however to remove I charge you one hundred sixty and you will have a big scare. So I just said ok he said he isn’t concerned so I moved on
5 month later it grew so bad to derm..sent me off to plastic surgeon then results cancer and he sent me to a lymph node doctor. Yup he said you need tram tent chemo now guarantee it spread to you’d body and they now try to localize it however if isn’t going to cure you it isn’t going to be therapeutic. Told the oncologist two days later he wasn’t pleased with the lymph node doctor recommendations. So now I have moved on to a doctor who is excellent I’m blessed to have a top doctor.Since August i just feel paralized.
I appreciate your help
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- October 26, 2016 at 2:31 am
Thank you very much. Yes from research that staging again came to me. I am stressed I think more from a few few appointments. First one last year said nope don’t worry about it however to remove I charge you one hundred sixty and you will have a big scare. So I just said ok he said he isn’t concerned so I moved on
5 month later it grew so bad to derm..sent me off to plastic surgeon then results cancer and he sent me to a lymph node doctor. Yup he said you need tram tent chemo now guarantee it spread to you’d body and they now try to localize it however if isn’t going to cure you it isn’t going to be therapeutic. Told the oncologist two days later he wasn’t pleased with the lymph node doctor recommendations. So now I have moved on to a doctor who is excellent I’m blessed to have a top doctor.Since August i just feel paralized.
I appreciate your help
-
- October 26, 2016 at 2:31 am
Thank you very much. Yes from research that staging again came to me. I am stressed I think more from a few few appointments. First one last year said nope don’t worry about it however to remove I charge you one hundred sixty and you will have a big scare. So I just said ok he said he isn’t concerned so I moved on
5 month later it grew so bad to derm..sent me off to plastic surgeon then results cancer and he sent me to a lymph node doctor. Yup he said you need tram tent chemo now guarantee it spread to you’d body and they now try to localize it however if isn’t going to cure you it isn’t going to be therapeutic. Told the oncologist two days later he wasn’t pleased with the lymph node doctor recommendations. So now I have moved on to a doctor who is excellent I’m blessed to have a top doctor.Since August i just feel paralized.
I appreciate your help
-
- October 26, 2016 at 2:09 am
I was in your boat last year. I was given the choice of interferon or a clinical trial but only if I was seriously considering interferon, and I was not. So I did observation and here I am at my I year mark with matastasis to more lymph nodes and liver. I myself don’t know what to do but want you to know that staying positive is so helpful. I don’t know if you believe in a higher power or are a spiritual person but that has helped me. I now have a choice to make, conventional therapy, which is ipilimumab and nivolumab or leave this country and try something that has little to no side effects. Please look into hope4cancer.com you can call them and they will go over everything with you. I am still on the fence and get more and more confused everyday. However I do believe they are on point and have been researching this since 1960! Good luck to you and hope that it is in God’s will to get us both through this. I will prat for you. -
- October 26, 2016 at 2:09 am
I was in your boat last year. I was given the choice of interferon or a clinical trial but only if I was seriously considering interferon, and I was not. So I did observation and here I am at my I year mark with matastasis to more lymph nodes and liver. I myself don’t know what to do but want you to know that staying positive is so helpful. I don’t know if you believe in a higher power or are a spiritual person but that has helped me. I now have a choice to make, conventional therapy, which is ipilimumab and nivolumab or leave this country and try something that has little to no side effects. Please look into hope4cancer.com you can call them and they will go over everything with you. I am still on the fence and get more and more confused everyday. However I do believe they are on point and have been researching this since 1960! Good luck to you and hope that it is in God’s will to get us both through this. I will prat for you.-
- October 26, 2016 at 2:33 am
Thank you and best of luck to you
And yes I believe in God faith I pray unselfishly I try. I am in Canada not sure what country you are in but in know if Canada we have really great doctors in Toronto -
- October 26, 2016 at 2:33 am
Thank you and best of luck to you
And yes I believe in God faith I pray unselfishly I try. I am in Canada not sure what country you are in but in know if Canada we have really great doctors in Toronto -
- October 26, 2016 at 2:33 am
Thank you and best of luck to you
And yes I believe in God faith I pray unselfishly I try. I am in Canada not sure what country you are in but in know if Canada we have really great doctors in Toronto -
- November 24, 2016 at 7:42 pm
Anonymous wrote "Please look into hope4cancer.com ".
