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CT dyes- allergy reactions

Forums General Melanoma Community CT dyes- allergy reactions

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    LynnLuc
    Participant

    I am asking if anyone can tell me something about the dyes. I have done scans and scans for most of my life.

     

    3 months ago I had a reaction and I itched and hived on feet, legs, truck, back face, and arms starting about 5 minutes after the CT scan. They treated me with a couple IV pushes of Benadryl and said next time I would need to be premedicated due to allergy reaction.

     

    I am asking if anyone can tell me something about the dyes. I have done scans and scans for most of my life.

     

    3 months ago I had a reaction and I itched and hived on feet, legs, truck, back face, and arms starting about 5 minutes after the CT scan. They treated me with a couple IV pushes of Benadryl and said next time I would need to be premedicated due to allergy reaction.

     

    Yesterday I had my scan and I had to take Medrol 32 mg 12 hours before and then again at 2 hours before as well as 50 mg of Benadryl 1 hour before. The tech says the premeds usually always work in 99% of the patients…I drink 3 glasses of medium stuff that taste like gator aid…then after they do a couple run throughs in the machine they use a drip of Optiray 320. This time they started the drip and ran me in the machine and on the way out I was starting a serious reaction to the dye. I went into shock and it was an awful ordeal yesterday. Hives, itching, urge to vomit, bottomed out on BP , breathing trouble, blacked out, they pushed steroids and Benadryl in my line and some other things. They hooked me up to monitors and over a course of time  I had 7 adrenaline shots to the chest. I was trembling and shaking all over like Parkinsons.They had to monitor me so they admitted me and kept me on O2 and gave me zantac in IV as well. They wanted to give me Duladid but my hubby and I said no.

     

     I didn't even get to do my MRI or my Anti PD 1. My question is I had to reschedule my Anti PD 1 and MRI…and the nurse says I need to take the premeds again. It had to be on the first drip of the CT dye I had reaction….now I am scared because of the MRI dye…anyone know if I will end up in shock again??-  Dr W says I need to be certified as allergic to Iodinated  radio contract dyes and Optiray320 and I should never take the stuff again…why would I need to be premed again for the MRI? Isn't it also an iodinated dye?  It was so close to death yesterday and if one drop in my vein can do that what is going to happen if they use it again for the MRI? Do they have a substitute dye for people who are allergic?- Lynn

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