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- November 24, 2016 at 7:42 pm
Anonymous wrote "Please look into hope4cancer.com ".
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- November 24, 2016 at 7:42 pm
Anonymous wrote "Please look into hope4cancer.com ".
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- October 26, 2016 at 2:09 am
I was in your boat last year. I was given the choice of interferon or a clinical trial but only if I was seriously considering interferon, and I was not. So I did observation and here I am at my I year mark with matastasis to more lymph nodes and liver. I myself don’t know what to do but want you to know that staying positive is so helpful. I don’t know if you believe in a higher power or are a spiritual person but that has helped me. I now have a choice to make, conventional therapy, which is ipilimumab and nivolumab or leave this country and try something that has little to no side effects. Please look into hope4cancer.com you can call them and they will go over everything with you. I am still on the fence and get more and more confused everyday. However I do believe they are on point and have been researching this since 1960! Good luck to you and hope that it is in God’s will to get us both through this. I will prat for you. -
- October 26, 2016 at 2:23 am
I will very humbly tell you that I feel your anxiety and fear as I was myself recently diagnosed with a 3b stage. While everybody here will be helpful and be supportive, it will take whatever time for you to get acustomed to this new reality. Quite frankly, I am not over it myself and I just want to tell you that you are so not alone… All I'm saying really is feel and go through all you need to. The journey is beginning and you, like I, will have to find a way to cope with what happened.
Sincerely, I don't wish to sound like a downer, all I'm saying is you are not alone. No, you are not alone. Come back to this board as often as you need and feel.
Try to get some rest.
Sole
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- October 26, 2016 at 2:23 am
I will very humbly tell you that I feel your anxiety and fear as I was myself recently diagnosed with a 3b stage. While everybody here will be helpful and be supportive, it will take whatever time for you to get acustomed to this new reality. Quite frankly, I am not over it myself and I just want to tell you that you are so not alone… All I'm saying really is feel and go through all you need to. The journey is beginning and you, like I, will have to find a way to cope with what happened.
Sincerely, I don't wish to sound like a downer, all I'm saying is you are not alone. No, you are not alone. Come back to this board as often as you need and feel.
Try to get some rest.
Sole
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- October 26, 2016 at 2:37 am
I’m sorry to hear. When did you find out. Have you had the sentinel biospy yet. I feel alone though no family like mom dad been on for a long time. I have my husband but I find it hard to talk he is in denial or something. Been to all my appointments alone. But thank you I feel this is already helping being on this board. Helps me have people to talk to that are feeling going through this. -
- October 26, 2016 at 2:37 am
I’m sorry to hear. When did you find out. Have you had the sentinel biospy yet. I feel alone though no family like mom dad been on for a long time. I have my husband but I find it hard to talk he is in denial or something. Been to all my appointments alone. But thank you I feel this is already helping being on this board. Helps me have people to talk to that are feeling going through this. -
- October 26, 2016 at 2:37 am
I’m sorry to hear. When did you find out. Have you had the sentinel biospy yet. I feel alone though no family like mom dad been on for a long time. I have my husband but I find it hard to talk he is in denial or something. Been to all my appointments alone. But thank you I feel this is already helping being on this board. Helps me have people to talk to that are feeling going through this. -
- October 26, 2016 at 3:13 am
Dear Lisa,
You seem to be from Toronto and I'm in Montreal!
Which med center have you been in Toronto?
As for me, as you might know, our Quebec health system is really failing us and while I am currently at our Notre-Dame CHUM hospital, I am trying to get a tranfer to the new CUSM McGill center here. I have just had a nightmare experience with Notre Dame so far.
You can look up at my prior posts about my pathology reports. Not knowing your scan results I can tell you that we ate not very far apart.
Let's keep in touch.
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- October 26, 2016 at 3:13 am
Dear Lisa,
You seem to be from Toronto and I'm in Montreal!
Which med center have you been in Toronto?
As for me, as you might know, our Quebec health system is really failing us and while I am currently at our Notre-Dame CHUM hospital, I am trying to get a tranfer to the new CUSM McGill center here. I have just had a nightmare experience with Notre Dame so far.
You can look up at my prior posts about my pathology reports. Not knowing your scan results I can tell you that we ate not very far apart.
Let's keep in touch.
-
- October 26, 2016 at 3:13 am
Dear Lisa,
You seem to be from Toronto and I'm in Montreal!
Which med center have you been in Toronto?
As for me, as you might know, our Quebec health system is really failing us and while I am currently at our Notre-Dame CHUM hospital, I am trying to get a tranfer to the new CUSM McGill center here. I have just had a nightmare experience with Notre Dame so far.
You can look up at my prior posts about my pathology reports. Not knowing your scan results I can tell you that we ate not very far apart.
Let's keep in touch.
-
- October 26, 2016 at 3:16 am
Wow. I am close to Toronto and i am now at Sunnybrook science center. Yes playing catch up with posts now reading everyone’s stories. Certainly important information out there. I been reading about drugs treatments and is it true Inferion is not good. -
- October 26, 2016 at 3:16 am
Wow. I am close to Toronto and i am now at Sunnybrook science center. Yes playing catch up with posts now reading everyone’s stories. Certainly important information out there. I been reading about drugs treatments and is it true Inferion is not good. -
- October 26, 2016 at 3:16 am
Wow. I am close to Toronto and i am now at Sunnybrook science center. Yes playing catch up with posts now reading everyone’s stories. Certainly important information out there. I been reading about drugs treatments and is it true Inferion is not good. -
- October 26, 2016 at 3:17 am
Sorry to hear hopefully things will improve with new hospital. I’m not sure of Quebec health care -
- October 26, 2016 at 3:17 am
Sorry to hear hopefully things will improve with new hospital. I’m not sure of Quebec health care -
- October 26, 2016 at 3:17 am
Sorry to hear hopefully things will improve with new hospital. I’m not sure of Quebec health care
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- October 26, 2016 at 2:23 am
I will very humbly tell you that I feel your anxiety and fear as I was myself recently diagnosed with a 3b stage. While everybody here will be helpful and be supportive, it will take whatever time for you to get acustomed to this new reality. Quite frankly, I am not over it myself and I just want to tell you that you are so not alone… All I'm saying really is feel and go through all you need to. The journey is beginning and you, like I, will have to find a way to cope with what happened.
Sincerely, I don't wish to sound like a downer, all I'm saying is you are not alone. No, you are not alone. Come back to this board as often as you need and feel.
Try to get some rest.
Sole
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- October 27, 2016 at 4:27 pm
Hi I’m OK thank you for asking
How are you? I have been still not motivated and down just want surgery to be over with so I know what is next -
- October 27, 2016 at 4:27 pm
Hi I’m OK thank you for asking
How are you? I have been still not motivated and down just want surgery to be over with so I know what is next -
- October 27, 2016 at 4:27 pm
Hi I’m OK thank you for asking
How are you? I have been still not motivated and down just want surgery to be over with so I know what is next
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- October 27, 2016 at 12:59 pm
Lisa,
I'm new to this also. I have far more questions than answers and will defer to the folks on the board that have the experience to provide educated opinions. All I can add is that you aren't alone. I'm going thru much of what you decribed. I'm detached at work and have trouble getting motivated to do the simplest things. But I think I need to fight that urge. I've started making plans with friends, my kids, and my awesome fiance. I may not have the motivation today, but if I plan a fishing trip with my son for Saturday, I know I'll get my butt out there. That's what seems to be working for me, I realize it might not for you. I also now find myself sitting in a quiet church more often. Again, that might not work for everybody. I just encourage you to find a way to start doing one thing again and know that we have been thrown into a fight we never asked for, but now that we're let, let's win it.
Be well,
Matt
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- October 27, 2016 at 12:59 pm
Lisa,
I'm new to this also. I have far more questions than answers and will defer to the folks on the board that have the experience to provide educated opinions. All I can add is that you aren't alone. I'm going thru much of what you decribed. I'm detached at work and have trouble getting motivated to do the simplest things. But I think I need to fight that urge. I've started making plans with friends, my kids, and my awesome fiance. I may not have the motivation today, but if I plan a fishing trip with my son for Saturday, I know I'll get my butt out there. That's what seems to be working for me, I realize it might not for you. I also now find myself sitting in a quiet church more often. Again, that might not work for everybody. I just encourage you to find a way to start doing one thing again and know that we have been thrown into a fight we never asked for, but now that we're let, let's win it.
Be well,
Matt
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- October 27, 2016 at 4:26 pm
Hi Matt thank you for sharing. I hear what you are saying. And good for you to make plans and go. I am so detached right now. I make plans and then cancel them as soon as I wake up and give a shit reason. Working for me right now isn’t acceptable as I already suffer from anxiety and I can’t concentrate to say the least. However Halloween is coming up which gives me the motivation to go out with my daughter so she can enjoy her holiday. Surgery is coming soon and I am scared. I have had many surgery in my life and so much has gone wrong. I am praying I have a good surgery without any complications. Seems almost like I Have become paralized to everything. I made plans for tomorrow and I am forcing myself to keep them. I need to get out of my house. It seems the longer I trap myself in the harder it will to get out. Once surgery is done and I know what I face with proper staging and treatment I will get the strength and fight this. My worst fear is death. I have been a personal support worker for over 10 years seen a lot and I am just not ready to give up and go yet.Wishing you all the best in your fight I’m here if you ever want to chat
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- October 27, 2016 at 4:26 pm
Hi Matt thank you for sharing. I hear what you are saying. And good for you to make plans and go. I am so detached right now. I make plans and then cancel them as soon as I wake up and give a shit reason. Working for me right now isn’t acceptable as I already suffer from anxiety and I can’t concentrate to say the least. However Halloween is coming up which gives me the motivation to go out with my daughter so she can enjoy her holiday. Surgery is coming soon and I am scared. I have had many surgery in my life and so much has gone wrong. I am praying I have a good surgery without any complications. Seems almost like I Have become paralized to everything. I made plans for tomorrow and I am forcing myself to keep them. I need to get out of my house. It seems the longer I trap myself in the harder it will to get out. Once surgery is done and I know what I face with proper staging and treatment I will get the strength and fight this. My worst fear is death. I have been a personal support worker for over 10 years seen a lot and I am just not ready to give up and go yet.Wishing you all the best in your fight I’m here if you ever want to chat
-
- October 27, 2016 at 4:26 pm
Hi Matt thank you for sharing. I hear what you are saying. And good for you to make plans and go. I am so detached right now. I make plans and then cancel them as soon as I wake up and give a shit reason. Working for me right now isn’t acceptable as I already suffer from anxiety and I can’t concentrate to say the least. However Halloween is coming up which gives me the motivation to go out with my daughter so she can enjoy her holiday. Surgery is coming soon and I am scared. I have had many surgery in my life and so much has gone wrong. I am praying I have a good surgery without any complications. Seems almost like I Have become paralized to everything. I made plans for tomorrow and I am forcing myself to keep them. I need to get out of my house. It seems the longer I trap myself in the harder it will to get out. Once surgery is done and I know what I face with proper staging and treatment I will get the strength and fight this. My worst fear is death. I have been a personal support worker for over 10 years seen a lot and I am just not ready to give up and go yet.Wishing you all the best in your fight I’m here if you ever want to chat
-
- October 27, 2016 at 12:59 pm
Lisa,
I'm new to this also. I have far more questions than answers and will defer to the folks on the board that have the experience to provide educated opinions. All I can add is that you aren't alone. I'm going thru much of what you decribed. I'm detached at work and have trouble getting motivated to do the simplest things. But I think I need to fight that urge. I've started making plans with friends, my kids, and my awesome fiance. I may not have the motivation today, but if I plan a fishing trip with my son for Saturday, I know I'll get my butt out there. That's what seems to be working for me, I realize it might not for you. I also now find myself sitting in a quiet church more often. Again, that might not work for everybody. I just encourage you to find a way to start doing one thing again and know that we have been thrown into a fight we never asked for, but now that we're let, let's win it.
Be well,
Matt
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